Tuesday, she complained of eye pain in the evening.
Wednesday, on the ride to school, she said she was having "pink robot vision" like when the words in her book were flashing red and green a few months back. Then she said she was seeing a pink dot. With her history of horrific, atypical migraine/pseudo-seizure hybrid episodes, it worried me so we dropped BubTar off and headed home for meds. On the way home, she told me that it felt like her heart had moved up to her forehead. She felt a little wobbly on the way into the house. I gave her ibuprofen and Zofran, and put her in my bed in the dark. About 45 minutes later, she called out to me, "I'm fine, when can I go to school?" I had get up and did the highly technical neurological tests of letting her try to read a book and watch the TV to see if it affected her vision again. All was clear, so I took her to school.
Thursday, she had more eye pain in the evening...a "hurricane in her eye" to be more specific. I emailed the pediatrician, but neither of could figure out where this was coming from so suddenly (no illness, no new stress, no sleep changes).
The next few days were fine and I thought we were past whatever it was, but that isn't the way things work. This morning, we found KayTar in the kitchen with an ice pack on her eye. We asked what was up and she said she had another hurricane in her eye. She seemed fine, though, so I gave her ibuprofen and they went to school. I was emailing KayTar's teacher and nurse, when Josh called me to say KayTar was complaining of "colored visions" again...so they turned around and came home. I put her to bed, since we'd already given medication, and she was fine again in about 30 minutes. I waited a while to see if the pediatrician would want to see her, but brought her to school at about 9:30...but she was counted absent anyway. Oh well! Good thing excessive absences are in her IEP, we're definitely over the yearly quota.
I did talk to the pediatrician today, and she thinks we might want to restart Periactin. KayTar was on it as a toddler in an attempt to control her neuro episodes, and later as an appetite stimulant. It didn't ever control the episodes successfully, but it might be worth a shot with these. An appetite stimulant can't hurt either! I also realized that KayTar hasn't had neuroimaging done for 4 years! We may need to get that updated if these persist. I think we're going to see the pediatrician this week to get her looked over...but she seems fine to me, with the exception of these pesky auras and pains! Hope we can get to the bottom of this soon!
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