Tuesday, September 12, 2006


We have our long awaited neurologist appointment tomorrow. I am so relieved it is finally here, and at the same time I am totally nervous. I don't know what to expect, never having done this before. I don't know which questions he will ask or what information to bring along, so I will be up tonight typing/printing every piece of information he might find informative. Earlier this week, I spoke with KayTar's pediatrician and she said that it is great that we finally are seeing the neuro, but make sure he doesn't railroad me into accepting a diagnosis and that he is really listening to what I say and hasn't made his mind up prematurely. That freaks me out. I am soft-spoken, I hate confrontation, I hate decision making, and I am prone to accepting what anyone tells me. The thought that I have to go in there and make up my own mind about what is happening with KayTar, and making sure the doctor makes a correct diagnosis, when I really have no idea is frightening. I wish I could bring my pediatrician along. She is so supportive and wonderful and advocates for KayTar at every turn, I wish she could be there tomorrow. What if we don't have another neuro appointment for a very long time, if ever? What if nothing gets solved tomorrow and it is our one shot? Before Sunday, I just thought this appointment would be check-up to see how wonderfully the medication is working, but evidently that isn't the case. When I drop into the depths of this panic, I keep trying to picture the neurologist, with his gray hair and uni-brow and foreign accent KayTar finds so dreamy...and I think, is there really anything to worry about? The calm lasts about 45 seconds, but it is long enough to catch my breath. SIGH. I'd love to stay here all night and agonize over this...but medical histories are calling to me, so I best not keep them waiting any longer.


Anonymous said...

You are going to be fine. You will realize when he isn't listening or is making a rash decision. That is when the "Mama bear" instinct will kick in. You may not know the diagnosis, but you do know the signifigant symptoms that KayTar has. Don't let him brush anything off as not important. Sometimes confrontation can feel really good - especially when you are doing it for your kid. Good luck today, I will be thinking about you.

Raehan said...

Good luck! I've been lurking here. Sorry I haven't been a better commenter.

I know several people that have children with Sensory Integration Disorder. They caught it much later than you. I think the fact that you caught it early will really, really help. Try to find people, especially teachers, in your community that understand the disorder. It will help.

In the meantime, here is a post that I read last week that you might be interested. Mrs. Darling has an older daughter and the disorder was only diagnosed last year. http://peterpanandfamily.blogspot.com/2006/09/homeschooling-child-with-special-needs.html