tag:blogger.com,1999:blog-33281653.post968519439496468128..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: The GI Plan.Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-33281653.post-28984017186571646762011-09-14T20:50:04.521-05:002011-09-14T20:50:04.521-05:00I love that the dr. spends that much time with all...I love that the dr. spends that much time with all of you. I hope the med and diet changes bring positive changes.InTheFastLanehttps://www.blogger.com/profile/09691830067979224059noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-68870734714098973392011-09-14T19:47:00.843-05:002011-09-14T19:47:00.843-05:00Your GI doc sounds WONDERFUL. I hope the prokineti...Your GI doc sounds WONDERFUL. I hope the prokinetic helps speed things along a little more... Nexium is a pretty good drug. Nolan is on 20mg twice per day (in addition to Zantac 2x per day) and it *mostly* keeps the reflux at bay. <br /><br />I feel you with the worry about "disease progression" and not knowing what in the world could be causing things to go awry. Nolan had a TERRIBLE August, but fortunately seems to be doing better this September. When we saw the geneticist, she said there was a lot going on, but that he was 'too normal' to really pinpoint anything (i.e. he was cognitively fine and still walking, eating, etc). We don't want any progression, but it would be nice to have some answers for what he DOES have and to know what to expect/head off for the future.<br /><br />Here's to a successful trial of Augmentin + Nexium. I hope it works for her!!leahhttps://www.blogger.com/profile/05004783118268323560noreply@blogger.com