Slow Torture: A narrative told through Facebook status updates.
Finally got the call. Quick dinner and then we're off!
Settled in and crafting
Waiting anxiously to see if KayTar will win the radio contest...she has prepared confetti to throw just in case she does.
Watching The Little Mermaid with my little chickadee.
KayTar is out for the night, but her alarms keep going off. It's not looking like a peaceful night is in store between that and the frequent glucose/vitals checks.
The nurse lowered the respiratory rate alarm to 10 so it will stop ringing every 30 seconds.
So now that they fixed the respiratory alarm by lowering it, now the ECG is all "Bradycardia!" Lots of ringing around here tonight.
She started fussing for a snack (14 hours in) and the hospital ice chips came to the rescue. :) She said it is the most refreshing snack ever.
Happy little patient
We have reached misery...I rocked her to sleep, but I don't think it will last long.
She's still asleep, thank goodness, but it is looking like we'll be here another night.
Her glucose is only 58 at the 25 hour mark! She can get down to 58 in like 4 hours on a school day! This is going to be a long night of hourly glucose checks.
Gah. Her glucose has now gone up to 63. I'm starting to think it will never drop below 50. She's on hourly glucose checks until it does and only one of us sleeps through those...and it sure isn't me!
Glucose was 46, so they drew labs...next up the shot of glucagon and glucose testing every 15 minutes for an hour.
She can eat now and in typical KayTar fashion, she isn't. She's been vomiting, though, so that might have something to do with it.
Vomiting in spite of Zofran, so they're starting dextrose in her line. Seems like she was mostly fine (but unhappy) until the fasting was over!
She has tolerated 2 ounces of Pedialyte and 2 ounces of Pediasure this morning per her g-button (it hasn't come back up yet), but she isn't maintaining her glucose like they want, so they are starting her on D5 and we'll try more Pediasure in a bit. She has to be able to maintain a glucose of 70+ to be released.
I'll have more to say about it, I'm sure...but let me say this for now...WORST TEST EVER. She's had all sort of tests and procedures, from labs to LPs to surgeries, and I think this takes the cake. It was so hard on her. She was so sad/mad/pitiful after she hit her breaking point and there was still so much left after that. So many, many, many needle pokes. So much waiting. So much crying. Ugh.