tag:blogger.com,1999:blog-33281653.post428721964151332176..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: My little SisyphusKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-33281653.post-12495312359319223682008-01-23T12:56:00.000-06:002008-01-23T12:56:00.000-06:00Oh man Kyla, I didn't realize yall were back to th...Oh man Kyla, I didn't realize yall were back to this. Thank God for Pediasure. I just wish there was some simple answer out there to help. I can only imagine how hard this is.<BR/><BR/>Big Hugs.Amyhttps://www.blogger.com/profile/09869227309284462135noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-42411140680763602272008-01-23T09:48:00.000-06:002008-01-23T09:48:00.000-06:00I am sorry you are going through this again!I have...I am sorry you are going through this again!<BR/><BR/>I have a question for you. Has Kay Tar ever had an oral motor consultation? I know she has had speech therapy, but I am talking about an actual feeding eval? I work at a therapy center for kids up here in the Seattle area and a Dr. Gay Lloyd Pinder, (who is a founder of our center) works there. She is pretty well known in the national circles as far as feeding--I have seen the hope she can offer parents, and think/hope maybe you can find someone in your area to help. Dr. Pinder has helped many families avoid G-tubes--anyway--I guess I want you to know that there is help out there and hope.....<BR/>Kim Kimhttps://www.blogger.com/profile/13029664492284742183noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-61994020026042594852008-01-23T01:59:00.000-06:002008-01-23T01:59:00.000-06:00I'm sorry, Kyla. Do you remember how long it took ...I'm sorry, Kyla. Do you remember how long it took after the last episode before she starting eating mroe again? Is it taking longer this time??<BR/><BR/>HeidiFamily Adventurehttps://www.blogger.com/profile/00093360285075029799noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-81965670975690412452008-01-22T22:09:00.000-06:002008-01-22T22:09:00.000-06:00Oh, baby girl. Mama and little girl...Oh, baby girl. Mama and little girl...flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-51041701204324305662008-01-22T21:40:00.000-06:002008-01-22T21:40:00.000-06:00Oh, Kyla. I always wish I had something meaningful...Oh, Kyla. I always wish I had something meaningful or helpful to say. I just hope that KayTar goes back to her food.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-66378536713849913292008-01-22T18:56:00.000-06:002008-01-22T18:56:00.000-06:00This has got to be so scary, I can't even imagine....This has got to be so scary, I can't even imagine. Thinking of you and Kaytar.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-36548914757178867402008-01-22T17:30:00.000-06:002008-01-22T17:30:00.000-06:00Kyla, I looked for an email addy to privately emai...Kyla, I looked for an email addy to privately email you. I am a wealth of information when it comes to medical mysteries. I have worked in the medical field and also had a special needs child myself. Please email me if you have a moment at Tamm06@aol.com<BR/>You can visit my website at www.caringbridge.org/oh/skyecoleycole I have LOTS of ideas to share with you, in the meantime, your and sweet Kaytar are in my prayers! <BR/>TammAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-26479839378513339722008-01-22T16:40:00.000-06:002008-01-22T16:40:00.000-06:00Oh man, I had no idea it had gotten to "that point...Oh man, I had no idea it had gotten to "that point" again with KayTar's eating. I just can't imagine the frustration. It's just impossible for me to fathom NOT wanting to eat for days on end. I just wish there was some way to get into KayTar's head and figure out why she's not hungry (or at least why she thinks she's not hungry).<BR/><BR/>((HUGS)) to you Kyla. I know this has to be so hard.~aj~https://www.blogger.com/profile/01960895390340332054noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-25940518666752174402008-01-22T16:34:00.000-06:002008-01-22T16:34:00.000-06:00She really *does* look healthy. I had success (?) ...She really *does* look healthy. <BR/><BR/>I had success (?) with one of my clients who would take TINY bites of food. And when I say TINY I really mean bites about the size of the word TINY right here. She's been tubed for ... well long enough that she'd never eaten solids (so this is more like what RM referred to with Bug, trying to get her off the tube)...