tag:blogger.com,1999:blog-33281653.post5018305268768097849..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: A little help?Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-33281653.post-72720396299607960552007-08-21T19:48:00.000-05:002007-08-21T19:48:00.000-05:00One activity/toy that I didn't see listed is a bag...One activity/toy that I didn't see listed is a bag of strings and ribbons. We just took our 17-month-old on a long trip, and her pouch of strings kept her entranced longer than I would have though possible. I grabbed a variety of gift-wrap ribbons and bows, cloth ribbons, string, twine, yarn and scraps, giving a range of textures, colors, lengths, etc. I knotted and bundled some for some added variety, curled some of the ribbons, and included some gift-wrap tags on some. <BR/><BR/>I will be thinking of you and hoping for the best possible outcome from your hospital stay. I wish you continued courage and energy to make it through, and hope that the answers will come soon.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-42870457446016975532007-08-20T13:03:00.000-05:002007-08-20T13:03:00.000-05:00maybe some chunky beads that she can string on a s...maybe some chunky beads that she can string on a shoelace to make "jewelry" for the two of you?<BR/><BR/>digital [video] camera and laptop so she can perform and then watch herself? would it be possible to set up video conferences with the two of you and the guys left at home? even just talking on the phone with them might keep her occupied for a while.<BR/><BR/>i used to really like the paint with water coloring books where all you need is a cup of water to make the colors appear. much cleaner than regular paints, too! <BR/><BR/>some cheap makeup or face paint you can put on her (or she can put on you?) and a mirror to see the results?<BR/><BR/>and in even more total assvice (though this is probably a new level of ass-ness), my sister (an emt and soon-to-be med student) was telling me about this disorder she learned about called bppv. and as soon as i heard about it, i thought of your kaytar. i'm sure it's something you've already investigated, but just in case it's not i figured i'd put it out there. <BR/>http://www.mayoclinic.com/health/vertigo/DS00534Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-74280071168696230302007-08-20T08:34:00.000-05:002007-08-20T08:34:00.000-05:00Sending you my best vibes.Everyone has suggested g...Sending you my best vibes.<BR/><BR/>Everyone has suggested great things, so I'll just echo the things that I know the Boy would like: portable DVD player, playdoh, Little People & cars, stickers, drawing and painting stuff.<BR/><BR/>Good luck!Run ANChttps://www.blogger.com/profile/06088821030860597465noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-2823829522798375772007-08-20T07:30:00.000-05:002007-08-20T07:30:00.000-05:00OK...you have the toys and games covered. Now just...OK...you have the toys and games covered. Now just remember for the duration of the EEG nothing can go over her head so make sure you have LOTS of button down clothes!<BR/><BR/>One other thing, our children's hospital can provide a gymnastics type mat for the floor, see if yours can. This way she's not sitting on a cold, dusty floor. Much more comfortable for playing.<BR/><BR/>For your sake, I am hoping she has an episode. There is NOTHING more frustrating than being in there and waiting for something to happen. Been there, done that!JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-84821792185930029512007-08-19T22:08:00.000-05:002007-08-19T22:08:00.000-05:00Oh goodness. I hope you get some answers...Oh goodness. I hope you get some answers...Emhttps://www.blogger.com/profile/17574688179517054558noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-74593806386148313982007-08-19T20:57:00.000-05:002007-08-19T20:57:00.000-05:00fingers crossed for you all, sister.fingers crossed for you all, sister.Girlplustwohttps://www.blogger.com/profile/07056576921114387218noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-62588607254985229822007-08-19T16:36:00.000-05:002007-08-19T16:36:00.000-05:00I see you have some fabulous suggestions for enter...I see you have some fabulous suggestions for entertainment already...<BR/><BR/>I really really hope the stars align and the hurricane bypasses you, the tests go as you need them to go, and you get some of the answers you need.<BR/><BR/>And I really, really hope you find a new insurance policy to cover your girl. When you posted about your insurance situation on my recent post - I did know you were looking for a new policy (I remember your post on that topic) --but I didn't realize only your daughter was covered. I'm so sad and angry and horrified on you and your family's behalf. This is a choice that parents shouldn't have to make in the richest country in the world. <BR/><BR/>Fingers crossed on the doctor's appointment for you.ewe are herehttps://www.blogger.com/profile/13339650361453626546noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-81011415211969039652007-08-19T14:57:00.000-05:002007-08-19T14:57:00.000-05:00I'm so glad Dean is headed elsewhere. I'm going t...I'm so glad Dean is headed elsewhere. I'm going to brainstorm on the kid activities and I'll email you later, but sounds like you've been given some GREAT ideas already!