I promised to post, and post I shall. My dear KayTar is having an episode, as I type. Don't worry, I haven't abandoned her in her moment of need...the worst is over. She was in pain from about 12:45-3:15, but she keeps collapsing so we have put her safely in her crib where it is nicely padded.
My parents live about five minutes from our home. In the time it took me to drive from their house to ours, she was suddenly full throttling her way into an episode. She was fine when we left their house. She cried and writhed while laying on my chest for the duration of the pain. Around 3, she opened her eyes (without them rolling back into her head) and attempted to sit up. The first time she sat up, I thought she was out of it, but she soon collapsed and began to cry again. At about 3:15, the crying stopped and she climbed off of me and the couch onto the floor. Then I was sure it was over, and then she collapsed. And so on and so forth until I realized the best place for her is the crib, because while she is lucid, she is also continually collapsing and would hurt herself any place else. Thankfully, she is no longer in pain, and her awareness level is almost at baseline. We've passed the 5 hour mark at this point, which makes it our longest episode to date.
Josh came home to report he has had a nagging headache all day. This is significant because I think he has had a nagging headache every time KayTar has had an episode. We are totally unsure about the reason for the correlation, because most days are like today and Josh is at work and KayTar is at home when they happen. Is it weather related? Allergen related? Is it time related? KayTar is still clipping along at 2 week intervals, which means Josh also gets a headache every 2 weeks. He also experiences true migraines, but those don't coincide with KayTar's episodes. I am so intrigued to get the results from KayTar's Hemiplegic Familial Migraine evaluation. Out of the many tests that have come back negative, I almost expect this one to be positive, because of the correlation between Josh and KayTar's conditions. It seems too related to be a coincidence, but we'll see.
This isn't the post I intended to write today. I intended to write about the awful school parent I was last week for BubTar. Or about the fact that the bathroom was repainted this weekend, because while Josh was using it he decided that the paint situation was an emergency that necessitated an immediate solution. Or about the horror that was babysitting my sister's children this morning. This post could have been about many things, but I didn't think it would be about an episode. The episode came as a surprise, as it always does; and when it comes, it wipes the rest of the world away. It is just us and our sweet KayTar, and nothing in the world mattters more than helping her through it all.
Edited to add:
Spoke too soon. She asked for dinner, I obliged, she vomited. She is crying on and off again. I think perhaps the Motrin I gave her early on controlled the pain element, but has since worn off. We have to wait for her tummy to settle again and I can give her another dose. Right now she is in the darkness of her room watching Blue's Clues from the crib, it seems to be appeasing her for the time being. Poor sweet girl.
Edited again to add:
Grand total: 8 hours.