Oh, yes we are.
Today was a longish sort of day and I'm feeling that rush of exhaustion that stems from finally being able to relax a little.
This morning she had her first Pediasure feed via the tube. Most of you already know that she calls it "chocolate milk". Well, when I asked her how it felt going into her tummy she said, "Too chocolatey." She makes me laugh.
A lurky local blog reader (Hi there!) emailed me this morning to see if she could bring KayTar a little get well gift. She left it at the nurses station and they delivered it to KayTar. She was THRILLED! It was such a thoughtful and sweet gesture! I don't know if she wants me to give her name or not, so I won't...but everyone tell her how KIND she is, because I'm sure she'll see this! Check it out...
A homemade tutu and wand! She was in heaven. She wore it all day long. She spent most of the day out of her bed. We went on walks around the floor, she played in our mega-room, and we even took a wagon ride to the cafeteria so I could eat lunch. The tutu got rave reviews all around. She also did a craft today, see her pretty bracelet?
This afternoon, the nurses trained me on tube usage and I fed her for the first time. It was still a little painful, but not too bad. After every 2 ounces, I asked her if her tummy was full or if she wanted more. After 2 ounces, she wanted more. After 4 ounces, she wanted more. After 6 ounces, her eyes closed and she was snoring away. A nice full bellied nap. After that, we were free to go! By the time we got home she was hurting pretty badly, because she hadn't had pain medication since morning. She was running a little fever and was generally miserable. Once we got her codeine laced tylenol into her little body and chased it with some Pediasure, she perked up, though. She's currently wandering around the living room, watching Blue's Clues in her fairy pajamas with her tutu on over them. Perky as ever. It is a beautiful thing.
Today she has probably had 5 sips of fluid total, but she's gotten almost all of her fluid, calories, and medications for the day already. By the time she goes to sleep tonight, she will have had everything she needs. And that, too, is a beautiful thing.