tag:blogger.com,1999:blog-33281653.post2241064743929772570..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: FailingsKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-33281653.post-33833726998211473662006-12-23T21:59:00.000-06:002006-12-23T21:59:00.000-06:00Are you feeling any better today? Merry Christmas ...Are you feeling any better today? Merry Christmas to you and your family. :)<br />xoxoAndreahttps://www.blogger.com/profile/11584642250579986707noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-76143840852329161502006-12-22T20:47:00.000-06:002006-12-22T20:47:00.000-06:00Oh, wow. You are such an incredible mother that I...Oh, wow. You are such an incredible mother that I can't believe that that post was titled, "Failings". That's probably the rest of us on a good day. <br /><br />I know that likely doesn't make you feel any better, but take heart...we're all human. I wouldn't worry about your pediatrician. One of the things about e-mail is that you can't always get things across. I think it's likely that she was not only saying that she was always available, but also commending your calm reaction.<br /><br />I won't have much chance to visit over the next week or more, so I am sending you my best wishes for a Merry Christmas!NotSoSagehttps://www.blogger.com/profile/04782162947524115936noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-61800626942470221052006-12-22T06:35:00.000-06:002006-12-22T06:35:00.000-06:00I wish I could give you a big hug... it all sounds...I wish I could give you a big hug... it all sounds so stressful and I certainly have times when I forget things for school, deadlines etc. The only thing that helps is a big diary that I put everything in immediately. If it isn't in the diary it doesn't happen/exist.<br /><br />BTW, I agree with your interpretation of your pediatrician's comments - I think she was giving you *permission* to call her *whenever* you are worried etc. I don't think she was criticising your actions.Emhttps://www.blogger.com/profile/17574688179517054558noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-47989919674119637002006-12-22T06:29:00.000-06:002006-12-22T06:29:00.000-06:00One thing you are quickly learning is they don't m...One thing you are quickly learning is they don't make a handbook to go with our special needs kids. We have to figure it out on our own. And it's darn tough...especially when you have a typical child to take care of also.<br /><br />You didn't fail, you're just still trying to find your way on this journey. And realize...YOU ARE NOT ALONE!<br /><br />Your kids are loved and well cared for and that is all you can do. You will figure the rest out in time.<br /><br />Try and relax and have a happy Holiday Season.<br /><br />JenJSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-49438255882940126752006-12-22T00:56:00.000-06:002006-12-22T00:56:00.000-06:00I have so been there and still am there. I can onl...I have so been there and still am there. I can only tell you that us other moms going through the episode thing didn't call each episode either. It is such a helpless feeling riding it out and if you are like me you wonder...will this be the one that never ends? So the choice you made is same as many parents after going the emergency route and all. <br /><br />It doesn't seem like the periactin is working for Katie. Have you talked about trying to get flunarizine hydrochloride? They perscribe it in Canada. I know one BPT girl took it with good success. Interestingly it's a calcium channel blocker. The periactin seemed to work well for Anika but we were going to purse the flunarizine hydrochloride if it didn't.<br /><br />At our metbolic appointment they were so disappointed we didn't get her blood drawn. But I didn't know if she was regular sick or episode sick. Now I know it doesn't matter but I didn't but I felt like such a fool. It just seemed so obvious what we should have done after the fact but beforehand we didn't know so we thought we'd ask them. Sometimes you just can't know...But enough about us.<br /><br />Don't beat yourself up too much. You are going through some difficult times and handling things as best you can. You can't always know what's right...just do the best you can. <br /><br />Katie is lucky to have such a wonderful family to help her through this journey. And of course you are lucky to have her too.<br /><br />Big cyber hugs to you.anonhttps://www.blogger.com/profile/11466009511849751575noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-39568827197378250862006-12-22T00:26:00.000-06:002006-12-22T00:26:00.000-06:00Oh, I am so sorry for what you are going through. ...Oh, I am so sorry for what you are going through. I'm not sure I can say anything helpful, because you already expressed that this is out of your control, which I agree with. But I am glad you shared it with us and that I got to listen.<br /><br />Although you feel like you failed, you know that this is not your fault. But it still feels crappy, considering it is concerning the most valuable people in your life.<br /><br />You ARE a wonderful mother -- very nurturing, no doubt. Your daughter LOVES YOU. That is what matters. You are the one who has been there for her all along, and that is what she knows.<br /><br />Hugs.Andreahttps://www.blogger.com/profile/11584642250579986707noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-26776154857967655662006-12-21T19:15:00.000-06:002006-12-21T19:15:00.000-06:00What Bub and Pie said about KayTar - take it to he...What Bub and Pie said about KayTar - take it to heart. This was you trying to be a calm, good mama in a crisis for your baby. <br /><br />Do you want to hear about me setting the stove on fire tonight for the second time this week? How about my forgetting that yesterday was pizza day at school and so my poor little kids had sandwiches while their friends had hot pizza? I'm sleep deprived, I'm rushed, I'm distracted. THESE THINGS HAPPEN. Don't beat yourself up - you're just normal and you're doing a GOOD job.Beckhttps://www.blogger.com/profile/13953517447164263617noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-53985674788115639312006-12-21T14:05:00.000-06:002006-12-21T14:05:00.000-06:00What an impossible position you are in. In order ...What an impossible position you are in. In order to remain calm and supportive to Kay-tar, you have to cultivate a hopeful and accepting attitude - you can't freak out during every episode, because that wouldn't help her. But somehow you have to also retain the ability to freak out when it's necessary. And how do you know when it's necessary to freak out? You don't. You might be able to establish some parameters - i.e. call if the episode lasts longer than x minutes - but you can't anticipate everything.<br /><br />It sounds to me like what happened the other day was that your essential coping mechanism worked a little too well - you disciplined yourself to remain calm, only to be told after the fact that you should have panicked, you should have become alarmed. There's just no way to "succeed" in this situation. And it doesn't sound as if your inaction has changed anything - it's not like there was something they would have been able to do. <br /><br />As for the school stuff, one thing that reading blogs has done for me this year is to make me not AT ALL eager for Bub to start school next year. I know I'll be right there with you, forgetting things and missing deadlines.Beahttps://www.blogger.com/profile/15957626443087438904noreply@blogger.com