tag:blogger.com,1999:blog-33281653.post3023715199740369570..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: Record BreakerKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-33281653.post-49195340036681595632009-06-10T20:20:38.698-05:002009-06-10T20:20:38.698-05:00Oh, Kyla, oh...I'm so sorry.Oh, Kyla, oh...I'm so sorry.mamatuliphttps://www.blogger.com/profile/02692442843330582571noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-87282270934618351672009-06-08T10:34:06.162-05:002009-06-08T10:34:06.162-05:00CMK: KayTar's used to include the head tilt, b...CMK: KayTar's used to include the head tilt, but she outgrew that part and the episodes continued. BPT was on the radar, but then she lost the torticollis part. LOL. It does seem to be a migraine-variant of some kind, but just not completely categorized yet, I guess. We just wish they would stop!Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-85601095247568564192009-06-08T10:15:30.116-05:002009-06-08T10:15:30.116-05:00Hi there,
I came across your blog while researchi...Hi there,<br /><br />I came across your blog while researching for my son. He has these episodes too. They sound just like poor Kaytar's. He's 14 months old not and they seem to be coming every 60 days or so. He has the same light sensitivity, vomiting every 10-15 minutes. And he just "goes away". That's the worst part I think. When it's over it was like nothing ever happened. The longest was 15 hours for him so far. His neuro thinks it's benign paroxysmal torticollis because his head tilts to the side when it happens. <br />We also have low tone, hyper-flexibility and gross motor delays.<br />And now that we're trying to make the switch from purees to table foods I'm noticing a very sensitive gag reflex.<br />I'm so sorry you have to go through this. I know exactly how you feel. Hang in there, good luck.Xinabean.blogspot.comhttps://www.blogger.com/profile/04564897709568816912noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-75810421341829298342009-06-08T08:00:08.637-05:002009-06-08T08:00:08.637-05:00Watching your child suffer is agony. Thinking of y...Watching your child suffer is agony. Thinking of you both.Janethttps://www.blogger.com/profile/00567374243896229606noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1314470201796071152009-06-07T16:01:57.426-05:002009-06-07T16:01:57.426-05:00Oh, Kyla. Your words so clearly indicate your agon...Oh, Kyla. Your words so clearly indicate your agony. And I'm sure what we read is only a tiny, tiny understanding of what you feel when KayTar is away from you and in your arms at the same time.nataliehttps://www.blogger.com/profile/10758393907259378213noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-35655804428400844342009-06-07T15:34:14.520-05:002009-06-07T15:34:14.520-05:00no no no! my lord, i cannot believe that little an...no no no! my lord, i cannot believe that little angel has to go through this, and that you have to just....wait, this way, never knowing exactly what's going to happen. sigh.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-47261425757106571272009-06-07T15:27:59.321-05:002009-06-07T15:27:59.321-05:00I am so sorry to hear about this episode and the r...I am so sorry to hear about this episode and the return of regular ones! Heartbreaking. Am thinking of you and sending positive thoughts for an answer and relief. Too much, it is all too much.Lori at Spinning Yellowhttps://www.blogger.com/profile/09820406823337728514noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-62068769407774219912009-06-07T13:35:12.056-05:002009-06-07T13:35:12.056-05:00Ugh, I just hate it. Hate it for KayTar. Hate it...Ugh, I just hate it. Hate it for KayTar. Hate it for your entire family.<br /><br />Keeping you guys in my prayers.~aj~https://www.blogger.com/profile/01960895390340332054noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-10628273507825149792009-06-07T09:41:17.115-05:002009-06-07T09:41:17.115-05:00Kyla I am so very sorry this happened.Kyla I am so very sorry this happened.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-76327842606253717462009-06-07T09:22:57.233-05:002009-06-07T09:22:57.233-05:00Poor baby and poor Mama. :( I'm sorry!Poor baby and poor Mama. :( I'm sorry!Amy Yhttps://www.blogger.com/profile/06303953793008491241noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-51513875443237333882009-06-06T22:34:13.833-05:002009-06-06T22:34:13.833-05:00oh Kyla. how terrible.oh Kyla. how terrible.painted maypolehttps://www.blogger.com/profile/06446625015003854710noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-4493513316770758452009-06-06T22:30:12.220-05:002009-06-06T22:30:12.220-05:00Oh, that sounds so horrible. Really, really awful....Oh, that sounds so horrible. Really, really awful. I'm so sorry.alejnahttps://www.blogger.com/profile/07220142310790773053noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-76673578318769662292009-06-06T21:40:24.666-05:002009-06-06T21:40:24.666-05:00I'm so sorry that both of you are having to go...I'm so sorry that both of you are having to go through this. I'm thinking of you both.mommamiahttps://www.blogger.com/profile/12776580811028926584noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-74574433409630911812009-06-06T21:16:33.370-05:002009-06-06T21:16:33.370-05:00This is horrible and I'm so sorry for KayTar a...This is horrible and I'm so sorry for KayTar and all of you.<br /><br />What causes her pain? Is the pain in her head (headache)? Or where?<br /><br />That poor gorgeous girl.Gretchenhttps://www.blogger.com/profile/14395850914692471354noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-24899440050792598432009-06-06T17:39:21.280-05:002009-06-06T17:39:21.280-05:00I'm so so sorry... your poor girl.
I hope she...I'm so so sorry... your poor girl.<br /><br />I hope she's feeling better today.ewe are herehttps://www.blogger.com/profile/13339650361453626546noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-65287988786766140942009-06-06T17:30:02.365-05:002009-06-06T17:30:02.365-05:00That is just awful. And heartbreaking.That is just awful. And heartbreaking.InTheFastLanehttps://www.blogger.com/profile/09691830067979224059noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-77922430245132474742009-06-06T16:11:09.961-05:002009-06-06T16:11:09.961-05:00How awful. It is so hard to read (and harder to e...How awful. It is so hard to read (and harder to experience, I am sure) after all the wonderful progress she has made in other areas. So sorry.Beccahttps://www.blogger.com/profile/05156777853779141522noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-25741958460068920852009-06-06T15:23:26.864-05:002009-06-06T15:23:26.864-05:00So so sorry to read this post Kyla. When is that l...So so sorry to read this post Kyla. When is that little one (and you too) gonna be cut a break!?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-71005641068303849852009-06-06T14:57:37.555-05:002009-06-06T14:57:37.555-05:00This breaks my heart for your family. I pray ther...This breaks my heart for your family. I pray there are answers and relief for your sweet girl SOON!Niksmomhttps://www.blogger.com/profile/14715465327343655483noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-55330312506425337252009-06-06T14:12:40.117-05:002009-06-06T14:12:40.117-05:00Hugs.
Prayers.
Thinking of you two!Hugs. <br />Prayers.<br /><br />Thinking of you two!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-50052191807575815412009-06-06T14:10:02.293-05:002009-06-06T14:10:02.293-05:00My heart just hurts for her.
And for you.
Sigh....My heart just hurts for her. <br /><br />And for you.<br /><br />Sigh.Redneck Mommyhttp://theredneckmommy.comnoreply@blogger.com