Monday, November 10, 2008
News on the KayTar front:
Feeds are getting easier, hardly any associated discomfort, though she seems to be feeling worse a bit in general. She still isn't taking anything by mouth, but is asking for tube feeds. "Mommy, will you feed me in my tummy?" She will specify where she wants to eat, too, either the bed or her little chair.
Last night she had trouble with snoring and I thought the adenoid swelling probably peaked, but this morning she woke up gagging, so I think that perhaps TODAY the swelling has increased more so to the point of making her feel nauseated. She also doesn't want to get out of bed this morning, which makes me think she is feeling quite poorly in general. I'm hoping she will be over the hump soon, though.
She's really doing well, even if these little updates don't always sound that way. We're happy to be home, she's mostly comfortable, and she's been up and around playing quite a bit. She laughs and smiles, and yesterday I caught her showing off her button to her brother, "This is my belly button. I can eat with my tummy. The doctor gave it to me. I like Dr. M, he has chili peppers on his hat." She's getting there, slowly but surely...just like she always does.