Found the shoe. It hit me square in the face as I looked upwards admiring the lovely sky today.
KayTar and I were on the way to her feeding therapy evaluation today and I heard her making small, pitiful sounds from the backseat. One glance in the rearview mirror and I knew what was happening. I saw rolly blank eyeballs to accompany those small pitiful sounds. We were on the freeway, the next exit happened to be the exit we needed to take in the first place, so we exited promptly. The first parking lot was the parking lot of our intended destination, so we parked. I opened KayTar's door and she was sobbing softy, unable to open her eyes. She said "El-puh" which means help in KayTar-ese. I handed her her blanket, which she absolutely did not want, so I replaced it with a train she is very fond of. She tried to open her eyes to look at it, but she could not. She put it to her mouth and licked it instead. She's very sensory seeking during these things...it looks a little like she is on ecstacy. She likes to lick and rub things. I called Josh and had him call the therapist and explain what was happening and apologize for the short notice. We headed straight home. KayTar whimpered most of the way home...occassionally saying something pitiful like, "El-puh." or "Ah-done." that plucked my heart strings and made me drive faster and faster. As soon as we got home Daddy stepped in a cuddled while I paged the pediatrician who is currently paging the neurologist to see if we need to take her to the hospital for an EEG. The only time they do these EEG's are M-F from 8-5 and KayTar never has episode then...except this time. So, we'll see. She is asleep on the couch at the moment, but that doesn't last for long. She'll be awake and vomiting most likely in the next 20 minutes.
Day 15. Almost exactly 2 weeks, like clockwork.
Kaytar is in my prayers. I hope they do an EEG and I hope it is helpful.
Hugs to you all.....
I hope they can see her; maybe you'll get some answers.
Sending good thoughts.
Praying, praying that this one doesn't last long. Maybe not being on the medications will shorten the episode. Will check back for an update. I hope this one doesn't go on all night.
They didn't send us. They can't do video EEG on the spot. *sigh* And the neuro said he doesn't know if it would change anything anyway.
Its still going on over here...just wanted to update and let you guys know we are still at home.
Hang in there. Thinking of you.
I'm sorry. Your poor baby girl.
Poor little mite. I wish someone could solve this puzzle.
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