tag:blogger.com,1999:blog-332816532024-03-07T03:01:37.921-06:00Life with the 'TarsKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger1056125tag:blogger.com,1999:blog-33281653.post-8314842868464752212013-06-19T13:37:00.002-05:002013-06-19T13:37:50.307-05:00Moving...again!Our new blog home, Jux (which I LOVE), is closing its doors, so we had to find a new home. I'm just not comfortable making this old blog public, I keep it more for myself at this point than anything else, so we have a new home at: <a href="http://ourlifewithk.wordpress.com/">http://ourlifewithk.wordpress.com/</a> . I hope you'll follow us there!<br />
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We had a very rough week, KayTar was in the hospital for much of it and we're still not anywhere close to her baseline here at home....you can catch up on all that excitement over there, too! :)Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com0tag:blogger.com,1999:blog-33281653.post-48971223005810829832013-05-21T11:15:00.001-05:002013-05-21T11:15:04.954-05:00So, this happened...<div class="separator" style="clear: both; text-align: center;">
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I graduated with honors this past Saturday! Feels super good to be done! Originally, I planned to go to medical school next, but I'm not willing to sacrifice that kind of time anymore. KayTar is my #1 patient and the rest can wait. Knowing your kiddo has a progressive disease really reinforces the message that time is a limited and precious commodity and something just are not worth the cost. A PA graduate program is definitely on my radar for the future, if/when the time seems right, but for now I'm just DONE! Hooray. We all survived! Yesterday at her doctor's appointment, KayTar was telling everyone (receptionist, doctors, random folks on the elevator) "My mom graduated from college this weekend!" :)<br />
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Other important updates:<br />
- My mom's surgery was successful and she is cancer-free! She still needs to be watched closely, but so far, so good.<br />
- KayTar is still happily married and doing pretty well medically-speaking. Her gut is still iffy and we may be heading to a gj-tube and she needed oxygen after field day last week (the temp is climbing outside, so this will likely become more frequent), but overall her docs agree she is doing well and has been pretty healthy.<br />
- KayTar finally has Medicaid! WOOT!<br />
- We had a great time on our RV trip, read about it here: <a href="https://lifewithk.jux.com/1139372">https://lifewithk.jux.com/1139372</a><br />
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Maybe now that I'm done with school, I'll have a bit more time to update here...but if not, you can always keep up with K, at least, on the other blog!<br />
<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com7tag:blogger.com,1999:blog-33281653.post-46752225081566277712013-03-06T16:46:00.001-06:002013-03-06T16:46:21.265-06:00Hey! I'm still alive!Soooo, yeah. I started a new blog and then just disappeared here. If you are looking for me and KayTar, we can be found here, http://lifewithk.jux.com/ (I would put a hyperlink, but Blogger is being a twerp). I really like the format over there! But I have a bit of time so I wanted to post a little update here, too.<br />
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<b>1. My mom has breast cancer. </b>She should be having surgery this month and hopefully she will get the all clear after that, but we shall see.<br />
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<b>2. KayTar is married now.</b> Want to know more? https://lifewithk.jux.com/994929<br />
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<b>3. BubTar just got his Arrow of Light in cub scouts.</b> He'll be a boy scout soon!<br />
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<b>4. I got my graduation application approval notice today!</b> Woot! Almost FREE! (also, I have a wicked case of senioritis and need to buckle down...)<br />
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<b>5. KayTar had a rocking Harry Potter party for her EIGHTH birthday.</b> I had a lot of fun with it! https://lifewithk.jux.com/991567<br />
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<b>6. We are going on a RV roadtrip for Spring Break next week! </b><br />
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<b>7. Other update-y stuff... </b>Still don't have Medicaid, AGH! KayTar DID lose half her docs and therapists, AGH! But we're making progress, so on we stumble. ;)<br />
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<b>8. Kids are still cute. </b>See?<br />
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<b><br /></b>Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com4tag:blogger.com,1999:blog-33281653.post-43719582489374642452013-01-08T16:37:00.000-06:002013-01-08T16:37:52.980-06:005 Things...<div>
that are making me crazy!</div>
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<strike><b>1. We got a bill for $308 for KayTar's last eye exam.</b></strike> Thankfully, when I called today, it turned out it was a simple error and they did not have her new insurance on file. WHEW.<br />
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<b>2. Medicaid or lack thereof.</b> On Christmas Eve, we got notice that KayTar would be receiving Medicaid. YAY! But then we talked to our caseworker and he said that should NOT have happened yet. He was super confused and talk to his supervisor and his supervisor's supervisor and the person who approved us for Medicaid and yesterday I got a letter saying she was denied Medicaid. Boo. We're still in the waiting process for MDCP, so who knows when she will actually have Medicaid.<br />
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<b>3. CHIP renewal.</b> Since there is no word on how long it will take to get her on Medicaid, I have to make sure she stays on CHIP and we just got the renewal paperwork for that yesterday, too. JOY. This makes me incredibly nervous every time because if she loses coverage, we would lose access to so many things that are necessary for her life. It makes me sick to even contemplate that reality!<br />
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<b>4. Current plan no longer contracted with half her docs and all her therapists. </b>We also got a letter informing us that her current health plan will no longer be contracted with one of her hospital systems (where she sees half her doctors and all of her therapists) as of March. But if we switch plans, the other half of her docs (the more critical doctors, actually) and her hospital will not be in network. When can we get Medicaid and stop playing this game?!<br />
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<b>5. My school stuff.</b> My last semester of undergrad starts next week and it seems like more than half my schedule is up in the air. It has been impossible to get an appointment with a counselor, so we are negotiating via email at a snail's pace and last I heard she wanted me to take 2 classes I took a community college (and made A's in). I'm waiting impatiently to hear whether it was an oversight or something more. I also have to decide on whether I am taking Special Projects (also known as a semester of busy work and doing a professor's grunt work) or Field Experience. I'm hoping for Field Experience and waiting to hear the official word on whether a possibility is going to pan out or not. Either way, I have to decide and get the forms turned in by Monday. I can feel the clock ticking! Agh!<br />
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<i>On an unrelated side note, I set up a new blog of sorts. It is mostly meant to chronicle KayTar-specific life for the general population. I've never felt comfortable sharing this blog with the wide world of people we know, but I know there are friends and family who might like more detail than our yearly Christmas letter and my Facebook status updates provide, so that is the purpose of this new site. I will still blog here and some of the content will be duplicated, but things like this post will stay here and not there. The bonus is that it is much more photograph friendly. Check it out: <a href="http://lifewithk.jux.com/">life with K.</a></i><br />
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com4tag:blogger.com,1999:blog-33281653.post-27656014256892208272012-12-31T16:56:00.001-06:002012-12-31T17:50:22.569-06:00Big 12 of 20121. <a href="http://khebert.blogspot.com/2012/01/rehearsalsperformances.html">The kids were in their first musical, Oliver! back in January/February.</a> It was fun for all!<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpUuHKNWzX9S8WmLhM2uSVSHYYKCfqP9nHJAvcU9BIjGwBBOzqWHchB1H3dNrZ4GQjXOrrED7Diyd8Bu-8DdqYFcKKEfphD6Qkl4TmpWIVEoPKLGSEAEHnC8bNeE5KMYApxC5I/s1600/338451_10150486984055800_516285799_9304196_972917475_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpUuHKNWzX9S8WmLhM2uSVSHYYKCfqP9nHJAvcU9BIjGwBBOzqWHchB1H3dNrZ4GQjXOrrED7Diyd8Bu-8DdqYFcKKEfphD6Qkl4TmpWIVEoPKLGSEAEHnC8bNeE5KMYApxC5I/s400/338451_10150486984055800_516285799_9304196_972917475_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">January: Fave Photo</td></tr>
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2. <a href="http://khebert.blogspot.com/2012/05/good-news.html">KayTar's brain MRI showed an almost complete resolution of the earlier lesions! </a> Of course, now that we know we are dealing with mito, we know there is a likelihood of recurrence, but still, for now...YAY!<br />
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<tr><td class="tr-caption" style="text-align: center;">February: Fave Photo</td></tr>
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3. <a href="http://khebert.blogspot.com/2012/05/my-husband-is-awesome.html">Josh surprised me with a super fun night away for our anniversary!</a><br />
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<tr><td class="tr-caption" style="text-align: center;">March: Fave Photo</td></tr>
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4. <a href="http://khebert.blogspot.com/2012/06/we-are-in-new-york-times-today.html">I was interviewed for the New York Times!</a> KayTar still thinks we should have been on the front page and that now everyone will think mitochondrial disease makes you kiss sock monkeys.<br />
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<tr><td class="tr-caption" style="text-align: center;">April: Fave Photo</td></tr>
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5. <a href="http://khebert.blogspot.com/2012/05/week-in-review.html">Josh graduated from university!</a><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyUBGhwgqexA2hGkbU7ciJrLwfnLmJLY3XoC2j6jTQ3lOKQZJ5XPXlpo3VIYWdBNDpvWWn9P_p7h9XGgOF71f2HfiXCp2aJk7e5spxfu74W2vdI2Q85vQbDKkZgyXYMWxDjpnK/s1600/414481_10150827569880800_168312858_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyUBGhwgqexA2hGkbU7ciJrLwfnLmJLY3XoC2j6jTQ3lOKQZJ5XPXlpo3VIYWdBNDpvWWn9P_p7h9XGgOF71f2HfiXCp2aJk7e5spxfu74W2vdI2Q85vQbDKkZgyXYMWxDjpnK/s400/414481_10150827569880800_168312858_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">May: Fave Photo</td></tr>
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6. <a href="http://khebert.blogspot.com/2012/08/changes.html">KayTar got her first wheelchair and started supplemental oxygen at night.</a> <a href="http://khebert.blogspot.com/2012/09/oxygen-part-2.html">And then started supplemental oxygen during the day (as needed).</a><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV08oY5pzfBLhL7J2pIy8xSIbIZmoUfQcc9OUJPxNOeZanu8XVuAUQN4Xx_MjXTdtAj0DP4CMXa8_UlegvjFS-zjBdxfRQ3GM2ayFYUuwdC3ZVzVLINNz1i6mIhtfPKRB4vorC/s1600/412325_10150861368725800_358147975_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV08oY5pzfBLhL7J2pIy8xSIbIZmoUfQcc9OUJPxNOeZanu8XVuAUQN4Xx_MjXTdtAj0DP4CMXa8_UlegvjFS-zjBdxfRQ3GM2ayFYUuwdC3ZVzVLINNz1i6mIhtfPKRB4vorC/s400/412325_10150861368725800_358147975_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">June: Fave Photo</td></tr>
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7. <a href="http://khebert.blogspot.com/2012/08/first-day-of-school.html">BubTar started middle school!</a> It has been AMAZING for him! He really fits in this new environment and he is loads happier than he ever was in elementary. He has great friends and really enjoys school and participating in band.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjskl6sa8w1aP5vV19EwWl6zXc2k06PBGOkV6cTOBVSRP1WvnrESxNdoiTo2UD2ikT1k48AUIAlqfNQU5IZKryIYCby2GhMHOchbiXq98OzKi8jrS-4kUUul2lT__oeIn6ghfw9/s1600/277882_10150929690270800_845388393_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjskl6sa8w1aP5vV19EwWl6zXc2k06PBGOkV6cTOBVSRP1WvnrESxNdoiTo2UD2ikT1k48AUIAlqfNQU5IZKryIYCby2GhMHOchbiXq98OzKi8jrS-4kUUul2lT__oeIn6ghfw9/s400/277882_10150929690270800_845388393_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">July: Fave Photo</td></tr>
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8. <a href="http://khebert.blogspot.com/2012/10/sometimes-mountains-move.html"> Transgenomic agreed to cover the entire cost of a $15K genetic test because KayTar's first sample was destroyed in a lab accident. MIRACLE.</a><br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNkF2vbFZcN08iYcjS8QhVFtEi1zjjEWqR-E06hvqu0PBGKCQmlYbac8CYz7HtQeuHejjAaxpZiZjVg-X9Db7Ew2xnYEaqeN-D8inewBgGdQskWFX60lUHxgPyv3ADdEX1-uNx/s1600/416770_10151017259750800_480356694_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNkF2vbFZcN08iYcjS8QhVFtEi1zjjEWqR-E06hvqu0PBGKCQmlYbac8CYz7HtQeuHejjAaxpZiZjVg-X9Db7Ew2xnYEaqeN-D8inewBgGdQskWFX60lUHxgPyv3ADdEX1-uNx/s640/416770_10151017259750800_480356694_o.jpg" width="425" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">August: Fave Photo</td></tr>
</tbody></table>
<br />
