tag:blogger.com,1999:blog-33281653.post6326649013343308848..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: Hodgepodge.Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-33281653.post-53653751882635266972007-12-16T19:35:00.000-06:002007-12-16T19:35:00.000-06:00i am just stuck on that picture of your friends wi...i am just stuck on that picture of your friends with their sweet boy. i'm all choked up. . .<BR/><BR/><A HREF="http://runningonempty-christine.blogspot.com/" REL="nofollow">Running on empty</A>Christinehttps://www.blogger.com/profile/04662448292809451387noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-72554252795180042632007-12-15T22:19:00.000-06:002007-12-15T22:19:00.000-06:00I'm still keeping watch over Katie. I can't believ...I'm still keeping watch over Katie. I can't believe it's been a week.<BR/><BR/>As for the speech/hyperlexia - I'm an SLP and I know nothing about hyperlexia ... is it possible that this is one of those (gag me) door closed/window open opportunities where you can find an even better suited SLP?<BR/><BR/>(looking for the silver lining ...)dawn224https://www.blogger.com/profile/12261307900362127378noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-86441854628715354672007-12-14T03:27:00.000-06:002007-12-14T03:27:00.000-06:00Wow, Kyla, you've got a lot going on, and a lot in...Wow, Kyla, you've got a lot going on, and a lot in your heart. I'm sorry for all the loads you're carrying.<BR/><BR/>On the upside, KayTar is getting more adorable, and maybe ... MAYBE! the current round of illness means you'll all be healthy for the holidays. Fingers crossed.Mimihttps://www.blogger.com/profile/10812707312289852258noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-53729982386395548012007-12-14T02:05:00.000-06:002007-12-14T02:05:00.000-06:00That picture of Jake & fam speaks volumes.Sorry fo...That picture of Jake & fam speaks volumes.<BR/><BR/>Sorry for the frustrating develipments with Kaytar's therapies. Hang in there.Run ANChttps://www.blogger.com/profile/06088821030860597465noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-62200682969756260412007-12-13T22:54:00.000-06:002007-12-13T22:54:00.000-06:00smallish updates i view through tears for katie. ...smallish updates i view through tears for katie. there are no words for this.Girlplustwohttps://www.blogger.com/profile/07056576921114387218noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-15765469856966778412007-12-13T22:09:00.000-06:002007-12-13T22:09:00.000-06:00I'm so glad you shared that picture of Katie, Davi...I'm so glad you shared that picture of Katie, David and Jakie. It completely warmed my heart.<BR/><BR/>KayTar's video was too cute for words!<BR/><BR/>So sorry about the therapy frustrations. I hate that getting the help KayTar needs is so hard.~aj~https://www.blogger.com/profile/01960895390340332054noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-68572128851640844932007-12-13T21:43:00.000-06:002007-12-13T21:43:00.000-06:00Oh my goodness Kyla. So much to deal with. It am s...Oh my goodness Kyla. So much to deal with. It am so glad Jakie was able to be outdoors with his family.<BR/><BR/>How frustrating about Kaytars services. Even though you understand why, it is still awful to have these disruptions.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-10324423297622359112007-12-13T21:01:00.000-06:002007-12-13T21:01:00.000-06:00You tell Jackie's story so well...I've been follow...You tell Jackie's story so well...I've been following Katie's blog too and the CaringBridge journal. I know then only through the internet, but I weep everytime I read of her pain. <BR/><BR/>I know that it is in our brokenness that God uses us. There must be great things ahead for kate and David. And you, Kyla, are a marvelous communicator. Thank you for sharing your caring heart!<BR/><BR/>And KayTar's singing is WONDERFUL!! She's so full of life.PJhttps://www.blogger.com/profile/10630048078969557476noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-91662942107580803642007-12-13T20:43:00.000-06:002007-12-13T20:43:00.000-06:00What an awesome singing video!! Kaytar is adorabl...What an awesome singing video!! Kaytar is adorable! <BR/><BR/>I'm so sorry to hear things are getting so frustrating. <BR/><BR/>Oh and what a beautiful picture Of Katie, David and Jakie.Junie's Bloghttps://www.blogger.com/profile/02227880461501446699noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-21304798145228534402007-12-13T20:38:00.000-06:002007-12-13T20:38:00.000-06:00What a terrible thng to go through, for you as a f...What a terrible thng to go through, for you as a friend and for them as parents. My god.<BR/><BR/>It really is just unbelievable. My cousin lost her three year old daughter years ago, and man, it's just indescribable.Christinehttps://www.blogger.com/profile/11530892587771136443noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-57576499209479659372007-12-13T19:16:00.000-06:002007-12-13T19:16:00.000-06:00hope you are all well now, and I am holding jake a...hope you are all well now, and I am holding jake and his family in my heart.painted maypolehttps://www.blogger.com/profile/06446625015003854710noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-67566240642403043492007-12-13T15:38:00.000-06:002007-12-13T15:38:00.000-06:00Oh, that picture of Jake and his parents. My heart...Oh, that picture of Jake and his parents. My heart.<BR/><BR/>And the sweetness of Kaytar - what a lovely, lovely little child.Beckhttps://www.blogger.com/profile/13953517447164263617noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-41144360971864543982007-12-13T13:21:00.000-06:002007-12-13T13:21:00.000-06:00This post had me in tears--it was all up and down,...This post had me in tears--it was all up and down, tragedy and joy. That picture of Jake being held by his parents makes me want to cry out loud. And KayTar's sweet voice--also makes me cry.