<BR/><BR/>anyway... she was a competitive sort and the day she ate the most was the day I was all off handed and like 'hey see how big of a bite I can take' and then took something about the size of TINYTINY so it looked like something she could do - and she did. <BR/><BR/>She, like the little 'Tar was also into the spicy, strong flavored food. <BR/><BR/>Do you need to do a blog post on getting more of those nipples in stock?dawn224https://www.blogger.com/profile/12261307900362127378noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-28402455849353159912008-01-22T16:33:00.000-06:002008-01-22T16:33:00.000-06:00i don't have any advice as this would drive me ble...i don't have any advice as this would drive me bleeping mad.Girlplustwohttps://www.blogger.com/profile/07056576921114387218noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-17025166116263277932008-01-22T15:08:00.000-06:002008-01-22T15:08:00.000-06:00I had no idea that 'no food' really meant 'No.Food...I had no idea that 'no food' really meant 'No.Food.Period.' Wow.<BR/><BR/>I'm so sorry this is such a struggle? Perhaps another children's eating disorder expert...?ewe are herehttps://www.blogger.com/profile/13339650361453626546noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-47865223027705596402008-01-22T13:17:00.000-06:002008-01-22T13:17:00.000-06:00Damn you Sisyphus (*shakes fist in air*) two steps...Damn you Sisyphus (*shakes fist in air*) two steps forward, one step back. I'm sorry for this added frustration and I really hope that the kindergarten can be achieved - as impossible as it seems today.motherbumperhttps://www.blogger.com/profile/16053978199395919666noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-63632668074581982742008-01-22T13:02:00.000-06:002008-01-22T13:02:00.000-06:00maybe a little karo syrup in her bottle? We tried...maybe a little karo syrup in her bottle? We tried that for my fairy god daughter when her allergies, texture issues, and PDD kept her from eating. It worked, for us,because it didn't change the consistency of her bottle. I am sorry you are going through this- I cried just trying to get Sof to eat.amandahttps://www.blogger.com/profile/02775497356720247278noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-37672710251377874172008-01-22T12:53:00.000-06:002008-01-22T12:53:00.000-06:00Oh Kyla, Of all this issues with Kay-Tar, this one...Oh Kyla, <BR/>Of all this issues with Kay-Tar, this one must give you the most fear and anxiety. We're mothers, right? We want to feed out children and make them plump.Madhttps://www.blogger.com/profile/13416585771017767796noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-41419785681284640262008-01-22T12:48:00.000-06:002008-01-22T12:48:00.000-06:00Oh, Kaytar. This is not the direction we were hopi...Oh, Kaytar. This is not the direction we were hoping to head. I know you worry because you want her weight to remain stable, healthy. I'm sorry, I don't really have any advice, just praying the desire to eat will return before it affects her growth.Katiehttps://www.blogger.com/profile/07682901624636941122noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-57062697135080645612008-01-22T12:13:00.000-06:002008-01-22T12:13:00.000-06:00I am so so sorry about this frustrating and anxiou...I am so so sorry about this frustrating and anxious patch you're in. I think it's got to be one of the most frustrating things--watching your kid just.not.eat.Aliki2006https://www.blogger.com/profile/15763865834765963343noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-17934547736755365902008-01-22T12:06:00.000-06:002008-01-22T12:06:00.000-06:00So many parents complain about their kids not eati...So many parents complain about their kids not eating 'properly' (including me). Then I read this post and I think we have no idea about feeding challenges. None.