9. <a href="http://khebert.blogspot.com/2012/11/mito-camp.html">We went to Mito Camp!</a> KayTar wasn't feeling her best and she crashed on us in a somewhat frightening manner, but it was probably the most amazing thing we did all year. Each of us had a really wonderful time and are very much looking forward to next year already!<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2jrqpKq27Z2bVKjOBcJEuj6xkzIvt39shtSdh8-lV9BRRYf6qu0swCUatmNE53TVXXn3UwucM8pzrlNvLASYxIJr1jGcjeOWrrHH6YA0CY9aeWGUnL1WHD05Fr8so_PUC3EKB/s1600/194794_10151055841055800_1301553478_o+(1).jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2jrqpKq27Z2bVKjOBcJEuj6xkzIvt39shtSdh8-lV9BRRYf6qu0swCUatmNE53TVXXn3UwucM8pzrlNvLASYxIJr1jGcjeOWrrHH6YA0CY9aeWGUnL1WHD05Fr8so_PUC3EKB/s400/194794_10151055841055800_1301553478_o+(1).jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">September: Fave Photo</td></tr>
</tbody></table>
<br />
10. <a href="http://khebert.blogspot.com/2012/11/almost-diagnosed.html">KayTar was tentatively diagnosed with mitochondrial disease.</a> The official diagnosis will come after genetic confirmation, but for now we know enough that she is being treated as though she has it. As I wrote on Facebook today, "Every year for the past 6 years, I've made a silent New Year's wish that we would finally figure out what in the world was going on with KayTar that year. 2012 is the year is finally happened! While it is not the simplest sort of answer and it leaves us with many more unanswered questions, we are thankful to have it at last."<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQroJuFLo_CYV_EmIu-oUWa2oUfIhhsksG9nu5TyvuMCxg8lvAebCwLkuvamnyKjPw091RbR2ZC8whrcB0zJD0L9aTLmLPQDtLyP_amLxylAFSFbPhzq45OjHQmM89xZOzoyGl/s1600/204731_10151059607630800_1533884443_o+(1).jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQroJuFLo_CYV_EmIu-oUWa2oUfIhhsksG9nu5TyvuMCxg8lvAebCwLkuvamnyKjPw091RbR2ZC8whrcB0zJD0L9aTLmLPQDtLyP_amLxylAFSFbPhzq45OjHQmM89xZOzoyGl/s640/204731_10151059607630800_1533884443_o+(1).jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">October: Fave Photo</td></tr>
</tbody></table>
<br />
11. <a href="http://khebert.blogspot.com/2012/12/we-flew-to-north-pole.html">We went to the North Pole!</a><br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh64ZnjjEnxy9vdV1ZlbT00mwjaImAXIsi3Qj8U8O2TiT-HUav2sPvaaNfVdVBVhMIQvhfdTO0aItkbn-xV6iTHmf3jZsUUt7naKCLNvGXXibhQaLOc9ty29fLAMQv7UtEqQj14/s1600/135284_10151125985075800_1590793848_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh64ZnjjEnxy9vdV1ZlbT00mwjaImAXIsi3Qj8U8O2TiT-HUav2sPvaaNfVdVBVhMIQvhfdTO0aItkbn-xV6iTHmf3jZsUUt7naKCLNvGXXibhQaLOc9ty29fLAMQv7UtEqQj14/s640/135284_10151125985075800_1590793848_o.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">November: Fave Photo</td></tr>
</tbody></table>
<br />
12. <a href="http://khebert.blogspot.com/2012/12/gastroparesis-ketosis-and-abscessoh-my.html">And qualifying just under the wire, we have last week's perfect storm!</a> We haven't had to go to the ER (for anything other than urgent button swaps) since February 2010, as far as I can tell. So, that alone makes this sort of newsworthy. The other thing is, this is the first time her ketotic hypoglycemia has acted up since the onset of her gastroparesis and motility problems which greatly complicates things. I am hoping this is not the start of a new trend!<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgN3iN8IKzXkIGwTRwuWIdvaB2guf9F3TSDh1oEjPrGFvNcxReKkTu86Zh8ISHiqZRgaQ3mOQS28InvIqH5uVJmgc-dcz4H_WvHoC5UeMEIf7xwFn9uqS-qO_QjJV5s1fddChcN/s1600/706329_10151142297880800_1371784453_o+(1).jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgN3iN8IKzXkIGwTRwuWIdvaB2guf9F3TSDh1oEjPrGFvNcxReKkTu86Zh8ISHiqZRgaQ3mOQS28InvIqH5uVJmgc-dcz4H_WvHoC5UeMEIf7xwFn9uqS-qO_QjJV5s1fddChcN/s400/706329_10151142297880800_1371784453_o+(1).jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">December: Fave Photo</td></tr>
</tbody></table>
<div style="text-align: center;">
<i>There are a few months that I had a VERY difficult time choosing my favorite photo, so enjoy these runners-up, too!</i></div>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5ICueCY-zkBLfwBOkBMiuDFU4NVeKCp4og9Vc52_2IQtiHwka_ObW1A12vHtzqHb9I6B47f8yBKR2XP4HeJBXkrVbGOJrXJ9Hsjd3kLMbjwQ9b7UCFnSmvH1jwNcRaGhvjkLV/s1600/461313_10151164121055800_485736262_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5ICueCY-zkBLfwBOkBMiuDFU4NVeKCp4og9Vc52_2IQtiHwka_ObW1A12vHtzqHb9I6B47f8yBKR2XP4HeJBXkrVbGOJrXJ9Hsjd3kLMbjwQ9b7UCFnSmvH1jwNcRaGhvjkLV/s400/461313_10151164121055800_485736262_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From December</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjDBjodvdMOktPX4OqpKY6af6HK9TysVgHvdIteIcPyGrWMSequKVcLgF_X_vHxcVWNsvqiiDuo2NUyQrW9Twl39KrpLBY7nv4sTibVXLE2BEHUlOYpnfbfsqg3p3h7J2IykIl/s1600/616484_10151126066335800_1892683050_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjDBjodvdMOktPX4OqpKY6af6HK9TysVgHvdIteIcPyGrWMSequKVcLgF_X_vHxcVWNsvqiiDuo2NUyQrW9Twl39KrpLBY7nv4sTibVXLE2BEHUlOYpnfbfsqg3p3h7J2IykIl/s400/616484_10151126066335800_1892683050_o.jpg" width="266" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From November</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtriwFJRL23iCHOYO9ljXdYgZ6KYJx75zeQnyRugV1aAQQGygm-M0NpBgcwFLIRRpJAWv0EtgfU7MYSYpIKYyw6W3OMlvEMJJTXYX8g1okW9tiw0B8TjubzmltoxMjWWO4pPjT/s1600/622899_10151096750905800_262659108_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtriwFJRL23iCHOYO9ljXdYgZ6KYJx75zeQnyRugV1aAQQGygm-M0NpBgcwFLIRRpJAWv0EtgfU7MYSYpIKYyw6W3OMlvEMJJTXYX8g1okW9tiw0B8TjubzmltoxMjWWO4pPjT/s400/622899_10151096750905800_262659108_o.jpg" width="266" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From October</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjXqao_c-86q64ozPxSynPLuoy_ApTEeoAB2kGNRnQr4WXnRAcNH8i1-xD0jnpSoeLNsONJ4SY21k49C68V4L2uUPcLA8Mks-DFP9_enLtm6YnRv32t7UgJj96nwTkOux_4cj7h/s1600/329752_10151023933010800_734187244_o+(2).jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjXqao_c-86q64ozPxSynPLuoy_ApTEeoAB2kGNRnQr4WXnRAcNH8i1-xD0jnpSoeLNsONJ4SY21k49C68V4L2uUPcLA8Mks-DFP9_enLtm6YnRv32t7UgJj96nwTkOux_4cj7h/s400/329752_10151023933010800_734187244_o+(2).jpg" width="266" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From September</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHE5-R7lF3MKe1sdMddI_rLnJU4Am0jTP3hQe3toeBp5CFGaKg7wjwQ8Lp8rQDpjWaTkTs9NBbLatvo-FhekwoWhYP7DWmODlFXN1mX5U6XRBSTh-ZA5rIVop2HNXqnQqjIGZd/s1600/411411_10150996062525800_770172702_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHE5-R7lF3MKe1sdMddI_rLnJU4Am0jTP3hQe3toeBp5CFGaKg7wjwQ8Lp8rQDpjWaTkTs9NBbLatvo-FhekwoWhYP7DWmODlFXN1mX5U6XRBSTh-ZA5rIVop2HNXqnQqjIGZd/s400/411411_10150996062525800_770172702_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From August</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrqzhNPoWRmnDfa8kzeoHmDpsKqp4nWtgv7x5nIoFAEwLQXS7k2wgu9kcZ2rHk78kSRZ5CVpoa7Cumh1qqH_9v9KYTsnQKso3gGMKfcflJMZSzYvSpQwJ_1umKxWbXlXj81vnI/s1600/410955_10150861353895800_2141200948_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrqzhNPoWRmnDfa8kzeoHmDpsKqp4nWtgv7x5nIoFAEwLQXS7k2wgu9kcZ2rHk78kSRZ5CVpoa7Cumh1qqH_9v9KYTsnQKso3gGMKfcflJMZSzYvSpQwJ_1umKxWbXlXj81vnI/s400/410955_10150861353895800_2141200948_o.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From May</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs91n3Q89Kk6akB5001dtbodSEWMdbzI2AZ9Ng_I-Z78dtuLpfSG0bndANml8_Te1qS1rDouA__DrMr0ZQetiBM89hPR9Dg__trQjlLCYSaZR1sEquGKk1M3CZgdh0mt4B8vuI/s1600/460096_10150576198830800_1024208606_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs91n3Q89Kk6akB5001dtbodSEWMdbzI2AZ9Ng_I-Z78dtuLpfSG0bndANml8_Te1qS1rDouA__DrMr0ZQetiBM89hPR9Dg__trQjlLCYSaZR1sEquGKk1M3CZgdh0mt4B8vuI/s400/460096_10150576198830800_1024208606_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From March</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpoE5zvF4KI6A3g5K-mBs6oqaYiF_6zoL32uKK7Jfmf2w4YuRT1RCw0HnHNPeegfiB4VgTtizoxVjefMOrDsu-r3rhcorAYRN5q4KgDsPqH8LtLh-Z8VcOPvtcD-mYNo9yT-b1/s1600/338142_10150535298780800_1545625212_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpoE5zvF4KI6A3g5K-mBs6oqaYiF_6zoL32uKK7Jfmf2w4YuRT1RCw0HnHNPeegfiB4VgTtizoxVjefMOrDsu-r3rhcorAYRN5q4KgDsPqH8LtLh-Z8VcOPvtcD-mYNo9yT-b1/s400/338142_10150535298780800_1545625212_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From February</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVAva0V5W8LG_scuaEKJcKeeNIs24itN2q6t5nVoZiCFFxgOt1uSW6Wvy_sue38HNQt6IiV_yjT7Wt7iRnHZxZje6unzh4AsoO7rAclKFsRViuV9cnVJI3VAvi4DF0fEUfReQg/s1600/338477_10150483618405800_499453921_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVAva0V5W8LG_scuaEKJcKeeNIs24itN2q6t5nVoZiCFFxgOt1uSW6Wvy_sue38HNQt6IiV_yjT7Wt7iRnHZxZje6unzh4AsoO7rAclKFsRViuV9cnVJI3VAvi4DF0fEUfReQg/s400/338477_10150483618405800_499453921_o.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">From January</td></tr>
</tbody></table>
<div style="text-align: center;">
<b><br /></b></div>
<div style="text-align: center;">
<b>I hope that each and every one of you have a safe and fun New Year's Eve and a monumentally blessed 2013!</b></div>
Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com6tag:blogger.com,1999:blog-33281653.post-28435667826285705882012-12-29T22:42:00.000-06:002012-12-29T22:42:59.411-06:00Twinkle, Our Naughty Elf<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLo6ldJCKoDSq981Bji7L6vKD0Yp7xharurlHueC5mjSeRzGtEdgk6CdqPxfW5yveF-JguXvW1BbOVZnk8T3V_OOBr-HYjYYXzX-hUWhLGDKWBmWCxiwu1osjyFSWm9000pNiz/s1600/IMG_20121201_100228.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLo6ldJCKoDSq981Bji7L6vKD0Yp7xharurlHueC5mjSeRzGtEdgk6CdqPxfW5yveF-JguXvW1BbOVZnk8T3V_OOBr-HYjYYXzX-hUWhLGDKWBmWCxiwu1osjyFSWm9000pNiz/s400/IMG_20121201_100228.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He arrived on December 1st, looking innocent enough.</td></tr>
</tbody></table>
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUO4A6DGfhXgE2VO2dhkAjiC2YmoYRkjpn9G5tV6TM8yCUUQ3K8y-vwsGnf58I2ZNiOoEtmpndZF6uXikfvg3AeZ_vLKAlfCZMMXQQmfoC756k3bTVs6r9tJhhkjuchAw6FH94/s1600/IMG_20121201_100026.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUO4A6DGfhXgE2VO2dhkAjiC2YmoYRkjpn9G5tV6TM8yCUUQ3K8y-vwsGnf58I2ZNiOoEtmpndZF6uXikfvg3AeZ_vLKAlfCZMMXQQmfoC756k3bTVs6r9tJhhkjuchAw6FH94/s400/IMG_20121201_100026.jpg" width="400" /></a></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0vZACe44tQKYzA8AYbhwZLRSY6anlFPL4ou0CvqEAvADzz1x8GgmBAYrPsK5-uG7BIQtcSf3B20C41s1MuqPWFxkZeZqxKGXDizCjTdpPY_T-VAyUgfWNYU30JivdPiSOBzgg/s1600/IMG_20121202_105044.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0vZACe44tQKYzA8AYbhwZLRSY6anlFPL4ou0CvqEAvADzz1x8GgmBAYrPsK5-uG7BIQtcSf3B20C41s1MuqPWFxkZeZqxKGXDizCjTdpPY_T-VAyUgfWNYU30JivdPiSOBzgg/s400/IMG_20121202_105044.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The morning of the 2nd, we found him hanging above the computer</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8G7iAU1ZM2dfEVZeBFucJoiBBY6k1x4gKbiw93wXAudkowQes41VlA-Gc8Of1aPs6D601ok6-Z5tt2bhC9JYjOLHc_H7zODwU26qz7IhX_51XqVTR8aaZ6oVNi16DHZnSTc6J/s1600/IMG_20121202_105312.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8G7iAU1ZM2dfEVZeBFucJoiBBY6k1x4gKbiw93wXAudkowQes41VlA-Gc8Of1aPs6D601ok6-Z5tt2bhC9JYjOLHc_H7zODwU26qz7IhX_51XqVTR8aaZ6oVNi16DHZnSTc6J/s400/IMG_20121202_105312.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He answered the kids' questions and used the webcam.</td></tr>
</tbody></table>
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSAtMH0rc4pelB6ojjtQiOdAjIzNuM6Zy6Dpm7fwBXoV-0QSDKyTorF7NjPGn9jRiTZyNZPWXz8enrUV26Q560YKI4dLO_jvjRDoteLEHYL-QaDN65i6ehPimtzfYP6IftZabs/s1600/IMG_20121202_105401.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhSAtMH0rc4pelB6ojjtQiOdAjIzNuM6Zy6Dpm7fwBXoV-0QSDKyTorF7NjPGn9jRiTZyNZPWXz8enrUV26Q560YKI4dLO_jvjRDoteLEHYL-QaDN65i6ehPimtzfYP6IftZabs/s400/IMG_20121202_105401.jpg" width="400" /></a></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhv6Zf7dqozIBhc2Eq-jzxV_-QhYrR-jT8nIz40izCKUEKbEXTOuc8DN9Ov29Tg_NL1nQdRvbXuTM8ANOHsFxWAC4sKPzlyr-zfu3KlNXVRwTqa5BGJTG0nkAsxX63lp6cEFnQ1/s1600/IMG_20121204_065806.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhv6Zf7dqozIBhc2Eq-jzxV_-QhYrR-jT8nIz40izCKUEKbEXTOuc8DN9Ov29Tg_NL1nQdRvbXuTM8ANOHsFxWAC4sKPzlyr-zfu3KlNXVRwTqa5BGJTG0nkAsxX63lp6cEFnQ1/s400/IMG_20121204_065806.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">We found him hanging from the fan in a pair of boxers one morning...</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlNCC28qrN-yXO4y7jM3eYKzgJxh5vAKHiJF-pdWcsF9TCojgdyV6TPv5lC4ao5DTc3_UrKXWQ8klVEIlKCQ2iTnsxvkFxqil-ihd6EDKMKuaQZHZ0kUSj5hzHQ5_-tRdb5JHx/s1600/IMG_20121204_065833.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlNCC28qrN-yXO4y7jM3eYKzgJxh5vAKHiJF-pdWcsF9TCojgdyV6TPv5lC4ao5DTc3_UrKXWQ8klVEIlKCQ2iTnsxvkFxqil-ihd6EDKMKuaQZHZ0kUSj5hzHQ5_-tRdb5JHx/s400/IMG_20121204_065833.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He decorated with underpants...</td></tr>
</tbody></table>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi586IUSQ7uSN9mnYlsLOF924Z8PiTIMUNC50UBEaCtYRjoR_XjW4gWQvIOqxUgv8mM0D_3Nbf_5Bc3dpBVg_6wbdhZQBapJ6pky2oepbIVJYw0Z4U5ir7KN9Q_WibeJhUiJnva/s1600/IMG_20121204_065435.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi586IUSQ7uSN9mnYlsLOF924Z8PiTIMUNC50UBEaCtYRjoR_XjW4gWQvIOqxUgv8mM0D_3Nbf_5Bc3dpBVg_6wbdhZQBapJ6pky2oepbIVJYw0Z4U5ir7KN9Q_WibeJhUiJnva/s400/IMG_20121204_065435.jpg" width="400" /></a></div>
