69

First, if you are looking for my BSM, follow this little linky-loo over to my new photo blog! I've been playing around more with my photos and such and wanted a place to explore than without totally over taking this space (which I still desperately need), and thus, Photos from the Journey was born. Go take a peek if you have a chance!

Second, it is a Big Week here. We are on day 69 without an episode. 69 is the current heavyweight champ for days without an episode, so that means this is the week. Today, tomorrow, maybe in two days...but it is coming. This waiting is even MORE fun because tomorrow is her BIG AUTISM EVAL with the district. 8:30-12:30. 4 hours of evaluation. Of course, I'm worrying about having to cancel and miss out on this appointment slot, thereby keeping her out of school and services for the remainder of the year. On top of that one, we have a second, shorter evaluation on Friday. That is two days in which an episode would be bad news, not that they are ever good news. I am also planning on a super fun roadtrip this weekend with a friend, to see a couple of crazy Canadians, and I'll have a pretty hard time leaving if she hasn't had her episode yet. I think it would kill me to be a few hours from home when she was going through that. It doesn't matter how many she has had (28, if you're wondering) they always make my heart stop and then race uncontrollably. There is just something about watching your child slip from consciousness that you can never adjust to. The question is always, will she return to me?

Third, I have a phone interview with someone from the CDF this afternoon (it was rescheduled from last Friday). Dare I say it? I am hopeful that they might be able to help us with this horrid insurance situation. Regardless, this week I got my basic cardiac life support certification (because it looks purty on my resume) and I'm still putting in applications and hoping for call backs. In a few weeks, I'm going to take advanced cardiac life support (which looks even purtier on the resume) and I am really excited about it. I get to learn all the fancy life saving stuff in that course! I hope a solution finds us one way or another, even if it means I sleep a whole lot less for a while.