We had an excellent day yesterday. 10 ounces of fluid. 3 wet diapers. 2 jars of food. 1 yogurt. No fever. No vomit. No episode. This morning? No fever. A truly wet diaper. Finally.
This whole scary week has been a reminder that our lives are very different than they once were. A reminder that KayTar's sensory quirks are not isolated issues, but they come into play in a way that can be very serious when combined with an illness. A reminder than when BubTar brings home a cold, it can end up being much more serious if and when KayTar comes down with it. The fact that she feels under the weather ramps up her food aversions and it turns into a total refusal of all foods and most liquids.
For most of the week, we haven't even been able to open food packages in the same room with her, much less eat in front of her. If she even saw us open a package, she would start heaving. It is so surreal. I've never seen anything like it. In the hospital I had to hunch over my food tray in the corner, so she couldn't see the food or the fact that I was eating. There is no tempting her with "treats" because sensory aversion trumps a treat every time. We tried everything. Popsicles were evidently invented by the Devil, just for torturing KayTar. Gatorade? No. Sprite? No. Water? No. Juice? No. Milk? Vomit. Big cup? No. Straw? No. Bottle? No. Syringe? Vomit. So a simple cold can become a hospitalization for dehydration, just because her senses are on high alert and she can't accept anything. We also learned that KayTar does not look as ill as she is in actuality. She can pass a clinical evaluation with flying colors, but the labs will tell a very different story. The general signs of dehydration were not exhibited, even though she was. She was still able to make tears, her tongue never felt dry, she passed the little pinch test. The only thing that gave us a clue was decreased urine output. It was quite a learning experience for us all. We're still unsure why she has had 3 episodes since Sunday. We've never had them closer than 2 weeks.
I know there are so many parents and children out there dealing with much larger medical challenges, some are life threatening and will be a life long struggle, and this is small in the grand scheme of things. I just didn't realize until this week that KayTar's sensory quirks could translate into a real medical problem.
Taken a few minutes after her labs were drawn.
Does this kid look sick to you?