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsyIfmtiX-B_zeWTRErIe3ohyNEekb3eMHVH9a8PVyt_T1b2rdwkglx3o_g7B4j0PJysBoBSaFm9zTYdWjxH6txN2FXgw5wDoSkE-friBJfKZBA9NFDCiIdHGSw_Em7DTK0c-A/s1600/IMG_20121206_065942.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgsyIfmtiX-B_zeWTRErIe3ohyNEekb3eMHVH9a8PVyt_T1b2rdwkglx3o_g7B4j0PJysBoBSaFm9zTYdWjxH6txN2FXgw5wDoSkE-friBJfKZBA9NFDCiIdHGSw_Em7DTK0c-A/s400/IMG_20121206_065942.jpg" width="400" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhymSb9K9kt1cHdDNC8oZjnSbC1aEG9QF07Pyt5uc3XPCnsHsewEqIrVUsf9JPTvgQFXez24teft65Z2QLvicFEQDX8w_tS_oC0I8JBAXeDQUllFtCVnXFKzwbtbmTCklCQndm1/s1600/IMG_20121206_070014.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhymSb9K9kt1cHdDNC8oZjnSbC1aEG9QF07Pyt5uc3XPCnsHsewEqIrVUsf9JPTvgQFXez24teft65Z2QLvicFEQDX8w_tS_oC0I8JBAXeDQUllFtCVnXFKzwbtbmTCklCQndm1/s400/IMG_20121206_070014.jpg" width="400" /></a></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4YdqZqaJ3Lw10TgYPOQh6ndU0UqB5655N3LQ8Q55UqNUki1wX990VsPr5zqFFne475Y2HUNG7_iCmGJZ5ma6JmS6RDCNEyaqvfdAHCL0fKrTQPE2KLClu_93KFmc67QtnlvKB/s1600/IMG_20121207_203955.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4YdqZqaJ3Lw10TgYPOQh6ndU0UqB5655N3LQ8Q55UqNUki1wX990VsPr5zqFFne475Y2HUNG7_iCmGJZ5ma6JmS6RDCNEyaqvfdAHCL0fKrTQPE2KLClu_93KFmc67QtnlvKB/s400/IMG_20121207_203955.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He tried ALL of BubTar's video games one night...</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdhyphenhyphen-ASnwLyVA8PjxUTMzSleRpF1FbGRmMHDnAfHEFegf5nViKjCJjtpsljr1AI8MHcS1vHwXe7LvD-31SpZnPXW-yk9wZJ92Mg_UUbMKuAef4QrVzzIgUwmf6lgGH9oBSaCNW/s1600/IMG_20121210_072042.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdhyphenhyphen-ASnwLyVA8PjxUTMzSleRpF1FbGRmMHDnAfHEFegf5nViKjCJjtpsljr1AI8MHcS1vHwXe7LvD-31SpZnPXW-yk9wZJ92Mg_UUbMKuAef4QrVzzIgUwmf6lgGH9oBSaCNW/s400/IMG_20121210_072042.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He wrapped BubTar's sax and KayTar's oxygen tanks...</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitBeNY9ILsQQOKLSC6QFzq7rPORnLwthNbAgiWKUian2vET9CjIkKhk3JHteHxOpGDL3BV-ei7ohZRzt9MUJG8FFQt_7okYMb0m7FKaDlRzhtnf4jmNGzCQcIIkuBSwZi5vZS8/s1600/IMG_20121205_162600.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitBeNY9ILsQQOKLSC6QFzq7rPORnLwthNbAgiWKUian2vET9CjIkKhk3JHteHxOpGDL3BV-ei7ohZRzt9MUJG8FFQt_7okYMb0m7FKaDlRzhtnf4jmNGzCQcIIkuBSwZi5vZS8/s400/IMG_20121205_162600.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He had a tea party with the Lalaloopsies...</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2po35vJQny3PVPrlkDZpVSFVs8_lWL6zxaQ__ZJ1bgX8XJxucwJKlRHdlmYbiSOAiAGQ1RqCjWDIuB9YmaQ4IczP0y4c-pORAtlbJEdZQqvdi6C0L9R83scf4Iwgjfl1Toi1k/s1600/IMG_20121211_070349.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2po35vJQny3PVPrlkDZpVSFVs8_lWL6zxaQ__ZJ1bgX8XJxucwJKlRHdlmYbiSOAiAGQ1RqCjWDIuB9YmaQ4IczP0y4c-pORAtlbJEdZQqvdi6C0L9R83scf4Iwgjfl1Toi1k/s400/IMG_20121211_070349.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He took a bathroom break...and left something behind in the toilet. BubTar said, "I think it is edible!"</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2q1kBdPPNaYm3RoXmAVsVaeWjHWIPZzJYztjdJeBeN_MPi5ZI1RFM4wUyErN6GW5WM1q7LCQgeU72gHPBIu340pFnDlWq99dcCHA5XidZ4Yjzp95Am3rS3UC9j3CyTqJK0Ul5/s1600/IMG_20121212_065330.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2q1kBdPPNaYm3RoXmAVsVaeWjHWIPZzJYztjdJeBeN_MPi5ZI1RFM4wUyErN6GW5WM1q7LCQgeU72gHPBIu340pFnDlWq99dcCHA5XidZ4Yjzp95Am3rS3UC9j3CyTqJK0Ul5/s400/IMG_20121212_065330.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He played Pretty, Pretty Princess with some sock monkeys...</td></tr>
</tbody></table>
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_jS_Vgs2H0MaOz-IW9ugJapfoxEnZIrKrme8pnyH9A2unYLviLefVo4Wx5c60dX0IACv53OBL7UgBw7WGmK2FqGE05z9r3gKg4atz-LQCuBlzHRJuxUGsnwv6yx1rR2xry0HE/s1600/IMG_20121212_065515.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_jS_Vgs2H0MaOz-IW9ugJapfoxEnZIrKrme8pnyH9A2unYLviLefVo4Wx5c60dX0IACv53OBL7UgBw7WGmK2FqGE05z9r3gKg4atz-LQCuBlzHRJuxUGsnwv6yx1rR2xry0HE/s400/IMG_20121212_065515.jpg" width="400" /></a></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEGYoOmNU6hrVih33DhsxaJntCgtoM_66uGzWCOJl-i-NmASqNCwiUaTBwbpdXhhcDa8TXxPZU689gmm7OyKal4iXc7GuqyoqqoVyl5UucKsS1Xx4IrfJfNzJZ7L1TUoSs840Q/s1600/IMG_20121214_080129.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEGYoOmNU6hrVih33DhsxaJntCgtoM_66uGzWCOJl-i-NmASqNCwiUaTBwbpdXhhcDa8TXxPZU689gmm7OyKal4iXc7GuqyoqqoVyl5UucKsS1Xx4IrfJfNzJZ7L1TUoSs840Q/s400/IMG_20121214_080129.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He made cookies...</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhT_EZHdz3uVvOjvPSIGu-CXd79lpUCEDfqhtRRLPKIqsj-pVc5gq9sqFNzSszY1W3wFMQbq-fhI0wErGMebBztrnUE3vupHtBOSoroqr7umhKmlYVWVnVyth4mgwzrwu2pVv-n/s1600/IMG_20121214_080220.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhT_EZHdz3uVvOjvPSIGu-CXd79lpUCEDfqhtRRLPKIqsj-pVc5gq9sqFNzSszY1W3wFMQbq-fhI0wErGMebBztrnUE3vupHtBOSoroqr7umhKmlYVWVnVyth4mgwzrwu2pVv-n/s400/IMG_20121214_080220.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">KayTar did not like the mess...</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwz7XOLwjqd0BIwAw3MrA8ZRWynxArhomg_KcMYRdLuogiEzlaT33Q8QRu5vX6NPQzTfPnXA83dYSLj96ipqicfBZyXFTILs8H8kCMPOpzKrUqrs1Xq1M-9dxbybXc5j942hhz/s1600/IMG_20121216_150220.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwz7XOLwjqd0BIwAw3MrA8ZRWynxArhomg_KcMYRdLuogiEzlaT33Q8QRu5vX6NPQzTfPnXA83dYSLj96ipqicfBZyXFTILs8H8kCMPOpzKrUqrs1Xq1M-9dxbybXc5j942hhz/s400/IMG_20121216_150220.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He had a hot tub party...</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgw0tkr70TsdGmta_e5b9pPzx2Bf5CI27_8nQh4jN_H6iFzSgVkjiTfcylcU5fa7Q8_EhTnNToxWrGafk4j3rS3lyXp-zcX9dYqY0nK5UzGkuD42Ksie_3VIKrH6P-0aAVDooYa/s1600/IMG_20121217_062739.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgw0tkr70TsdGmta_e5b9pPzx2Bf5CI27_8nQh4jN_H6iFzSgVkjiTfcylcU5fa7Q8_EhTnNToxWrGafk4j3rS3lyXp-zcX9dYqY0nK5UzGkuD42Ksie_3VIKrH6P-0aAVDooYa/s400/IMG_20121217_062739.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He made an Elecare Jr. tree and decorated it...</td></tr>
</tbody></table>
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-zisU68iuR5XT2SAwIxeUBLXXfqn632-Z3asC8WqV4KSgmVGsZ34xF5SPp3fZxjD0ikS-pFEQ5Zs-esAwOkne5svQaoPr6nMtbPGzBbPvCX3XU2SKI3TA7tSb2JA3NKK8HTkc/s1600/IMG_20121217_062817.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-zisU68iuR5XT2SAwIxeUBLXXfqn632-Z3asC8WqV4KSgmVGsZ34xF5SPp3fZxjD0ikS-pFEQ5Zs-esAwOkne5svQaoPr6nMtbPGzBbPvCX3XU2SKI3TA7tSb2JA3NKK8HTkc/s400/IMG_20121217_062817.jpg" width="400" /></a></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguErSZwR0V0CCPh6XsHpOv1TLrO1-fpD7lVnxtH1FpCD-RlkuzcXXPBC2Kmy0N4TtrUzAokTP8mkKdPK26nPbuXwqeL4CjOxLZmVIC0qoDGJBCvwn_Pyxs_4xUEb07H4lYV53R/s1600/IMG_20121219_134943.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguErSZwR0V0CCPh6XsHpOv1TLrO1-fpD7lVnxtH1FpCD-RlkuzcXXPBC2Kmy0N4TtrUzAokTP8mkKdPK26nPbuXwqeL4CjOxLZmVIC0qoDGJBCvwn_Pyxs_4xUEb07H4lYV53R/s400/IMG_20121219_134943.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He wrapped the table and strung up lights (and on a different night brough t the kids those trees)</td></tr>
</tbody></table>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjReZOMMsJqOlTIfcyBhg0BuD6vLv_fhqQrWPjI1-lRgyPxnone_aIXo298qzQvWGGz6Ly0g40HWHMPHf0rEwVd11xBoOLHNMfcrhxCysxIad0wxHCfTCuo3JGLBqyoEfBjsXV2/s1600/IMG_20121220_070841.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjReZOMMsJqOlTIfcyBhg0BuD6vLv_fhqQrWPjI1-lRgyPxnone_aIXo298qzQvWGGz6Ly0g40HWHMPHf0rEwVd11xBoOLHNMfcrhxCysxIad0wxHCfTCuo3JGLBqyoEfBjsXV2/s400/IMG_20121220_070841.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He had a Silly String fight with Buzz...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmy0IqiQAdI8XPXLgIQWo1KCcFey4-mInv6hw_NqxaRKqrKBGZe5EQPhdybh0J9UIVVqlUqozYmQ03L_4mUJwQGF3p_ZrsP5tojC1edVIlQ3BS5y_sMemcAVXi2fZIGFFPIxz3/s1600/IMG_20121220_071037.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmy0IqiQAdI8XPXLgIQWo1KCcFey4-mInv6hw_NqxaRKqrKBGZe5EQPhdybh0J9UIVVqlUqozYmQ03L_4mUJwQGF3p_ZrsP5tojC1edVIlQ3BS5y_sMemcAVXi2fZIGFFPIxz3/s400/IMG_20121220_071037.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Buzz lost...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTK7BJArmUSiPpqg0CM_Ypu9ahcJ5PxSmXbXLIGmEo-WZXsPWdcvHyTthrkX12ehT8agU87GBLAnYBvDHA7MTRW5Sgumxzp3xdTjG9paMGwJdXNL3BVMHXcaEEGHa_UITg5-fc/s1600/IMG_20121221_071956.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTK7BJArmUSiPpqg0CM_Ypu9ahcJ5PxSmXbXLIGmEo-WZXsPWdcvHyTthrkX12ehT8agU87GBLAnYBvDHA7MTRW5Sgumxzp3xdTjG9paMGwJdXNL3BVMHXcaEEGHa_UITg5-fc/s400/IMG_20121221_071956.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He read A LOT of books one night...</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdWti_WcUB1Jm9e2NKvEQu9rOaD-q3sKK-HSrh4aB-XaYVkVfca1g-JviiKbFe3QBwC6Ou2sbhVwUOEv3wb-AF-T5KbbMjJxN3EW7quApzvVYYgcSmNcTOMM1a-KizOSalt-E1/s1600/IMG_20121213_063810.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdWti_WcUB1Jm9e2NKvEQu9rOaD-q3sKK-HSrh4aB-XaYVkVfca1g-JviiKbFe3QBwC6Ou2sbhVwUOEv3wb-AF-T5KbbMjJxN3EW7quApzvVYYgcSmNcTOMM1a-KizOSalt-E1/s400/IMG_20121213_063810.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He drove a shoe train around the living room...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCVkpVu942K6FDpt1A8B0Oa-j3DxXHTnyRRc6uXPBCAGfl5LUG7ONlWwLB8zuO82F_KSFH6dDz0qgqu0bF_S8fBwWzznra5Tx3kSh7jxz10fgCpvCsh9vIigDAJAWW3b1GFQP0/s1600/IMG_20121223_082417.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCVkpVu942K6FDpt1A8B0Oa-j3DxXHTnyRRc6uXPBCAGfl5LUG7ONlWwLB8zuO82F_KSFH6dDz0qgqu0bF_S8fBwWzznra5Tx3kSh7jxz10fgCpvCsh9vIigDAJAWW3b1GFQP0/s400/IMG_20121223_082417.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He hid the tree and presents!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsQJdwDj7YIQITXsatWQzOMdYF-yh3ZSE-tAsNjE_VaGQY5nyCpvK5GFyrw4LMMZae9YMcgp5UYuzq2hEDP2C_v55RRz7fT_njrvMu3dyEvG5jN7PFW2iYPlQC6A7uGP694JY8/s1600/IMG_20121223_101429.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsQJdwDj7YIQITXsatWQzOMdYF-yh3ZSE-tAsNjE_VaGQY5nyCpvK5GFyrw4LMMZae9YMcgp5UYuzq2hEDP2C_v55RRz7fT_njrvMu3dyEvG5jN7PFW2iYPlQC6A7uGP694JY8/s400/IMG_20121223_101429.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">But we found them!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTpLeoAW67zPtFQ0DlICO0pexh7cE3llkcERpnak4o4JbU1kModT6n-U7ax6OeLU_9i6JkBTj_89N_rXpYwbkNLFShaw1HoNrLteszzzesLSFZOtxChwN1bY-9iEPoklpOPZuY/s1600/IMG_20121224_080135.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTpLeoAW67zPtFQ0DlICO0pexh7cE3llkcERpnak4o4JbU1kModT6n-U7ax6OeLU_9i6JkBTj_89N_rXpYwbkNLFShaw1HoNrLteszzzesLSFZOtxChwN1bY-9iEPoklpOPZuY/s400/IMG_20121224_080135.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He read the Christmas story to some friends...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiXgJJVhMGU-FI5Yym7HGxXrkRyRvY_MQt-or8Z3fPJjJOeSTUoVN09tuFAKJB_T3kJ8k4v-xENYYveNFjkDeRaWLXM2GtJLbOfHcQ1gd-zMDNVhnWTPX0n4knAReQPRVNIImi/s1600/IMG_20121224_080214.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiXgJJVhMGU-FI5Yym7HGxXrkRyRvY_MQt-or8Z3fPJjJOeSTUoVN09tuFAKJB_T3kJ8k4v-xENYYveNFjkDeRaWLXM2GtJLbOfHcQ1gd-zMDNVhnWTPX0n4knAReQPRVNIImi/s400/IMG_20121224_080214.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">A lot of friends...</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGm5qU-HPNPWE3rBg1cULk8A9j3291NS-dAmKHJMTvrSngWChD8-gbrNPQo0bCbp3SUVdve7S4vuVAqB2ceVO6JRvhpVYLO8tTqvkgp_2_9apZCqrLk5uSOB40DiMWyTFH6hvR/s1600/IMG_20121224_080350.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGm5qU-HPNPWE3rBg1cULk8A9j3291NS-dAmKHJMTvrSngWChD8-gbrNPQo0bCbp3SUVdve7S4vuVAqB2ceVO6JRvhpVYLO8tTqvkgp_2_9apZCqrLk5uSOB40DiMWyTFH6hvR/s400/IMG_20121224_080350.jpg" width="400" /></a></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq9LhrCyFbWzWPZ-qA4mb8P4s4E6Jg-edprMqHkV2OslTYwt5lTHkMAb8kQFuA5M6zXs_LwWk_ISji7QvunKh94WOWBykWbl5ZFqbNsXsGs52a4-63CVWVQ_SDqK4VMLgeUf7Y/s1600/IMG_20121203_065928.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq9LhrCyFbWzWPZ-qA4mb8P4s4E6Jg-edprMqHkV2OslTYwt5lTHkMAb8kQFuA5M6zXs_LwWk_ISji7QvunKh94WOWBykWbl5ZFqbNsXsGs52a4-63CVWVQ_SDqK4VMLgeUf7Y/s400/IMG_20121203_065928.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He crashed the wheelchair! And took a video of it!</td></tr>
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dxDKiWCnfpTZZg61GSzbPSTZAnWx94re5Q0PatZtgekKaBw3WGX981q4Dja9vubQkEUJ8pg44lzyPE' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5rfcCXddN6Q8T9hftLF3sAMOpmE6Z5zeWi7GSLgiHA4-k9K2x2FyUoaaB9KClVFAW2sOAEpc1e98sF3MrqYehAKs1qgXAj3g2iWWH3UxlaUw8iNqskaRQvAlDB2uxT7ju8d1X/s1600/IMG_20121203_070042.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5rfcCXddN6Q8T9hftLF3sAMOpmE6Z5zeWi7GSLgiHA4-k9K2x2FyUoaaB9KClVFAW2sOAEpc1e98sF3MrqYehAKs1qgXAj3g2iWWH3UxlaUw8iNqskaRQvAlDB2uxT7ju8d1X/s400/IMG_20121203_070042.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Then he tried to look innocent!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhR_RibbUowhv2hcC2wYlsvMqhwlvav-uMjssGHjMjH0uy5Hbe4kqH60pcQ2KpGJEgpAGtxibCM9zJDJs8IFFnBLEFCCz9ru18w96hSIpWfnxbitNb7n7El8eAQ3-MYJGZabPx_/s1600/IMG_20121215_092024.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhR_RibbUowhv2hcC2wYlsvMqhwlvav-uMjssGHjMjH0uy5Hbe4kqH60pcQ2KpGJEgpAGtxibCM9zJDJs8IFFnBLEFCCz9ru18w96hSIpWfnxbitNb7n7El8eAQ3-MYJGZabPx_/s400/IMG_20121215_092024.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He played with the scanner and replaced our pictures...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEbV75vTs2FHjxieNQWwr-n0oec8f7HALZsnJ0bqIZFz-0W5gmidVQcy7whtHK4QQcQcO73v2KUReLPeWtToDSVpPyL9MABXWBy3RyVyOzdQgK8IS7_A_nHjA8I8vaardXYxw8/s1600/IMG_20121224_221436.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEbV75vTs2FHjxieNQWwr-n0oec8f7HALZsnJ0bqIZFz-0W5gmidVQcy7whtHK4QQcQcO73v2KUReLPeWtToDSVpPyL9MABXWBy3RyVyOzdQgK8IS7_A_nHjA8I8vaardXYxw8/s400/IMG_20121224_221436.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">And on Christmas Eve, he left us poor Texans some snow!</td></tr>
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He also stayed up late one night and watched TV and ate a BUNCH of snacks, took a nap under the tree in one of KayTar's baby cradles, and maybe something else I am forgetting. He sure was a BUSY elf! We thought he was gone and had left with Santa, but I guess they stopped back by on their way home to drop off one last surprise! Twinkle brought KayTar's new American Girl doll a sock monkey hat, brought BubTar a Gamestop gift card to get a game for his new XBOX, and brought them both some fun crazy straws and an indoor snowball fight...and he brought us a bottle of wine, perhaps to apologize for all of the messes he made! Oh, what a month it has been. I think I will need a whole year to recover!</div>
Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com6tag:blogger.com,1999:blog-33281653.post-37631344191410390022012-12-27T14:26:00.000-06:002013-01-03T14:26:55.065-06:00Christmas 2012!<div class="separator" style="clear: both; text-align: left;">
In spite of KayTar being so sick, we DID have a great Christmas. Sure, we missed out on things like going to a candlelight service on Christmas Eve and having dinner with my in-laws (at least, KayTar and I did, the boys were able to go)...but KayTar stayed out of the hospital and at home, so that was enough for me! We had a VERY low key Christmas Eve, basically resting while KayTar was on the feeding pump 24/7 (mostly clears and a small amount of formula periodically). Twinkle left the kids' Christmas PJs out for them in the morning along with a new Christmas movie...ELF! Of course! Usually the elves drop the PJs and the movie off on the doorstep, but Twinkle said (in an email) that since he was already "stationed here", he got to be in charge of it this year. </div>
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My parents came over in the evening, while the boys were at dinner, for their normal Christmas Eve tradition of sleeping over. Once the boys got home and the kiddos put on their PJs, we let them exchange gifts with each other. BubTar got KayTar the Marcel the Shell book. She was SO excited. She is crazy about Marcel the Shell and can even talk like him. It was a perfect gift! KayTar got BubTar a Domo dressed up in a sock monkey costume, which BubTar was thrilled with, too. She REALLY wanted to get him that toaster that toasts an image of Domo on your bread, but it was over her budget. They were both very happy!</div>
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That night, while we slept, Twinkle made it SNOW while Santa filled stockings and put out presents. Santa brought KayTar the Sorting Hat and Elder Wand and he brought BubTar the PotatOS and long-fall socks from Portal 2. They were both exceptionally happy for kids that did not get what they asked for from Santa. (KayTar had been asking for a real motorcycle she could ride and suddenly changed her mind to a DSi on Christmas Eve, and BubTar had been asking for a real teacup pig and a PS3. Oy.)</div>
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Usually presents at our house are a free-for-all. We don't take turns opening or watch everyone (partially because I HATE being watched when I open gifts...my reactions are lackluster even when I am thrilled!), but this year we had given both kids something extra special that we wanted them to open one at a time, first. KayTar went first and was ecstatic about her American Girl doll! She hugged it so quick she was a blur!<br />
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Then it was BubTar's turn to open...his XBOX 360! A little backstory, we used to have an XBOX 360, but it broke three times on us and Josh swore we would never get another because of the issues they are prone to. BubTar has been asking for one for years and Josh always says, "I am not buying one of those pieces of crap again..." So this year BubTar gave up and started asking for a PS3 and we bought one. In the photo below, he was saying, "Oh, so you bought me one of those things you call a 'piece of crap'?!" He was THRILLED though and has been playing it regularly.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjluwanprKbFrXh2emdZDLWhy4gAvRCotDC0GaXcECZu_OYht5u3GZAIi-k8An4C7u650C0TI_zoP_fD4HsJ9szbpf6H9NzTrnFKQ0xbvsbfsxksCt2WX3pT89UYRY3peIQ31ms/s1600/12+25+12_7316_filtered_edited-1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjluwanprKbFrXh2emdZDLWhy4gAvRCotDC0GaXcECZu_OYht5u3GZAIi-k8An4C7u650C0TI_zoP_fD4HsJ9szbpf6H9NzTrnFKQ0xbvsbfsxksCt2WX3pT89UYRY3peIQ31ms/s400/12+25+12_7316_filtered_edited-1.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I love this one.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-9oEenOICjomy-rPBdbs4ay_fil4jEIpSAIejqX1h2G7lT0TRY7lL5T-7FZDxGApEhCH_atCazyInti7qVTYz7Cl4_wPrTAiSSogQMvTWHzayFAH4xkWRQH3dA16g7OvRrGMq/s1600/12+26+12_7349_filtered_edited-1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-9oEenOICjomy-rPBdbs4ay_fil4jEIpSAIejqX1h2G7lT0TRY7lL5T-7FZDxGApEhCH_atCazyInti7qVTYz7Cl4_wPrTAiSSogQMvTWHzayFAH4xkWRQH3dA16g7OvRrGMq/s640/12+26+12_7349_filtered_edited-1.jpg" width="426" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Matching hats and wheelchairs! :)</td></tr>
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Those were the big highlights for the kids, even though there were many other wonderful gifts to be opened for all of us! Once the big stuff was over, I kind of abandoned my camera, but here are some Instagrams I did manage to snap.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjf7tpyvDwY72lS4sttYg4U32xhhWWfhBJuazXJjIaT4Gd3FbWW3ddADu4l61DwC5cwr4w3b2o17LH182iOyr7qB7oGeiXTFJ2MKB6V6alHknGNu_5sYkE-HZpjOmbJRf9ete-q/s1600/IMG_20121225_054324.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjf7tpyvDwY72lS4sttYg4U32xhhWWfhBJuazXJjIaT4Gd3FbWW3ddADu4l61DwC5cwr4w3b2o17LH182iOyr7qB7oGeiXTFJ2MKB6V6alHknGNu_5sYkE-HZpjOmbJRf9ete-q/s400/IMG_20121225_054324.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My mom and the canvas I got her of her and the grandkids.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyVWBnsr6d57qnJ3zFZs-bfuNjggvXS5mtl0ElZuRDwKjFRMA7ApYrtRXq4A6GGDtng_vZ7p5v30McLZdYyppYfkbH9hA9glJmPt0DnL9K5O4B0cuvO0WsiZVJhVGcnKigWwF7/s1600/IMG_20121225_054428.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyVWBnsr6d57qnJ3zFZs-bfuNjggvXS5mtl0ElZuRDwKjFRMA7ApYrtRXq4A6GGDtng_vZ7p5v30McLZdYyppYfkbH9hA9glJmPt0DnL9K5O4B0cuvO0WsiZVJhVGcnKigWwF7/s400/IMG_20121225_054428.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My dad and the canvas of him and KayTar fishing together.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjGhobBgCeevGLiL6k_t1Yl5wRwV0EDH1JrtNZfbpxO2eRfJIGHTiyeGcsZ98qDGSPRls6zuV_OfxyXA7OlSLNC-0fd47P0Q_7_fOphbs91rsUIb3qTkKX60ApUm0KQ05W0gNv/s1600/IMG_20121225_054751.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjGhobBgCeevGLiL6k_t1Yl5wRwV0EDH1JrtNZfbpxO2eRfJIGHTiyeGcsZ98qDGSPRls6zuV_OfxyXA7OlSLNC-0fd47P0Q_7_fOphbs91rsUIb3qTkKX60ApUm0KQ05W0gNv/s400/IMG_20121225_054751.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Josh and his personalized pint glasses.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD0CUSHihMjh1aa4l7-Z1SAxiwc5vsmlAWnMbyAR8XnsDKLfhFmkLGmFw4bEbDecxZU-VTiuK4HIeYbTLTX3RXCLyqfA-UoDWBq-GdgF7JDTVxbnsLuKGRoYPLzvyZP1PgLBVI/s1600/IMG_20121225_064548.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD0CUSHihMjh1aa4l7-Z1SAxiwc5vsmlAWnMbyAR8XnsDKLfhFmkLGmFw4bEbDecxZU-VTiuK4HIeYbTLTX3RXCLyqfA-UoDWBq-GdgF7JDTVxbnsLuKGRoYPLzvyZP1PgLBVI/s400/IMG_20121225_064548.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Alcohol was kind of a theme this year, don't know what that says. ;)</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj51NVe5_tCU8Caq3FMrg-y4DquXSmioZ-2MAOYudOc105Gm-S5SZxx-VJVNcRCaJw7M1y4PKvBPZZBGOku4VYDEyQFkdUCpcr4zjNEY1RjIwzm2C9pKe417yF3WBr5dWgqSyoZ/s1600/IMG_20121226_122134.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj51NVe5_tCU8Caq3FMrg-y4DquXSmioZ-2MAOYudOc105Gm-S5SZxx-VJVNcRCaJw7M1y4PKvBPZZBGOku4VYDEyQFkdUCpcr4zjNEY1RjIwzm2C9pKe417yF3WBr5dWgqSyoZ/s400/IMG_20121226_122134.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My awesome new shirt!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1co8bQW9Shv7aDxAFn2eayK8ZdfGTQHaYaYXM8QaeA2TLsp5iMs6UQme5QX0S_arAcwq0rOcT0pdLa12CtFLBDULyYy9CFHElU6dcvximM3XeVBtmfjPwMDu1AkeSzmQCd9ac/s1600/IMG_20121229_195124.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1co8bQW9Shv7aDxAFn2eayK8ZdfGTQHaYaYXM8QaeA2TLsp5iMs6UQme5QX0S_arAcwq0rOcT0pdLa12CtFLBDULyYy9CFHElU6dcvximM3XeVBtmfjPwMDu1AkeSzmQCd9ac/s400/IMG_20121229_195124.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">How BubTar has looked for days.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7WVma74chDZir0frgm-o7jGhngsCDDg0upypN4lWm6F3q38uCSAVwiT3kVYoPeUZ7TasxeQiJIT3PvtnkqAjiLqa-OiPjBTk0LDfWBZirDSNsFyo0GmMXqYoAMtnZVJ58Lrtq/s1600/IMG_20121228_143402.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7WVma74chDZir0frgm-o7jGhngsCDDg0upypN4lWm6F3q38uCSAVwiT3kVYoPeUZ7TasxeQiJIT3PvtnkqAjiLqa-OiPjBTk0LDfWBZirDSNsFyo0GmMXqYoAMtnZVJ58Lrtq/s400/IMG_20121228_143402.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">KayTar and the doll curriculum she bought with her BN gift card.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjI-sc_WO_8KssiP2RjLWa3pFnYbTN6mcCB50DgDhiVyF_l_X5o8Z98iqjtxNbbIvyy6K-sFK1XYC3u9O7NChEbX030Vo0Qp_19jAbgB3C1Y4SR7hpOe4FYQFE-MTAQygb9NuYR/s1600/IMG_20121225_103916.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjI-sc_WO_8KssiP2RjLWa3pFnYbTN6mcCB50DgDhiVyF_l_X5o8Z98iqjtxNbbIvyy6K-sFK1XYC3u9O7NChEbX030Vo0Qp_19jAbgB3C1Y4SR7hpOe4FYQFE-MTAQygb9NuYR/s400/IMG_20121225_103916.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sorting Hat, Elder Wand, Time Turner, and Gryffindor scarf!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihdCyhxGrPxwCXX44btn6dq9wk8OyAAAV32OaCXD3p13FWwVomMNlbYbCYnFTCY0hvcL2G6tOm7QphUo7MTQItbOPDGb5Hwk3HIHIlMWJBgbvZddCiuaXoIkpiGnKg3iAdZCjQ/s1600/IMG_20121225_165339.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihdCyhxGrPxwCXX44btn6dq9wk8OyAAAV32OaCXD3p13FWwVomMNlbYbCYnFTCY0hvcL2G6tOm7QphUo7MTQItbOPDGb5Hwk3HIHIlMWJBgbvZddCiuaXoIkpiGnKg3iAdZCjQ/s400/IMG_20121225_165339.jpg" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Soooo cute! :)</td></tr>
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KayTar said, "It is the best day of my life!" and "Only 365 more days until next Christmas!" I hope that each of you had an equally blessed Christmas with those you love! :)Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com3tag:blogger.com,1999:blog-33281653.post-25659095283974173312012-12-26T13:09:00.000-06:002012-12-29T13:10:06.714-06:00Merry Christmas from The 'Tars!<div class="separator" style="clear: both; text-align: center;">
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<a href="http://3.bp.blogspot.com/-OCwCILvnTec/UN8-hEhusuI/AAAAAAAAIQk/gV86YzidCjc/s1600/ChristmasCard+2012_edited-2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="http://3.bp.blogspot.com/-OCwCILvnTec/UN8-hEhusuI/AAAAAAAAIQk/gV86YzidCjc/s400/ChristmasCard+2012_edited-2.jpg" width="283" /></a></div>
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<i>We had a great Christmas and KayTar was able to stay at home. It was iffy for a bit, but we were able to manage her at home, thankfully!</i></div>
Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com2tag:blogger.com,1999:blog-33281653.post-12026586182677198872012-12-24T13:52:00.001-06:002012-12-24T13:52:48.750-06:00Gastroparesis, ketosis, and an abscess...oh my!It has been a rough few days! We are currently fighting against a return trip (we were already in the ER on Saturday) to the hospital because KayTar still isn't doing well.<br />
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It all started Thursday afternoon when KayTar made me stop her feed and she promptly vomited it ALL up while I was rushing to get her venting equipment. We did clears that evening and slow formula on Friday morning. We managed to get her to school for part of the day and part of her party before going to get her already scheduled flu shot (maybe we should have skipped this!). Friday she got about 16 ounces of Elecare plus 8 ounces of Powerade over night for a total of 24 ounces, rather than her normal 32 ounces in a day. Normally a deficit like that isn't a big deal, but when we checked her urine on Saturday, she was already spilling a large amount of ketones. Not good! It has been years since she has decompensated like that and I was quite worried we would end up in the hospital on Christmas if we didn't get her buffed up, so I called the on call neuro and he agreed we should bring her in to get fluids. <br />
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This was our first time in the ER with our protocol letter and we were taken back quickly! The rest of it was sloooow once we were back and hooked up, though. KayTar was not thrilled with any of it, except for the Angry Birds toy she got for a reward for the IV and the teddy bear we got at registration. I was a teeny bit frustrated that they forgot to order half of her urgent labs until hours after she had been on D10 and fluids, so they were all normal by then...who knows how they were when we got there! We were discharged around midnight and headed home. It was a long afternoon/night. (And I was forced to watch Santa Paws. Good Lord.)<br />
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Sunday morning, I noticed that KayTar was wincing when I gave her meds and plugged in her feed, which is totally weird. I consulted the collective wisdom of my tubie parent friends and Heather suggested that it may be an abscess and to feel around for a lump or ridge. Bingo! There it was...right where it hurt worst. I took a photo at the pediatrician's request and she decided to treat her with oral and topical antibiotics. We started them midday yesterday. I don't know if the brewing abscess caused the earlier vomiting, feed intolerance, and decompensation, but we are hoping that treating it will help. Unfortunately, last night she was spilling ketones again!! And when I tried to vent her, I pulled out a lot of old formula. It is like nothing is moving through. We can run feeds for a time and it is fine until it hits maximum capacity and then we can't get anything more in. Ugh! We hooked her up to her pump last night to try and get 16 ounces of Powerade in over 12 hours, but she unplugged herself in the night (and now there is red Powerade everywhere!!) and I don't know how much she really got. Grrr.<br />