<BR/><BR/>What a world...it's so hard sometimes, so hard.Aliki2006https://www.blogger.com/profile/15763865834765963343noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-48107455623844011732007-12-13T12:49:00.000-06:002007-12-13T12:49:00.000-06:00She is so lovely, Kyla. Such effort to reach the h...She is so lovely, Kyla. Such effort to reach the high notes!!<BR/><BR/>I am so glad you posted that picture of Jake and his parents. Thank you. It is amazing how he was able to give them that time - maybe that's what he's been hanging on for. I wish them peace.<BR/><BR/>HeidiFamily Adventurehttps://www.blogger.com/profile/00093360285075029799noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-85449147762520756722007-12-13T12:46:00.000-06:002007-12-13T12:46:00.000-06:00I'm here via Slouching Mom.I'm so so sad to read a...I'm here via Slouching Mom.<BR/><BR/>I'm so so sad to read about your dear friend, Jakie. I will be thinking of you and of Jakie and of his parents, today.Emilyhttps://www.blogger.com/profile/14022976523785423847noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-598846120268462442007-12-13T12:13:00.000-06:002007-12-13T12:13:00.000-06:00I love you Kyla and I am thinking of you and Jake'...I love you Kyla and I am thinking of you and Jake's family today. That sweet little angel will be at rest soon.flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-78883634984351666242007-12-13T11:17:00.000-06:002007-12-13T11:17:00.000-06:00Wow, hodgepodge indeed! So many different things ...Wow, hodgepodge indeed! So many different things I could comment on, but I'll just add this 2cents...<BR/>I would DEFINITELY call the speech therapists with the district ahead of time, speak to someone "in charge" or whoever assigns patients to therapists, and discuss the hyperlexia with them. That way, they can figure out if any of their therapists DO have experience with or knowledge of it. Kaytar could be assigned to the knowledgeable person, OR it could give the therapists time to familiarize themselves with it, to correspond with doctors/therapists/experts elsewhere who can guide them and have them prepared for Kaytar when she explodes on the scene in February. <BR/><BR/>REMEMBER thru all this... the squeaky wheel gets the grease! (but don't squeak so much that it seems the wheel is beyond repair)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-73999754580841591802007-12-13T11:13:00.001-06:002007-12-13T11:13:00.001-06:00I can't stop thinking of Katie. That picture (and ...I can't stop thinking of Katie. That picture (and the one of her and Jake) just pulled on my heartstrings so much. I can't even imagine.<BR/><BR/>That is so frustrating regarding the therapies, especially with the insurance ending so soon. <BR/><BR/>And that video was precious!! Jingle Bells is definitley Julia's Christmas song favorite!Amyhttps://www.blogger.com/profile/09869227309284462135noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-45865528930120485642007-12-13T11:13:00.000-06:002007-12-13T11:13:00.000-06:00I can't stop thinking of Katie. That picture (and ...I can't stop thinking of Katie. That picture (and the one of her and Jake) just pulled on my heartstrings so much. I can't even imagine.<BR/><BR/>That is so frustrating regarding the therapies, especially with the insurance ending so soon. <BR/><BR/>And that video was precious!! Jingle Bells is definitley Julia's Christmas song favorite!Amyhttps://www.blogger.com/profile/09869227309284462135noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-456960820513446382007-12-13T10:57:00.000-06:002007-12-13T10:57:00.000-06:00Prayers and thoughts for your friends, and you.Sta...Prayers and thoughts for your friends, and you.<BR/><BR/>Stay healthy. Glad you have new delivery methods fro the medicine.<BR/><BR/>How frustrating about the speech therapy. <BR/><BR/>Oh and to add to that, did you see what Bush vetoed yesterday? (Deleted personal opinion and editorial because this is your blog and PG)<BR/><BR/>I hope you get something worked out. What can the school district do?<BR/><BR/>Now to the good stuff. That video of her singing is GREAT! I love it. And that was back and forth interaction with spontaneity. That was almost as cool as the songs.<BR/><BR/>Julie<BR/><A HREF="http://theartfulflower.blogspot.com/" REL="nofollow">Using My Words</A>Julie Pipperthttps://www.blogger.com/profile/03169574697104642479noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-2134340012887146702007-12-13T10:44:00.000-06:002007-12-13T10:44:00.000-06:00My thoughts are with Jakie's family. May they all...My thoughts are with Jakie's family. May they all be at peace today.<BR/><BR/>And -- no more strep for your little angel, okay? She needs that beautiful voice.carriehttps://www.blogger.com/profile/04038972194323564240noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-13167001343932010762007-12-13T10:12:00.000-06:002007-12-13T10:12:00.000-06:00How sweet! And also, how frustrating! So sorry.How sweet! And also, how frustrating! So sorry.Beccahttps://www.blogger.com/profile/05156777853779141522noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-13477864372468877312007-12-13T10:11:00.000-06:002007-12-13T10:11:00.000-06:00We shall be thinking of you today.Best wishesWe shall be thinking of you today.<BR/>Best wishesMaddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-29189577167817864842007-12-13T10:04:00.000-06:002007-12-13T10:04:00.000-06:00What a beautiful picture, I'm so glad they were ab...What a beautiful picture, I'm so glad they were able to see those big brown eyes yesterday. It's all so unimaginable and they are so brave. <BR/><BR/>I know this frustration you're feeling about the therapy and insurance - we're dealing with it too and it surely is maddening on so many levels. Email anytime you want to vent about it hon.Anonymousnoreply@blogger.com