Bolus syringe
Rinse syringe
Red tip
Pediasure
Albuterol
Spacer
Zofran
Lortab
Benadryl
Epi-pens
And that's just for a DAY TRIP.
KayTar and I are going on a little day trip today with some friends. We headed to a big playdate in Austin, friends from Dallas and San Antonio are driving in, too! Some of these ladies I've known since KayTar was born, but haven't met them all in person yet so I am quite excited, strange packing list notwithstanding. This is the first time we've ever been comfortable enough with KayTar's health to do something like this (drive FOUR hours to and from a strange place in a single day), so it feels a little victorious, too.
****
It was a complete and total success! This was the first time, possibly ever, hat we have made advance plans (by a month or so) and not had to cancel them at the last minute due to a KayTar-illness. KayTar and her friend were so well behaved on the drive and we all had a great time. It was so nice to spend time with everyone!
I packed all of her just in case meds for episodes and asthma and allergies, but didn't have to use any of them, I only used her feeding paraphernalia. It has been 131 days without an episode! (knock, KNOCK, KNOCK on wood) I can hardly believe it. Six months ago we never would have tried something like this. Her episodes very often involved travel (by car or airplane), or being woken early, or excitement...we hit all those high points yesterday and she remained, delightfully, episode-free. In the end it was more than a little victorious, we kept our plans and they were not interrupted by any sort of illness or episode...it was just one very fun day for everyone. One more gift of the new year.
22 comments:
I cannot spell one thing on that list without assistance. Have some great daytripping Tar family :)
Weird packing aside, it is victorious! Have a good time.
Have a great time!
Ya'll are going to have the best day trip ever, no doubt. I can't wait to hear all about it!
That list's a little scary, but I hope you have a great time.
I am *so* jealous!
Have a great day! Can't wait to see pics and hear all about it :)
I agree with Sheree, I am super jealous! I hope you guys have a fantastic time. I can't wait to see pics!!
So bummed I missed out on this one. How fun!
have mercy!
I read on Twitter that it was a success! Yay!
sounds like fun!!
I'm so glad the outing went wonderfully! Hooray!
Well, Glory! That is awesome.
131 days is awesome! And the day was definitely a gift.
What a great day! KayTar is a doll - so, so sweet. Lainey had a great time playing with her new buddies and I had so much fun meeting everyone! I'm already looking forward to next time!!
Yes! May that be the first of MANY such days!!!!
I'm SURE you've thought of this, but do you think the episodes were (are) related to nutrition? Calories?
Hey friend,
I tagged you in a meme. If you have time, of course!
I'm glad the trip was a success and worth the packing efforts!
Awesome, awesome, AWESOME! So glad you had fun :)
That is a wonderful victory! Here's hoping to many more through 2009.
V for freaken Victory. Or maybe F? How great is that!
Happy, happy!
Just yesterday I met two bloggie friends in San Marcos for lunch. You ARE committed when you drive 4 hours.
Barbara
victory darling is yours. Hello beautiful Kaytar. I have issed your lovely face being aways o long and all.....
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