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This morning her glucose was low-ish (62) and she was spilling ketones still. We are trying to alternate 4 ounces of Powerade (dye-free!! I learned my lesson!) and 2 ounces of formula at a rate of 60ml/hr (2 ounces an hour for those of you that don't speak this language). At last check, she was still spilling ketones, but her glucose was at 80. She has diarrhea now, though. She is also getting congested. I am at a loss as to what exactly is going on and we are struggling to avoid a bounce-back to the ER. I don't think they will let her go unless she starts tolerating normal feeds if we have to go back. This is the first time we've dealt with both a gastroparesis flare AND metabolic problems and they are both working hard against us. So if you are the praying type, please pray that we can get this under control and avoid another hospital trip. KayTar would be heartbroken to miss Christmas at home! <br />
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com5tag:blogger.com,1999:blog-33281653.post-2770080657539336402012-12-14T08:49:00.000-06:002012-12-14T08:51:55.329-06:00If I should die...A couple weeks back, I was driving across town to purchase a special Christmas present for KayTar. Between school being downtown and KayTar's docs being in the medical center, I'm on the freeways nearly every day of the week, usually without incident. But on this day, that wasn't the case. I was in the process of changing lanes when the car in front of me (in the lane I was leaving) slammed on his brakes, so I had to hit mine so I didn't clip him on my way out. I'm sure I've done this loads of times without any issue, but for some reason THIS time, my car started fishtailing across THREE lanes of traffic on I-45. I was definitely not in control of the car and did not know how to fix it. I remember thinking, "When you are hydroplaning or skidding, you are supposed to turn into it..." but I couldn't remember what to do about fishtailing! But then the car was okay again and somehow, I never got hit. It could have definitely ended badly with the way my car was careening around. My first thought after I had control of the car again was, "OMG, there are so many things about KayTar's care that exist ONLY in my brain!" If something had happened to me, poor Josh would have been lost. He is very involved in her daily care, don't get me wrong...but I do all of the remembering. I know her schedule and when she needs feeds and meds and when her doctor appointments are and who her doctors are and who writes what prescriptions and what home health companies handle what and where all her records are...and and and!<br />
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As soon as I got home, I got to work on compiling some pertinent information for Josh. A lot of it was already fairly accessible, as I keep and online copy of the start of her medical binder on Google Drive and a physical copy by my bed, but it wouldn't have helped him any since I've never mentioned it to him or shown him where I keep it. The medical binder already had the following info (and the physical copy also has her latest notes from clinic, sleep studies, audiograms, ect):<br />
<blockquote class="tr_bq">
<span style="font-size: x-small;">-List of physicians/therapist/insurance case worker and all contact info<br />-Copy of her insurance card and SS number<br />-List of all meds, what she takes them for, when she takes them, and if they are PRN or daily, as well as her formula and oxygen information<br />-Equipment and supplies list (and I added what HHC handles what equipment and when to contact them, as well as how to find her glasses script info online)<br />- An updated Visual Guide to KayTar</span></blockquote>
In addition to this, I wrote up a walk-through of an "ideal" day in KayTar's life, a non-sick, run-of-the-mill sort of school day:<br />
<blockquote class="tr_bq">
<span style="font-family: inherit;"><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>5:00am</b></span><span style="font-weight: bold; vertical-align: baseline; white-space: pre-wrap;"> </span><span style="vertical-align: baseline; white-space: pre-wrap;">Nexium<b><br /></b></span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>6:15am</b></span><span style="font-weight: bold; vertical-align: baseline; white-space: pre-wrap;"> </span><span style="vertical-align: baseline; white-space: pre-wrap;">Give 7 ml Augmentin and start feed ((dose) 240 ml @ (rate) 480ml/hr) of 8 ounces of Elecare 3 tsp Miralax, and 1 tbsp cornstarch</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>6:45am</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"> Feed over. Get dressed. Turn off O2. Brush hair and teeth. Pull hair into ponytail. Give 2 puffs of Advair. Socks/shoes on. Prep school feed (8 ounces Elecare, 1 tsp of cornstarch and water). Make sure glucometer bag is packed and is in the front pocket of feeding backpack. Pack lunch. Write note for her jacket pocket.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>7:20am</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"> Leave for school. Bring backpack, lunchbox, jacket, pulse ox, and feeding backpack. If it is Monday, bring O2 tank and supplies (check with Mrs. H about the Augmentin that stays in the clinic to see if/when she needs more.). Drop pulse ox, feeding backpack, and oxygen in clinic.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>11:00am</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"><b> </b>She gets her glucose check and tube feeding at school.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>3:05pm</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"> Dismissal. Pick up pulse ox from clinic either before or after dismissal time. On Friday, bring home O2 tank and supplies.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>3:30pm</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"> Give 7ml of Augmentin and start another tube feed. Do homework. She does her handwriting work on the paper that I have stored on my computer. [My Documents->My Pictures->September 2011->Hi-Write Paper] Most things she can do on her own, but she often needs help remembering the steps for ABC order. We do it this way (if you don’t understand from reading it, just read it to her and she’ll show you what it means): </span><span style="font-style: italic; vertical-align: baseline; white-space: pre-wrap;">Write the alphabet on the paper. Go down the list and circle the letters of the alphabet that the words start with. If there are multiple words with the same first letter, then she writes 2, 3, 4, ect. near the circled letter. Then she goes down the alphabet and stops at every circled letter, finds that word, gives it the proper number. After all the words are numbered, then she puts them in order on her blank paper.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>6pm</b> </span><span style="vertical-align: baseline; white-space: pre-wrap;">Shower or Bath. Pajama time. Braid hair. Teeth brushing. 2 puffs of Advair.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>7pm</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"> Give 10ml of Benadryl and dose of Nexium. Reading time.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>7:30pm </b></span><span style="vertical-align: baseline; white-space: pre-wrap;">Bedtime and cuddles. Start oxygen at ¾ liter.</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>8:30pm</b> </span><span style="vertical-align: baseline; white-space: pre-wrap;">Mix Elecare; 27.5 ounces of water + 22 scoops of Elecare. Lay out clothes for next day (both kids).</span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b><br>9pm</b></span><span style="vertical-align: baseline; white-space: pre-wrap;"> 7ml of Augmentin and tube feed.<br></span></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><br /></span></span><span id="internal-source-marker_0.8626790822017938"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">This is an ideal day...we both know it doesn’t always go like this, though! :) On the weekend, it all gets shifted around. Feeds are typically 4 hours apart, so set an alarm until it becomes second nature. Be sure to check her oxygen saturations periodically, if she is BELOW 96, start her on ¾ liter of oxygen and increase until sats are appropriate.</span></span></span></span></blockquote>
I also wrote a "troubleshooting" guide for if she is sick, kind of the thought-processes I go through when deciding how to treat her when sick. It won't cover everything, but these are the most frequent things we encounter:<br />
<blockquote class="tr_bq">
<span style="font-family: inherit;"><span id="internal-source-marker_0.4687397067900747"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>Ketones/Hypoglycemia:</b><b style="font-weight: normal;"><br /></b></span></span></span><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*When KayTar is sick, periodically check her urine for ketones. If positive, check every urine until they resolve and occasionally thereafter.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*Check glucose in the morning when sick and when she is symptomatic during the day (lethargic, nauseated, dizzy/wobbly, “legs don’t work”). If lower than 70, give 2 ounces Gatorade. Recheck in 15 minutes. Give 2 more ounces of Gatorade. Continue until glucose is appropriate. If below 50, go to ER at Children’s Memorial Hermann and give them her protocol letter.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><br /></span></b><span id="internal-source-marker_0.4687397067900747"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>Coughing/Congestion:</b><b style="font-weight: normal;"><br /></b></span></span></span><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*First line of treatment is Benadryl (10 ml every 4 hours) and Albuterol (2-4 puffs if coughing is not bad, a nebulizer treatment if it is bad, every 4 hours.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*If the cough is not responding well to that, you can give her 10ml of Triaminic Long Acting Cough (dye-free). The other OTC cough meds make her manic, beware! If you ever have to use a different brand, do not give it after 2pm!</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*If coughing does not resolve after a viral illness or if she gets better (no more fever) and then spikes a new fever 1-3 days later, take her to see Dr. H...she either needs oral steroids or has pneumonia. This is her pattern.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*When sick she needs increased oxygen support, make sure to increase her oxygen dose so her sats are in range and keep her on 24 hours until she is doing better.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><br /></span></b><span id="internal-source-marker_0.4687397067900747"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>Gut Stuff:</b><b style="font-weight: normal;"><br /></b></span></span></span><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*Give 5ml of Ondansetron every 6-8 hours for vomiting.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*If she feels too full after a feed, draw some out with venting/decompession tube.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*If she is not tolerating formula feeds due to illness, slow the rate down (try 120ml/hr). If she still is not tolerating it, try slow drip Gatorade instead (a rate of 60ml/hr and a dose of 240ml will run in 8 ounces of Gatorade in 4 hours. Try to get 2 of these in during the day. Then run the pump overnight at 30ml/hr with a dose of 240 ml and she will get 8 ounces over 8 hours to keep her glucose up. Try formula at this rate the next day. When running formula over long periods of time, hang an ice pack with it. Continue to work the rates up from there until she is back to (or close to) normal, which is rate of 480ml/hr with a dose of 240ml.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><br /></span></b><span id="internal-source-marker_0.4687397067900747"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;"><b>Fever:</b><b style="font-weight: normal;"><br /></b></span></span></span><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*I do not usually give meds for fever unless it is at/above 102 or she is bothered by it.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*First line of treatment is 10 ml Motrin every 6 hours. </span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*If Motrin does not break the fever or if it spikes back up prior to the 6 hour mark, you can give 10 ml of acetaminophen every 4 hours. Write down what time you give which med, it gets confusing in the middle of the night. If you know she needs both meds to keep the fever down, try to get into a schedule of alternating them every 3 hours.</span></span></b><b id="internal-source-marker_0.4687397067900747" style="font-weight: normal;"><span style="font-size: x-small;"><br /></span></b><b id="internal-source-marker_0.4687397067900747"><span style="font-size: x-small;"><span style="vertical-align: baseline; white-space: pre-wrap;">*If she is feverish and ketotic/hypoglycemic and not tolerating feeds...or if she stops urinating or isn’t cognitively herself...take her to the ER at Children’s Memorial so they can manage her.</span></span></b></span></blockquote>
I put all of it on Google Drive and shared it with Josh. I also showed him how to braid KayTar's hair...you know, the important stuff. ;) It isn't everything and I don't think I can EVER cover all of the bases, but I feel like I got enough of the important stuff down in writing to make it considerably easier for everyone if something were to happen to me. I probably should have done it ages ago, in all honestly, but thinking about and preparing for your own death just feels sort of grim. Realizing how quickly and unexpectedly something terrible could happen was the little push I needed to finally take care of this!Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com6tag:blogger.com,1999:blog-33281653.post-11292783091811317132012-12-12T08:00:00.000-06:002012-12-12T08:00:11.811-06:00GI and Eyes!I'm so terrible at this blogging thing these days. I remember when I used to write almost daily, just because...now even when I have something to say, it takes me forever to find the time to sit down and do it! Of course, I used to have a lot of readers so I felt more of an outside compulsion to keep up. Now it is mostly for me and it turns out that ME is a little lazy at times! ;) Time to play catch-up once again!<br />