~aj~https://www.blogger.com/profile/01960895390340332054noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-64359541941845051412007-08-19T12:24:00.000-05:002007-08-19T12:24:00.000-05:00hi kyla-No two year old in this house (yet)- but I...hi kyla-<BR/>No two year old in this house (yet)- but I am a peds nurse so I had a couple ideas. If you are going to a relatively decent sized peds hospital let the child life department know as soon as you get there (you can just tell your nurse to get a consult for you if they don't automatically come around). They'll have plenty of fun activities on hand that they can bring to the room and they will know to send all available volunteers, visiting clowns and therapy doggies your way. Then maybe you can take a little break yourself and kids always love the novelty of fun visitors. Also try to stay on a schedule- i think that always helps kids in the hospital- even when they're there for just a short time. Her meals should come at about the same times so it's easy to plan a day around those. Good luck- I hope this all gives you some much needed answers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-69998402225793610332007-08-19T10:32:00.000-05:002007-08-19T10:32:00.000-05:00You guys are amazing. Thanks so much. Especially B...You guys are amazing. Thanks so much. Especially Beck, the Goddess of all things Crafty and Child Friendly. ;) All of you have given me GREAT ideas. <BR/><BR/>The room will have Internet, dial-up, but it is internet. The cafeteria has WiFi, though. But they said I have to call and get electronic devices approved, I guess because of the EEG and interference, so we'll see about the laptop. I hope it is okay.<BR/><BR/>And Dean is moving!! He is projected to barely touch Texas at all at the latest predictions.Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-53045271142019697812007-08-19T09:18:00.000-05:002007-08-19T09:18:00.000-05:00oh here's another idea--an old baking sheet and so...oh here's another idea--an old baking sheet and some magnets. letters, numbers, states, or just plain ones from the dollar store. they love to sit and arrange it.Christinehttps://www.blogger.com/profile/04662448292809451387noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-60087020712593887172007-08-19T09:17:00.000-05:002007-08-19T09:17:00.000-05:00oh kyla, i so hope the stars align just right so t...oh kyla, i so hope the stars align just right so that this all happens for you just perfectly.<BR/><BR/>and answers would be wonderful. fingers crossed over here. . .Christinehttps://www.blogger.com/profile/04662448292809451387noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-8870296862885817742007-08-19T08:58:00.000-05:002007-08-19T08:58:00.000-05:00Because I believe more in prayer than in fate, I w...Because I believe more in prayer than in fate, I will be praying...for all of it.<BR/><BR/>For an episode (I cringe to say this, but I understand the need) that the can observe. For conclusive findings in the other tests. For Dean not to disturb things. For you for Kaytar, for time passing peacefully and peace of mind.<BR/><BR/>Love you Kyla. Do you have a laptop? She can watch DVDs and play preschool CD games. And some hospitals have wifi. And maybe at night you can use it to update us on what has happened because we will be thinking of you.Chaotic Joyhttps://www.blogger.com/profile/16743049921159926147noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-25227944824547153412007-08-19T00:01:00.000-05:002007-08-19T00:01:00.000-05:00My suggestion would be a few cheap kiddy games for...My suggestion would be a few cheap kiddy games for the laptop. We have stuff like Dora and Thomas games that do letters, numbers, colors, shapes and also some stories. They were like $7 a piece and Lana LOVES them. <BR/><BR/>Oh, and colorforms has games that Lana loves as well. She has a dress the girl one and one that you build silly faces. We love the silly faces because its very basic but teaches creativity and turn taking. http://www.amazon.com/Colorforms-72503-Miss-Weather-Dress-Up/dp/B00000J05S/ref=pd_bbs_sr_3/104-8825961-1021566?ie=UTF8&s=toys-and-games&qid=1187499605&sr=8-3<BR/><BR/>http://www.amazon.com/University-Games-77953-Silly-Stick-Ons/dp/B00000IZW2/ref=pd_bbs_4/104-8825961-1021566?ie=UTF8&s=toys-and-games&qid=1187499605&sr=8-4Larissahttps://www.blogger.com/profile/16850238619743844341noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-70461081286822464912007-08-18T23:44:00.000-05:002007-08-18T23:44:00.000-05:00We had this strange touchy-feely science teacher g...We had this strange touchy-feely science teacher guy named "Dean" in school. He really liked fire extinguishers. <I>Ahem</I>.