We fly out to New York tomorrow and return on Saturday. Originally, we were going to fly out on Thursday, but because of KayTar's habit of having episodes at the airport, thereby canceling our flights, they decided to fly us out a day early just in case. This means that poor Josh has to stay behind, because he couldn't get a second day off of work. Bummer. My mom is coming along to help with KayTar, because I just could not take the kid on a plane without extra hands. After the Arizona trip, I promised myself I would not be flying with her at all for a very long time, but this is a special circumstance.
They are covering our flights, taxis, hotel, and food. They are sending a car to my house to take us to the airport. We are staying at a hotel in Times Square. I'm going to have a stylist. HA! It is quite funny, isn't it? Like suddenly falling into a movie plot or an episode of Ugly Betty, perhaps.
I've spoken with KayTar's pediatrician and her neurologist and everyone recommends preemptively sedating her, loading her with her episode medications before we ever leave the house, hopefully slowing her system so that it isn't overwhelmed and thrown into an episode. The pediatrician also called in a prescription to the compounding pharmacy for a transdermal gel, so if she goes into an episode on the plane, we can give her something without having to go through the suppository thing with an audience.
I feel prepared in every tangible way, flights have been rearranged to accommodate her, we have a plan to prevent and subsequently treat an episode, the sedation should even make her behavior a bit easier to manage...but I am still worried. I will continue to be worried until we touch down in New York tomorrow and then I'll probably worry once again on Saturday before we board the plane. Of course, ideally all the preparation will turn it into a non-issue. Anytime you put this much worry into something, it immediately ceases to happen, just so you look a little foolish. So I'm hoping all the worrying is for naught, because look foolish is certainly better than the alternative...a vomiting, screaming, writhing child with altered consciousness on an airplane, when light, sound, and movement just makes everything so much worse for her.
Today I have to go pick up prescriptions and buy a Max and Ruby DVD and pack and do all manner of preparatory tasks, so I might not be visiting blogs until I'm back this weekend. Like I said, my mom is coming along and she doesn't know about the blog and so I may or may not be able to sneak in updates from New York, but I'm sure there will be lots of photos and stories to share when I get home.
If you have an genius entertainment strategies for kiddos on airplanes, leave them in the comments. Also, answer this question, if you were seated in front of a small, adorable child with developmental delays and she repeatedly kicked and/or pushed on your seat for a 6 hour flight, would it make you feel better if the mother offered to buy you one of those tiny bottles of liquor from the drink cart?