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On October 18th, KayTar had her GI check-up. She was 49 inches tall and 50 pounds...if I remember correctly. I do know that she is getting taller SO quickly these days. The doctor was very pleased with her growth and the continued success of the Augmentin for her motility and said we can just keep things as-is until her next check-up...then we might consider upping her daily calories. The Augmentin is working really well on a daily basis and has perhaps made the biggest difference in her stooling habits (keeps things loose and we have soooo many fewer accidents now)...but it is not enough when she gets sick or is recovering. It took us nearly an entire month to work back to normal feed rates after her crash at Mito Camp. But yay! She's back to normal feeds now! She's also fighting with a new bug, so we'll see how long it lasts. I think we may eventually need to move on to something else to help her motility, but I'm at least satisfied with the way it has helped her intestinal motility, even if her tummy still gets very sluggish when sick.<br />
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She had her ophthalmology check-up on October 30th. I was SO impressed by her in that appointment. For all of these years, when he would ask if she was having any trouble, I had to give my best guess based on my observations, but this time when he asked, she replied, "Well, the numbers on the calendar at school just look like blurry dots from my desk." It was such a little moment, but she seemed so grown up in it! Then they told her they had to dilate her eyes and she lost her mind and had to be restrained while she screamed...so that tempered it a little. ;) She actually said, "Don't do this to me, it is worse than the Cruciatus Curse!" Oh, drama and wizardry! The doctor said he myopia is rapidly progressing and her prescription went from a -3.25 R and -2.50 L to a -4.25 R and -3.75 L...no wonder she couldn't see the numbers! He also recommended bifocals. We got her new glasses in next week and I think they are gigantic and resemble space goggles even though I ordered the smallest bifocal frames, but she loves them and is so excited to be able to SEE clearly!<br />
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com7tag:blogger.com,1999:blog-33281653.post-5410632728202374712012-12-10T19:26:00.000-06:002012-12-10T19:26:18.660-06:00We flew to the North Pole!This past Saturday, KayTar and I were invited to do something REALLY cool! We got to participate in United Airlines Fantasy Flight to the North Pole! The Fantasy Flight is mostly for muscular dystrophy kids, but since mito falls under that larger umbrella, our mito clinic had a handful of slots for their patients and we were chosen to go. The boys were busy with scout stuff that day and the invitation was for one patient and two accompanying adults, so I invited our friend/KayTar's school nurse to join us. It was wonderful!<br />
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I didn't tell KayTar in advance for two reasons; first, I didn't want her to get sick and us have to cancel and make her the saddest kid on the planet, and second, I didn't think she could make it through the rest of the week of school and concentrate AT ALL if she knew we were going to the North Pole! Friday night, I told her that we were doing something the next day with Mrs. H, but I wouldn't tell her what. She tried guessing and started with things like the movies or the museum, but I told her she wasn't guessing big enough...so she guessed London, the Eiffel Tower, and THE NORTH POLE! I was sure the jig was up at that point, because I didn't deny it, I just said, "I can't tell you!" and she moved on.<br />
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On the drive in, she made more guesses and asked us to tell her, but we didn't. Though BOTH of us made oopsies when talking to each other...she said something about "airpo--" before catching herself and I said something about "fly--" before stopping myself. KayTar just kept up her guessing the backseat, none the wiser. As we got closer, we told her to look for clues as there were big airplanes flying overhead and signs about the airport, but she didn't notice any of that. She started guessing, "The Parking Spot??" "$3.99 breakfast?" "Ramada Inn?" "Park N' Fly?" When she got to that one, I said, "No, but there is a clue on that sign!" She still didn't get it. Even when we passed the big airport sign, it didn't quite click. She said, "What are we going to do at the airport?" Hmm, what do people usually do at the airport, kiddo?! It was all very innocent and entertaining.<br />
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When we parked, we ran into our friends the P's, and her boys had been before and were just dying to tell KayTar where we were headed and so I gave them permission. She was STOKED! When we got inside, they routed us over to get our tickets (which said North Pole as the destination) and KayTar got a t-shirt and Santa hat. Our tickets were not all together, unfortunately, so I asked if they could fix it and they did it right away so the three of us could sit together on the flight. After getting our tickets and going through security (easiest security check in a looong time!), we rode on a tram (while KayTar princess waved to people from the front seat) over to a waiting area where they had snacks and drinks for everyone. The kids played while we waited and some of the airport security dogs came to visit. There was face painting, too, and KayTar got a hot pink mustache. Soon enough it was time to go, so we headed to our gate...which really said North Pole!<br />
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<tr><td class="tr-caption" style="text-align: center;">I love this picture of the boys whispering North Pole secrets to K!</td></tr>
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As we boarded, they gave the kids a little bag with snacks in it and once we were on they were each able to meet the pilot and take a turn in the cockpit! The flight attendants were all dressed up and sang carols and were so friendly with the kiddos. On the way to the cockpit, KayTar sweet-talked a male flight attendant out of his blinky light necklace with her go-to phrase, "I wish I could have one of those..." It is unbelievable how often that works for her! When it was time to take off, KayTar clapped and woohoo-ed and flapped her arms like a bird. She LOVED it! (We basically flew in a circle around the city for an hour before landing back at the airport/North Pole.)<br />
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<tr><td class="tr-caption" style="text-align: center;">With our awesome Mito Camp director!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Admiring the necklace she just acquired...</td></tr>
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When we landed and deplaned, all of the volunteers were lined up at the gate and they cheered for all of us. KayTar ate it up, of course. She would be thrilled if someone just followed her around and clapped for her all day long! She was smart enough to know where we were, but it didn't matter...it was still super exciting. She got a snowcone, plain, about which one of her friends said indignantly, "You got ICE flavored ICE?" Then she decorated a cookie before we went to see Santa. The picture they took was very cute and they printed it and put it in an adorable frame for us to take home. She also got to pick out a couple of toys, a little castle and a Barbie. After Santa, she made an ornament, we had some NFL players sign a football for her, then we got pizza and another plain snowcone. She had a lot of fun all day hanging out with her buddies the P's! On our way out, they gave KayTar a 16 GB iPod Nano! She was amazed! They gave her a yellow one, which she was totally cool with, but we ran into the P's again on the way out and one of her boys had gotten a pink...so a trade was arranged and everyone was even happier, if that is possible!<br />
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It was a really, really fantastic day...one that I know we will always remember. There was so much thought and effort and money poured into making this a really marvelous day for these kiddos. Thanks, United Airlines and all of the awesome volunteers that helped make it such a memorable day. KayTar can't wait to go back next year (hopefully)!<br />
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com6tag:blogger.com,1999:blog-33281653.post-66948286817101725152012-11-13T18:54:00.000-06:002012-11-13T22:09:33.149-06:00Almost Diagnosed!We had an appointment with Dr. K (<i>KayTar's mito doc</i>) last Tuesday and got some kind of big news. KayTar is now officially the closest she has ever been to being diagnosed! Dr. K said that her muscle biopsy from four years ago is 100% definitive for a metabolic myopathy and since we've ruled out basically all other types of metabolic myopathies and the report from her recent visit to the metabolics/genetics says that they, too, think that it is mitochondrial disease...that is likely what we are dealing with. She wrote orders for her protocol letter and a prescription to get her started on CoQ10 to help with energy and ability to fight through infections a little more successfully. She said that she definitely looks and functions like a mito kid, we just need to get confirmatory testing back before she puts the official, always and forever, label on her. So, it is still a bit of a waiting game, but now we are waiting with some supports in place at least! If the Transgenomic testing comes back with a known disease-causing mutation, then that'll will be that. If not, we'll move on to exome sequencing. If we don't get an answer there, we may redo her muscle biopsy...but that is quite a way down the road. For now, I'm just happy that she is being treated as though she has it and that her team is in agreement that it is the right direction to go.<br />
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We actually received her protocol letter last Thursday (<i>they are QUICK over there!</i>)...and wow. It certainly drives home the seriousness of the condition. In case you don't know, a protocol letter is a letter we take with us in emergent situations so time is not lost when she is in need of medical supports, such as IV fluids. It is a fast pass through the ER waiting room and into a treatment room, and I can see why! It says things like, "any person with a mitochondrial disorder can go from walking and talking to intubated and in the ICU in a very brief time period" and "There is no specific treatment for mitochondrial disease and the disease is often, but not always, fatal." and "Any change in KayTar's condition should be taken seriously as she can quickly become<b> fatally ill</b>." Nothing quite like seeing your worst fear typed up in official black and white on a medical document as a likely outcome! Frightening realities aside, we are thankful to have the letter in hand. In fact, last Saturday when she crashed at camp, we should have taken her to the hospital...but at that point, I didn't know which hospital to take her to or what to even tell them. At least now, we know where to go and what to tell people so that she will get the care she needs as quickly as possible. It was a rough recovery and she missed a week of school, but she went back yesterday and is doing pretty well considering!</div>
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Mostly for my own future reference, I want to discuss what exactly happened at camp and why we were so concerned. KayTar was sick and struggling, she kept spiking a fever, she wasn't tolerating her normal feeds (<i>puked ALL over herself and the camp clinic at one point</i>)...but she pressed on and pushed herself to have fun at camp. We usually discourage this because we know how it will end...but it was <i>camp</i> and she never gets these opportunities, so we let it slide. She had fun all day and then at dinner, she passed out mid-sentence. We call it "emergency shutdown mode", but she basically powers down and aside from those automatic brain functions (<i>breathing, pulse, ect.</i>), she is out. We moved her from the cafeteria to her cabin, from her wheelchair to her bed, changed her clothes, discovered she had lost control of her bladder (<i>bad sign</i>), and put her to bed...without so much as a stir from her. Then when we decided it was time to go, we packed her up, picked her up, rode to the clinic in a golf cart, put her on a sofa in the clinic, moved her to the car...all without any response. We drove home for 2 hours...no response. My anxiety was building this entire time and I just knew we would need to drop the boys at home and go straight to the hospital...but a minute away from our house, 5 hours after she powered down, she opened her eyes and said, "Are we going home?" WHEW! We were still worried, but not unconscious-child worried, which is a different class of worry altogether. Like I said, it was a rough recovery...she had bladder/bowel control issues for a few days, was on nearly continuous feeds, requiring 24 hour oxygen, and was really, really run down...but now we are *almost* back to normal! And for the record, she asserts that camp was 100% worth it all...and I happen to agree with her!</div>
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Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com11tag:blogger.com,1999:blog-33281653.post-1038488423759370372012-11-05T12:58:00.000-06:002012-11-05T12:58:22.301-06:00Mito Camp!Oh, where to start?! Mito Camp was amazing, but it was also not completely without difficulties. I'll start with the tough stuff and then get on to the good stuff!<br />
