Thursday, April 24, 2008

She's fine.

We went to the pediatrician yesterday afternoon to get a quick neurological exam done and it came back normal for KayTar. That just means everything was just right other than her wobbly, wide based gait, but that is an always thing for KayTar, not something caused by the episode. So YAY for that! The pediatrician did say she wants to have another MRI done once we get the insurance thing figured out, just to make sure things aren't changing in there. Yet another thing waiting for insurance. Joy.

I haven't brought her in post-episode since the very, very beginning, but this one was just so worrisome that I needed confirmation that she really was just fine. Watching your active 3 year old stay almost completely immobilized for 5-6 hours is kind of terrible, you know. She wouldn't even sit up to grab something that she really wanted that was directly in front of her. She just wasn't moving. Even though I know she's fine, it still gives me knots in my stomach to think about it all. She has regressed with her feeding several times following an episode, she lost three different sets of words in the beginning, and I just could not stop worrying that she had last her gross motor skills this time. She didn't and I am thrilled, but the worries and what-ifs still dance in my head and tie knots in my stomach.


So this press conference thing is happening. Like for real. I have been emailed my suggested talking points, the run of show (with my name on it! Exciting! Terrifying! I think I'll puke now!), and some other various information. I'll have 4 minutes to speak give or take, and then Q&A with the reporters. I think they've mistaken me for someone who knows what she's talking about!

Also, I just got a card from the woman who interviewed me a few weeks ago, she said that our story was accepted by the national office (!) and she'll keep me posted of publications.

This is what it feels like to enter the Twilight Zone, I think.


My professor missed class on Tuesday night due to his own family emergency and he agreed to let me take the test at a later time. So now I'm studying to maintain that information, while adding in the information for the upcoming lab practical. The lab practical, consequently, will likely be on Tuesday evening, which means I'll spend the day at the Capitol and then rush off to take an exam as soon as I get back to town. FUN!


Isn't awesome when all your irons are in the fire at once?

Worrisome neurological episode, check!
Press conference, check!
Major exams, two of them, CHECK CHECK!


This is what SIX looks like, in case you're wondering.


Chaotic Joy said...

KYLA! I don't know how you do it. If I had to juggle one of your balls I would have dropped it ages ago. Do you ever get tired of hearing us tell you what a superwoman you are.

I am so glad Kaytar is OK. I will be praying for you for your press conference. That you have the right things to say, that the right people hear it and it inspires great change.

Anonymous said...

Oh Good Lord! That photo of your boy! You are a total ass kicker my friend.

mommamia said...

I have been thinking about you and wondering how she was doing.

You will do great at the press conference. I'm glad your story is getting out there.

moplans said...

I'm so glad to hear she is ok.

You DO know what you are talking about. They are not at all mistaken.

moplans said...

I'm so glad to hear she is ok.

You DO know what you are talking about. They are not at all mistaken.

Becca said...

Glad she is doing better! Good luck with all you have going on!

crazymumma said...

He would love my trans am.

Yes, talk about irons in the fire! I am so relieved Kaytar is okay. That was a horrible episode. And Bubtar was so amazing about it.
If you talk the way you write and comment, you will definetly make a huge impact at the conference.

How do you do it all with such grace?

Mimi said...

Oh, Kyla, I'm glad everyone is okay. And I'm so impressed at how you are handling everything. I'm cheering you on with all my might!

motherbumper said...

I know things are different in Texas, but they let you drive at six there? Woah.

Anyhow, glad KayTar is "ok", glad prof understood, glad you could reschedule as sucky as the timing is and you will totally kick ass at the interview. Just check teeth for spinach prior to the photographers snapping your serious, yet sexy, snaps for posterity.

metro mama said...

Oh, I'm so glad she's OK.

You are going to rock the press conference and the exams.

Run ANC said...

I'm so glad she's okay. I was just catching up on my reading and saw the title "She's fine" and my heart dropped into my stomach.

I'm impressed by your whole family, but the mature way that BubTar handled leaving the museum on his birthday is beyond words. That's one cool kid.

painted maypole said...

oh. whew. i am catching up, and it's good to read this post first. :) hope you get to spend a special day with bubtar soon (six!!!!) and that press conference? you're not the "expert" but you're the person living it, which makes you expert in your own right. you'll be smashing.

flutter said...

You are so incredible. Have I mentioned?

S said...

i am sending you all kinds of energy for everything you've got going on.

you go, girl!

Family Adventure said...

Wow, Kyla. The grace with which you handle these stresses - I am in awe.

Glad K is better, and that son of yours - not only is he kind and considerate, but look at those eyes!!


kittenpie said...

So glad to hear it's all fine with K, as you have enough other things to worry about! You must be superwoman.

Hannah said...

Long time lurker on your blog. I'm so glad KayTar is doing ok today. Good luck with everything coming up for you.

Gretchen said...

4 mins will FLY BY! I did a radio interview last Friday and we had about 20-25 mins airtime and I could've gone another hour easily.


Katie said...

Seriously, I am just so in awe of all that you are making happen right now Kyla!!! Be careful, you might just motivate me and we can't have that now can we ;)

Go get 'em!!!

Girlplustwo said...

this is freaking fantastic. you are going to rock it.

and oy. glad she's okay babe.

Bon said...

so much for one plate, friend...and yet you manage and thrive and rock it.

worrisome indeed, though. i think that wondering, that little voice, would be impossible to silence.

i am glad - so glad - she is okay.

Debbie said...



also, wow.

I think you're amazing, in case it isn't obvious.

natalie said...

You are the master juggler! Irons in the fire, no kidding. The end of school is similar, but not quite as stressful (and not as much riding on it for me!).

I'm praying for you...and I can't wait to hear about the press conference.

Christine said...

six looks pretty darn cute!

and i am glad the episode is over. i know everyone says this all the time, but i can't image the fear and anguish you and josh suffer seeing her that way.