More of the same...

Last night went well, KayTar and I enjoyed a lovely full night of sleep in my big comfy bed. Josh will be bunking in KayTar's flowery twin bed for the next little while, but he slept fine, except for the recurrent dreams of butterflies and fairies. She woke me up a few times, I'd hear her say, "Mom!" or "Dad!" and open my eyes to find her sitting upright in bed with her eyes completely closed. She'd say something like "Where am I? I can't see ANYFING!" And I'd reach over and say, "Remember? We're home now, let's lay down and sleep." Oh, the fun of preschoolers on narcotics.

This morning, BubTar went to school and was promptly returned home to me. Without giving too much away, he is having serious intestinal troubles that began as a bit of a SURPRISE for him. I'm a little bit freaked out that he's brought home some GI virus that he will see fit to share with the rest of us, especially KayTar. Can you imagine her getting the pukes with the state of her stomach and throat? Let's not think too much about that. Needless to say, quarantine is back in swing, sponsored by Lysol and Purell.

The perkiness of last night has worn off, I think it was a Lortab buzz combined with the rush of being pain-free for the first time in hours. She's in good spirits, but much more mellow than she was last night. She's tolerating her full feeds and every time it gets a little less painful (her site is still pretty tender). Last night she got upset when I was hooking her up and she jerked the bolus tube off. YEEOW! She doesn't seem to want to repeat that experience and is less apt to grab at things, even if she is still a little uncomfortable. As long as I give her hands a little squeeze after every step, ("Okay, I'm going to open your valve now" Squeeze hand. "I'm going to hook in the tube now." Squeeze hand.") she is mostly agreeable. During her pseudo-lunch, she even wanted to help hold the big bolus syringe. She is also quite fond of using the bolus tube as a microphone to announce important things like, "I like flowers and hearts!". She whimpers a little when I tell her it time to eat, because of the tenderness, but it will get easier and easier as it heals. She's adjusting really well, all things considered.