First, if you are looking for my BSM, follow this little linky-loo over to my new photo blog! I've been playing around more with my photos and such and wanted a place to explore than without totally over taking this space (which I still desperately need), and thus, Photos from the Journey was born. Go take a peek if you have a chance!
Second, it is a Big Week here. We are on day 69 without an episode. 69 is the current heavyweight champ for days without an episode, so that means this is the week. Today, tomorrow, maybe in two days...but it is coming. This waiting is even MORE fun because tomorrow is her BIG AUTISM EVAL with the district. 8:30-12:30. 4 hours of evaluation. Of course, I'm worrying about having to cancel and miss out on this appointment slot, thereby keeping her out of school and services for the remainder of the year. On top of that one, we have a second, shorter evaluation on Friday. That is two days in which an episode would be bad news, not that they are ever good news. I am also planning on a super fun roadtrip this weekend with a friend, to see a couple of crazy Canadians, and I'll have a pretty hard time leaving if she hasn't had her episode yet. I think it would kill me to be a few hours from home when she was going through that. It doesn't matter how many she has had (28, if you're wondering) they always make my heart stop and then race uncontrollably. There is just something about watching your child slip from consciousness that you can never adjust to. The question is always, will she return to me?
Third, I have a phone interview with someone from the CDF this afternoon (it was rescheduled from last Friday). Dare I say it? I am hopeful that they might be able to help us with this horrid insurance situation. Regardless, this week I got my basic cardiac life support certification (because it looks purty on my resume) and I'm still putting in applications and hoping for call backs. In a few weeks, I'm going to take advanced cardiac life support (which looks even purtier on the resume) and I am really excited about it. I get to learn all the fancy life saving stuff in that course! I hope a solution finds us one way or another, even if it means I sleep a whole lot less for a while.
Oh, good luck! The waiting must be so hard. Let's hope for 79 this time!
Oh, good luck with everything! We are holding our breaths, too--we're sure it will be any day now with T. and, of course, on Wednesday I'm traveling by train with the kids to MD. PLEASE let it not be Wednesday!
And I hope the eval goes well...I'll be thinking of you.
very naughty - but not like you made it up.
Like becca I am hoping for a new record!
You are naughty :-)
I'm keeping my fingers crossed, episode wise. Let's just take a minute to be grateful that it's been 69 days! That's actually really great, isn't it?
I'm jealous you get to hang out with sage ....
It must be like waiting for the other shoe to drop. I'd have a lot of trouble focusing. Those episodes sound so scary. I'll be hoping that things go as smoothly as possible, whatever that ends up being.
I also hope that you get to hang out with those wonderful Canadians. I'll be jealous.
I wasn't thinking anything dirty until I read the asterisk.
I wish you a lovely meet-up with the Canadians, without fear of an episode.
Pulling for you this week on everything...
Not just because I want that road trip. ;)
it must be a strange in-between place, celebrating the heavyweight champ of days without an episode while half-hoping it will just come already and be over with because there is so much to do.
and i am beyond jealous about you and Julie and Sage and whoever the other Canadian is...? sniff. wish it were me!
Fingers crossed for a new record, road trip sounds awesome, and I'm loving the new photo blog baby.
And good luck with the evaluation tomorrow - I'll be thinking of you both xoxoxo.
i hope that you go so long between episodes... that you have to stop counting.
I don't know what to say... I hope you get to go on your road trip, but then that would mean another episode, wouldn't it? Good luck on everything!
Ok little girl, hold out so mama can see Auntie Sage!
It's 11:52 pacific time . . . are you an hour ahead?
In that case - congrats and hello 70!!!! Whoot whoot!
we're pulling for you over here at Casa Earth..
the wait has got to be killing you!
take care, K.
Running on empty
Good Luck with the EVAL...
I new record would be a verrrry good thing. Wishing I were along side those crazy Canucks to give ya a big hug in person.
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