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<b>Tough Stuff:</b><br />
KayTar woke up with a fever Friday morning...and camp started Friday evening! I was completely heartbroken. I thought for sure we would have to stay home, but the director encouraged us to still come as long as KayTar wore a mask to prevent sharing, in case the fever was infection related and not simply autonomic drama. It was an incredibly difficult decision, because when KayTar gets sick, it hits her hard and we keep her VERY chill to prevent it from rapidly progressing to a bad place. But Mito Camp promised to be so amazing and KayTar had been counting down the days and she told me "It would be like canceling CHRISTMAS!" Sooo, we decided to go. I'm going to assert that it may not have been a SMART decision, but it was a wise one. Life is short and this was such an amazing opportunity, we decided to make the most of the day we were given, even though it was an imperfect one. I'm sooo glad we made that choice. Medically, KayTar struggled all weekend and keeping her running was like patching a boat that kept springing leaks (<i>wonky glucose, puking in the clinic, fevers, not tolerating feeds, UGH!</i>), BUT she was having a amazing time in spite of it. Every time I saw her she was happy and participating! She passed out at dinner on Saturday night and we ended up having to leave early because she was so unstable...but she only missed out on 2 small things and got to enjoy every other experience to the fullest. She did everything that was on her list of must-dos! She was in rough shape yesterday and still struggling some today, but she has been happy and sharing camps stories with me and says she would do it all again in a second!<br />
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<b>Good Stuff:</b><br />
We got there a little late on Friday, but got checked in and made it over to the fire pit for s'mores and dancing...and FIREWORKS! It was awesome and KayTar was totally into it. BubTar IMMEDIATELY felt at home (<i>which is not often the case for him</i>) and made buddies with his cabin mates. KayTar's counselor was wonderful! Saturday was a full day and when I think about it, it seems like more than one day because of all the fun we squeezed in. We were all split into our cabin groups and went to a variety of scheduled activities. My day was: breakfast, horseback riding, barnyard, cooking, lunch, canoeing, rock wall climbing/ziplining, giant swing, then dinner...and then we had to go. My horse was such a character. He was very hungry and kept stopped to sneak a bite of food from the buffet of nature. I had to have the workers help me with him the first couple of times, but after I had been riding him for a while, I could tell when his mind wandered to snacking and could keep him on track. His little personality was endearing. Also, when we passed another group of trail-riders, he decided to try to follow them instead! Again, workers had to help me get him back on track. Silly, Hawk! It was so peaceful and fun, though! The kids got to do rock wall climbing/ziplining (K just watched...too high for her!), archery/nature, horseback riding, barnyard, canoeing, arts and crafts, and parachute play! KayTar also scheduled a "treehouse party" during rest time for her and her bunk mates. Evidently, it was super fun! Josh got to do most of the same things and he caught 6 fish, too! Fun for ALL!<br />
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Of course all of the activities were SUPER fun...when I was flying down the zipline, one of the workers shouted "You have the grin of a kid in a candy store!!". But the more amazing part was the atmosphere at camp. There were a kids with a variety of abilities, a variety of medical interventions, a variety of symptoms...but it was the ONE place I have ever been that none of it was out of the ordinary. Nobody batted an eye at tube feeds or oxygen lines or wheelchairs or masks...nobody looked at me questioningly when my kid hopped out of her wheelchair to bust a move...we were all just NORMAL! I did take care of a lot of KayTar's care because she was struggling and nothing was going to plan and I kept having to readjust, but it was okay and if she is healthy next year I will have NO worries about handing her over! If we muddled through this, "normal" KayTar weirdness will be no big deal at all. Both kids made friends and Josh and I got to spend time with our friends and it was just wonderful all the way around. Everyone is already counting down the days until next year!<br />
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I didn't get a lot of photos because we were all on different tracks, but we should be getting photos from the kids' counselors soon and I will be sure to post them! Can't wait to see more of my kiddos having a blast!<br />
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<tr><td class="tr-caption" style="text-align: center;">We climbed up and ziplined off this thing. See lawn chair for size reference!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Watching the down pour at lunch</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mustache Camp</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Right before she crashed...still happy!!</td></tr>
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com9tag:blogger.com,1999:blog-33281653.post-39876753074648603522012-11-01T11:46:00.000-05:002012-11-05T11:47:44.091-06:00Princess Sock Monkey!<div class="separator" style="clear: both; text-align: center;">
My friend Adrina makes the most beautiful custom tutus/shirts for kiddos' birthdays and special events and when Halloween rolled around, I asked her if she thought she could make a sock monkey costume for my little monkey! It turned out even better than I had imagined! KayTar was in HEAVEN. If you (<i>or a friend</i>) are looking for something special like this, be sure to check out <a href="http://www.poshbirthdayshop.com/">Posh Birthday Boutique</a>! (<i>and no, I'm not being compensated for posting about her...I'm just a VERY happy mama with a VERY happy kiddo!</i>)</div>
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And one of BubTar for good measure. 10 year olds are sooo not into the posing for pictures thing!<br />
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Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com3tag:blogger.com,1999:blog-33281653.post-61965777780167876292012-10-29T20:22:00.000-05:002012-10-29T20:22:55.856-05:00Sometimes Mountains Move.Last Wednesday, as I was in line to leave the parking garage at school, I read an email from our case manager at Transgenomic (<i>the lab with the $17,000 test that might be able to diagnose KayTar</i>). It said that she had spoken to our insurance and they had denied our appeal again, for the THIRD time. But she offered me an interest-free payment plan, you know, in case the interest was what was holding us back...not the $17,000! It was extremely frustrating and although I am not a crier (<i>I <b>hate</b> crying</i>), my eyes welled up with tears and I had to choke back quite a bit of emotion that was threatening to escape through my eyeballs. I vented my frustration to a couple of people, but otherwise kept it to myself. It was depressing and dwelling on it was not going to be helpful for me, so I made a decision to talk to KayTar's mito specialist about an alternate route to diagnosis and to find out if MDCP (<i>Medically Dependent Children's Plan, something we are trying to get K into, but that is another post</i>) might cover it...and then I decided to let it go and choose joy. I wasn't super HAPPY about choosing joy, but at some point, I just had to accept that letting myself wallow would not make me feel better and it would not change the outcome. I would have to wait and see what came next and decide to go for another round of appeal when I had more information. And I prayed.<br />
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I don't talk about my faith much here, but it is an integral part of who I am. I pray about things in our life and for people we care about and things going on in their lives, too...but in praying over our life, I rarely ask Him to change circumstances or fix things. I believe that He allows us to be challenged for a reason and if He wanted to intervene, He could and would. He knows my heart better than I do, I'm sure, and He doesn't need me to tell Him what I desperately want or need. I don't pray for KayTar's healing, I pray for wisdom for those caring for her, strength for Josh and I, joy for her, diligence to fight through the battles we face, and so forth. He created her just as she is and I don't pray away the struggles that come with it, I do my best to pray through them. Sometimes when I am too tired to pray for strength, I just simply pray that He would move someone else to pray for me. I know that mountains have a purpose and it isn't my job to tell Him where they belong, even when I am tired. He knows. So on Wednesday, I did not ask Him to fix it...instead, I told Him I was exhausted. I told Him that I was tired of jumping hurdles and just wanted to lay down in the middle of the track. I <i>maybe</i> flopped onto my bed to illustrate my point. I asked for strength and wisdom in moving forward, because dramatically tossing myself down in the middle of the metaphorical track was not a realistic choice, and I thanked Him for the encouraging people He has placed in my life. There was more, but that was the meat and potatoes of it. I felt kind of better. Less wallowy, more ready to find some joy and move forward.<br />
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Today, my cell phone rang. It was an out of area number and I answered it because I thought it might be related to Mito Camp (<i>this weekend!</i>). Instead, it was a manager at Transgenomic. She said that unfortunately, there was a lab error resulting in KayTar's test sample being ruined and they would need another sample. We've had this happen before, so it was not a real shocker. I said something like, "Well, we're having such trouble getting insurance to approve it anyway---" and she interrupted me and said, "Yes, I know you've been working with J to get it covered, but whether or not that happens, we will be running KayTar's sample immediately after receiving it and there will be no charge to you either way." And I said, incredulously, "ARE YOU KIDDING ME?!" She was very polite and said, "No ma'am, I've noted it in the chart. There will be no charge for the testing." Then some very different emotions attempted to escape through my eyeballs again and I tried to suppress the urge to jump around until I was off the phone. It was miraculous! I don't know if the test will give us answers, but today it doesn't really matter. There was a mountain in the way and then it was gone! There are billions of more important things happening in the world today and every day, bigger prayers that beg to be answered, and I can't explain why He chose to move this mountain...for me...today. I just know that He did. Sometimes mountains move, and it is unbelievably breathtaking when it happens.Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com8tag:blogger.com,1999:blog-33281653.post-69205649154517518752012-10-17T17:22:00.003-05:002012-10-17T17:23:23.488-05:00Wordless Wednesday: Streak Over.<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">KayTar has been able to go without daytime O2 for a week and a half,<br />
but she needed it today at school and at home. It was a good run!</td></tr>
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com2tag:blogger.com,1999:blog-33281653.post-20047770925178534532012-10-14T05:00:00.000-05:002012-10-14T05:00:01.613-05:00Random KayTar Quotes<i>Not enough to be a post on their own, but worth remembering!</i><br />
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<b>On life:</b> "You know, every day is the luckiest day of my life!"<br />
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<b>On school:</b> "Yesterday at school, I said to myself, 'I'd rather be having an MRI...'!"<br />
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<b>On Canadians:</b> "Do they say they are going to 'Catch some zeds' when it is time to sleep?"<br />
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<b>On wishes:</b> One day we were driving around a parking garage, trying to find a spot. It was taking a while. KayTar said, "I wish we could find ONE spot!" and we immediately found one. She quickly added, "And I wish I had a new car!!" Alas, the second wish did not work.<br />
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<b>On complaints:</b> At one of her doctor's appointments, the resident was interviewing me about her history and then asked KayTar, "What about you? Do you have any complaints? Anything I can help you with?" She said, "Well, I just wish it would stop raining so much so I could swim more!" The resident laughed and said, "I'm sorry, I just don't have that kind of power!"<br />
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<b>On marriage:</b> "I think that by the time you have a mustache, you're already married."<br />
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<b>On her crush:</b> One day we were laying in her bed and she was asking me questions about when Josh and I dated. Then she said, "You're not going to believe this...but I'm in love with---Darth Vader!"<br />
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com4tag:blogger.com,1999:blog-33281653.post-11866532437073830512012-10-12T05:00:00.000-05:002012-10-12T05:00:04.297-05:00Gracious LoserAlmost every night, I cuddle with KayTar as she falls asleep. I didn't always do this, but one night I was thinking about what I would miss most if she wasn't here anymore, I realized what I was seriously missing out by not taking advantage of those sweet twilight snuggles while I could get them! Josh has tried to hone in on my territory and cuddle with her a couple of times, but he ALWAYS gets kicked out and she ALWAYS calls me in. He just can't compete with my MSA (<i>Master in Snuggling Arts</i>), I guess.<div>