<BR/><BR/>That aside, best of luck with the evaluations. Thankfully, many commenters have listed excellent suggestions. My one piece of advice is to string out the novelty by not showing her every single toy in the bag at once. Maybe even let her open each when the time is right as though it is a present?Kariannahttps://www.blogger.com/profile/12508403905884601778noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-75308026032824035372007-08-18T23:01:00.000-05:002007-08-18T23:01:00.000-05:00Oh, those are tough choices. I send you all my vir...Oh, those are tough choices. I send you all my virtual hug vibes, and hope everything is smooth sailing. <BR/><BR/>Meanwhile, we roll with books, puzzles, snacks, a lovey. For trips to inlaws, we used to bring trains (she was into Thomas) and CDs/DVDs as well, so if the hospital will have such equipment, music or vids might help for some stretches. i have also found Pumpkinpie a bit fascinated by photo albums of us, and there are lots of stories to be spun while looking. Crayons and paper are good, too. Does she do tea parties and such yet? Or some small figures like Little People or fingerpuppets to playact with?kittenpiehttps://www.blogger.com/profile/05215443551546036909noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-91031674435751995872007-08-18T21:34:00.000-05:002007-08-18T21:34:00.000-05:00I hope everything goes well :)I hope everything goes well :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-60007731607493981372007-08-18T20:37:00.000-05:002007-08-18T20:37:00.000-05:00Oh, you've got some lovely suggestions, and so I h...Oh, you've got some lovely suggestions, and so I have little to add. Do you have a Mr. Potato Head doll? Or building blocks? Or flash cards? Those are the things that can hold my daughter's attention for more than 10 minutes...<BR/><BR/>And I'll be sending good vibes your way and bad vibes Dean's...NotSoSagehttps://www.blogger.com/profile/04782162947524115936noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-7864308654942263852007-08-18T19:39:00.000-05:002007-08-18T19:39:00.000-05:00I will hope and pray Dean doesn't hit so you c...I will hope and pray Dean doesn't hit so you can go to the appointment!! Well.. we hope just hope Dean doesn't hit period, don't we!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-70321959298076839302007-08-18T19:01:00.000-05:002007-08-18T19:01:00.000-05:00I am sending all the good vibes and positive wishe...I am sending all the good vibes and positive wishes and everything I can think of your way that Dean stays away and you can keep your appointment. Big hugs to you Kyla!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-77177514278103673662007-08-18T16:37:00.000-05:002007-08-18T16:37:00.000-05:00Well. Who needs to say anything after the lovely ...Well. Who needs to say anything after the lovely Beck? She's amazing. I was only going to echo others, anyway -- artsy-craftsy items... Felt boards are great fun.<BR/><BR/>I will keep you in my thoughts and hope hope hope Dean stays away or turns out to be a wimp.Shttps://www.blogger.com/profile/05602868040771218507noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-13913303031267298662007-08-18T15:18:00.000-05:002007-08-18T15:18:00.000-05:00First: I'm praying that everything goes well.Secon...First: I'm praying that everything goes well.<BR/>Second: <BR/>1. sticker books - you can grab a wide variety of inexpensive ones from Dover. Some had a picture of a doll that you can endlessly redress (until the stickers die), some have a little scene that you can put pictures in. They're about a buck each, so I would grab a stack.<BR/>2. A dolly with a suitcase of clothing to put on and off. Also, dolly accessories - bottles, disposable diapers, pretend bottles of baby stuff....<BR/>3. Fat baby markers and a colouring book.<BR/>4. Some familiar storybooks from home and a few inexpensive new books.<BR/>5. A deck of playing cards. Mama can play 52 pick up, the most fun game EVER.<BR/>6. Wooden clothespin doll blanks - you can use the fat markers to draw faces.<BR/>7. Lace-up cards. You can make a few of those pretty easily. <BR/>If you need more ideas, let me know.Beckhttps://www.blogger.com/profile/13953517447164263617noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-39465399840318049442007-08-18T14:47:00.000-05:002007-08-18T14:47:00.000-05:00Positive vibes are on their way!My suggestions are...Positive vibes are on their way!<BR/><BR/>My suggestions are: paper, writing utensils of all kinds, and stencils. And something to put behind the paper like a lap-desk. <BR/><BR/>Play-dough. Beads and pipe cleaners (or string) for stringing beads. Scissors and junk mail for cutting practice. Bubbles for blowing. Bubble-wrap for popping. The entire line of Melissa & Doug toys, like the shapes & laces. <BR/><BR/>JF has to sit still for five-ten minutes each day for his Pulmicort, so we've come up with a lot of sitting activities. <BR/><BR/>Oh, and music CDs, like MilkshakeMusic.com.WarriorMomhttps://www.blogger.com/profile/10445220100886614461noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-58088082441817389242007-08-18T14:08:00.000-05:002007-08-18T14:08:00.000-05:00every piece of my thoughts are with you.every piece of my thoughts are with you.flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.com