<BR/><BR/>I'm sorry it's going so poorly. I hope you get the damn boulder to stay on top of the hill, soon.Janethttps://www.blogger.com/profile/00567374243896229606noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-28244095510307519902008-01-22T11:08:00.000-06:002008-01-22T11:08:00.000-06:00Damn, Kyla. That would be so incredibly hard for ...Damn, Kyla. That would be so incredibly hard for me, as a parent, too.<BR/><BR/>I'm really sorry. I was thinking along Julie's lines -- maybe she associates food with throwing up, and throwing up frightens her, so she wants to avoid food?Shttps://www.blogger.com/profile/05602868040771218507noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-48432102189366822822008-01-22T10:19:00.000-06:002008-01-22T10:19:00.000-06:00I am so so sorry! I can sense your frustration. ...I am so so sorry! I can sense your frustration. I can't imagine.Beccahttps://www.blogger.com/profile/05156777853779141522noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-46941461460285486642008-01-22T10:12:00.000-06:002008-01-22T10:12:00.000-06:00F*cking Sisyphus. I hate that guy and all he repr...F*cking Sisyphus. I hate that guy and all he represents.<BR/><BR/>Well, if it makes you feel any better, she looks perfectly fine...not too thin at all. <BR/><BR/>Hailey goes days sometimes without eating but I know it's not the same since she has days when she eats everything in the house.<BR/><BR/>I wish it weren't so damned complicated for you guys.Jenny, the Bloggesshttps://www.blogger.com/profile/13718481135182612620noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-28524406013423871362008-01-22T10:10:00.000-06:002008-01-22T10:10:00.000-06:00Oh dear. I sooo understand this problem. I have no...Oh dear. I sooo understand this problem. I have no solutions as Bug was tubed. Our problem stemmed from trying to get him off the tube...but he wouldn't/couldn't eat.<BR/><BR/>There is no danger of her being tubed is there?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-85798592077925269892008-01-22T09:53:00.000-06:002008-01-22T09:53:00.000-06:00Oh Kyla, I'm so, so sorry. Food is so basic, the b...Oh Kyla, I'm so, so sorry. Food is so basic, the bottom line thing we feel compelled to provide for our children for their health. She is denying and you are being denied and it has to be so rough.<BR/><BR/>You must indeed feel like Sisyphus. I'm so sorry.<BR/><BR/>What does the expert say?<BR/><BR/>I know kids so easily associate food with power and/or pain when they have problems. Does she believe food is responsible for making her feel sick or get sick?<BR/><BR/>I don't know how else to phrase this because it's how the doctor explained it to us, but kids are wicked superstitious, you know? They look for reason, concrete reason, for bad things, something they can control.<BR/><BR/>Does that ever apply to KayTar? With food, I mean?<BR/><BR/>Here's hoping you overcome the obstacle, whatever it is. I 100% believe you, of course, and know it's so tough for you.Julie Pipperthttps://www.blogger.com/profile/03169574697104642479noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-42896013185606330322008-01-22T09:45:00.000-06:002008-01-22T09:45:00.000-06:00I don't even know what Sisyphus means. But I'm so...I don't even know what Sisyphus means. But I'm sorry she's back to this.<BR/><BR/>I do believe you. I know you're not exaggerating. It is so hard to watch your kid essentially starve themselves.<BR/><BR/>I don't want you to have to worry like this. You've got enough on your plate. Ha! Plate! On a post about food issues. <BR/><BR/>Sorry, not that funny. You had to be there. :)Kristinhttps://www.blogger.com/profile/06236801550420049457noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-39266275910549991312008-01-22T09:38:00.000-06:002008-01-22T09:38:00.000-06:00I keep writing to you about boosting the calories ...I keep writing to you about boosting the calories of those little jars. Have you tried that?<BR/><BR/>I know your frustration we've been through that too. Sickness always causes food eating regression.<BR/><BR/>In fact we currently have the high calories diet in place and manage to turn those 70 to 80 calories into 200 with the aide of melted soy cheese and olive oil. <BR/><BR/>Remember to look at the big picture. Her ups are much higher than they used to be.<BR/><BR/>A lot can happen in two years.anonhttps://www.blogger.com/profile/11466009511849751575noreply@blogger.com