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A week or two ago (<i>I should really keep up with this stuff better here!</i>), he was in a trouble-making mood and when I said, "Okay, I'm going to go cuddle with KayTar..." He said, "Not if I get there first!" and raced me up the stairs. Once we were in there, he said, "Let's let her decide!" and of course she picked me, as always. Like I said, he was in a trouble-making mood, so he laid down next to her regardless just to see what we would do, and she said, "Uhh, Dad? I didn't pick YOU." As he admitted defeat and sweetly tucked her in and went on his way, she said, <b>"We should really get him a t-shirt that says, 'Gracious Loser' on it!"</b> </div>
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Oh my gosh, I almost DIED! Where does she get this stuff?! It was funny enough when she said it, but when I tried to tell Josh the story later, I started laughing so hard that I couldn't breathe. Life with KayTar is not always easy, but it IS always, <b><i>ALWAYS</i></b> entertaining. </div>
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Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com4tag:blogger.com,1999:blog-33281653.post-3102198614502059042012-10-11T10:07:00.000-05:002012-10-11T10:07:09.278-05:00Attack of the Lalaloopsy!<div class="separator" style="clear: both; text-align: center;">
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One day while KayTar was doing her homework, she mentioned that BubTar was creeped out by her Lalaloopsy dolls. We decided to give him a little scare and KayTar told me to put her in his bed, on his pillow, face up, body turned backwards. It.was.AWESOME! </div>
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The first time was so fun that it turned into a little game and I started leaving it places to surprise him!</div>
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<tr><td class="tr-caption" style="text-align: center;">Keeping his shirt warm...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Practicing his sax...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">He left her for me one night while I was showering...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">One of my favorites!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Ready for school...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">This one was THE BEST! He actually yelped.<br />
He was looking around his room for her and <br />
didn't look at the ladder until he was on it. AGH!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Hiding in his sock drawer...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Waiting for him to pack his lunch...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">In the car, waiting for him one morning...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">On his reading throne, enjoy Calvin and Hobbes...<br /></td></tr>
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One weekend, I let him help me hide her for KayTar, too!</div>
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<tr><td class="tr-caption" style="text-align: center;">Waiting in her wheelie...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Hanging out on the IV pole...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJVIU7BteYysFvR019o5WkBv1WtUJHf9KNdLjzRH9mChHevc7xykSd9eI_hZWZM5Eok1YdIXwE_U_bhN6_xvpRL7dEKDZM7k7xo6kujh8Bf7j4sOH6cH1CI8J0IG4mR27kgWU8/s1600/458514_10151056070670800_1500132130_o.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJVIU7BteYysFvR019o5WkBv1WtUJHf9KNdLjzRH9mChHevc7xykSd9eI_hZWZM5Eok1YdIXwE_U_bhN6_xvpRL7dEKDZM7k7xo6kujh8Bf7j4sOH6cH1CI8J0IG4mR27kgWU8/s320/458514_10151056070670800_1500132130_o.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hiding in her lamp...</td></tr>
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The doll has been on hiatus for a couple of weeks now, because I think we were all getting a little too used to it...but I predict she will show up again soon! :)</div>
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Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com3tag:blogger.com,1999:blog-33281653.post-54350028305294313262012-10-09T16:32:00.000-05:002012-10-10T16:33:24.489-05:00She is on to me...<div class="tr_bq">
On Monday, KayTar was VERY chatty. KayTar is always chatty, but this was a lot, even for her. We went to Build-A-Bear to get her a limited edition sock monkey and she talked all the way there and all the way home and all the way through dinner. After dinner, we had the following conversation...</div>
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<blockquote>
KayTar: Can I watch some TV now? </blockquote>
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Me (and my tired ears): Please do! </blockquote>
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KayTar: Alright, alright...I'll shut up. </blockquote>
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Me: I didn't say that!! </blockquote>
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KayTar: What you said was a NICE way of saying that. </blockquote>
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Me: *copious laughter* </blockquote>
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Josh: Well, there goes subtlety! </blockquote>
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That kid doesn't miss ANYTHING! Hilarious.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnbAEqqIBTeYcFGF2Qlsh_ETwbSbdJN2zqFtWgMpYAPYhC8BhUi4bFluhvyPqec5lJwg7Y8sWs4zhE-6ZFO7kEa1sFlj7i451SKzk-rLfpcUf3s_HR04FL_U_1yi-CncqeBl2H/s1600/615054_10151066503770800_2022903308_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnbAEqqIBTeYcFGF2Qlsh_ETwbSbdJN2zqFtWgMpYAPYhC8BhUi4bFluhvyPqec5lJwg7Y8sWs4zhE-6ZFO7kEa1sFlj7i451SKzk-rLfpcUf3s_HR04FL_U_1yi-CncqeBl2H/s400/615054_10151066503770800_2022903308_o.jpg" width="400" /></a></div>
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<i>KayTar and Lily, the monkey with medical problems.</i></div>
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The cashier asked her, "Oh, it is a doctor monkey?" </div>
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And KayTar said, "No, this monkey's got medical problems!"</div>
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<i>Of course.</i></div>
Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com2tag:blogger.com,1999:blog-33281653.post-25468003827744307672012-10-03T08:45:00.001-05:002012-10-03T08:45:46.072-05:00(Almost) Wordless Wednesday: Love Notes<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjbvPMDyLHMC5w3OjGojnk3QB2bJfWd8A3f5a9dNetOSbDkuKGzpUVJbwtsMwbbP1jL3AYZL-r3-YCz84FIl3h1NUIeHTMHPG4orHtQHOpb5lD_pZcwiIVPT7aZArUIwoj6Nopi/s1600/340914_10151059512300800_1256612409_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjbvPMDyLHMC5w3OjGojnk3QB2bJfWd8A3f5a9dNetOSbDkuKGzpUVJbwtsMwbbP1jL3AYZL-r3-YCz84FIl3h1NUIeHTMHPG4orHtQHOpb5lD_pZcwiIVPT7aZArUIwoj6Nopi/s400/340914_10151059512300800_1256612409_o.jpg" width="400" /></a></div>
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<i>A few weeks back, KayTar asked me to write her a little note to take to school and since then I've been writing little love notes and hiding them in her sweater pocket every day. This week I got a little more creative and went with a theme, ANATOMY! Or "doctor humor" as KayTar referred to it yesterday.</i></div>
Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com4tag:blogger.com,1999:blog-33281653.post-41115931960724961672012-09-30T17:18:00.001-05:002012-09-30T17:18:44.644-05:00Bet you can't do this!So KayTar has this little trick that her knee can do, wanna see?<br />
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<iframe height="385" src="https://docs.google.com/file/d/0B83FuqzSlwRbSU9TdldtU21MOW8/preview" width="640"></iframe><br />
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Interesting, right? "It's like my knee is doing push-ups!" I'm not exactly a medical professional, but I'm pretty sure that is not the direction a knee is supposed to move on purpose. Anyway, I don't know how long she has been able to do this for, but sometime in the past couple of months, I would feel her popping it while we were cuddling at night. She also says that she does it in class when she feels bored (<i>why twiddle your thumbs when you can dislocate your knee?</i>). Then she showed her music teacher and class (<i>poor Mr. N! he is a little sensitive about weird medical stuff</i>), and he had her show the nurse, too. We kind of wrote it off as just one of those weird KayTar things (<i>and musculoskeletal issues are soooo far down on the triage list around here</i>), but as it was discussed more, I thought it might be at least a mention to her OT on Friday.<br />
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The verdict is: Nope! Not normal! And yup! It will cause damage and make her more prone to injury!<br />
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She said that if she keeps moving it that way, within a year or two she will start to have pain and she is likely to tear a ligament (ACL/PCL) and need surgery/bracing. She is going to talk to the PT and we'll start work on getting it tightened up and hopefully avoid pain/injury/surgery. Glad I asked!Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com3tag:blogger.com,1999:blog-33281653.post-2088292021662758032012-09-28T11:41:00.001-05:002012-09-28T11:41:43.152-05:00Settling InWell, I last left you on the edge of your seats (<i>or so I like to imagine</i>) waiting for the arrival of a FOURTH oxygen regulator and with KayTar's sats misbehaving at school. Since then, we regulator has arrived (<i>though not on Thursday when I spent my whole day waiting for it...nope, I had to spend most of the following Friday waiting for it, too!</i>) and it has been working, for the most part. We did have an issue with it losing its seal on the first day she used it at school, but KayTar got out the T-handle and shut the valve ON HER OWN! I didn't even teach her how, she just learned by watching. She called it "the axe method" because she thinks the T-handle looks like a mini-axe. What a big kid she is turning into! Since then we have been taking it off the tank after every use and putting it back on when she needs it and haven't had anymore issues (<i><b>KNOCK ON WOOD!</b></i>). We shouldn't have to take it off, except to refill the tank, but whatever...if it is working, I'm happy.<br />
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As far as her sats...meh. She is below the pulmonologist's cut off more often than we'd like and nearly every day in PE. The plan this week has been to put her on oxygen for 30 minutes to an hour before PE regardless of sats (as long as it doesn't put her at 100%) to give her body a break and perhaps increase its ability to meet her needs during the 30 minutes of PE. In addition, if her sats are low at her lunchtime check, we just put her on oxygen after lunch and keep her on until PE. If her sats are low in PE, then she gets oxygen at that point and keeps it on through music. So far, it does not seem to be making her sats any better DURING PE, but my hope is that giving her a body a break before/after that exertion will minimize any ill effects from it. She enjoys PE and I do think it benefits her to stretch her abilities (<i>they encourage her to participate, but always allow her to self-modify</i>)...this week she walked a MILE (<i>or so she told me, 7 stamps=1 mile and she earned 7 stamps</i>). KayTar walked a MILE! I probably would not have thought it possible and I definitely would not have allowed/asked her to push it like that in real life, but she did it (<i>and besides her oxygen issues, she handled it well</i>)...which is why I think there is a benefit to her participating in PE. I don't want to pull her out because of the low hanging sats, but putting her on oxygen during that madness (<i>there are a TON of kids in PE</i>) isn't feasible either. So for now, we're going to keep plugging along like this, tweak some things, and see how it goes. The pulmonologist might have a different plan for us when we see her in November, but we'll cross that bridge when we come to it.<br />
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It is a relief to finally have reliable equipment for her (<i>though, I'm totally scared to try the regulator on the other 2 tanks we have because I'm afraid it will break!</i>) and it feels good to be settling into a routine and have some rough form of a plan in place. It isn't perfect and we'll have to tweak it many times, I'm sure, but the worst part of new medical needs/new equipment is all of the unknowns. It feels like the answer to every question becomes "I don't know!" and I hate living like that. Once we get to a place where we have some idea of what direction to head and what our day to day might look like, I feel much better about it. Now we know that on most healthy days, KayTar will likely need oxygen at least part of the day, and on most sick days, KayTar will probably need oxygen most, if not all, of the day. We may not know ALL of the answers, but I can definitely settle for knowing one or two!<br />
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<br />Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.com3tag:blogger.com,1999:blog-33281653.post-81174130098222428012012-09-24T10:00:00.000-05:002012-09-24T10:00:48.238-05:00Catching Up: Summer Vacation!I realized I never posted about our little trip this summer. We went to Jellystone Park (<i>and brought Josh's littlest sister along, she is 9 months older than BubTar</i>) and stayed in a cabin for a few days. The kids loved the water park and had a great time!<br />
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