tag:blogger.com,1999:blog-33281653.post1980224536638069928..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: More effective than coffee!Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-33281653.post-32524723354352735252010-11-14T08:40:52.816-06:002010-11-14T08:40:52.816-06:00I admire all that you do in just your day-to-day l...I admire all that you do in just your day-to-day life. You're amazing.jo(e)https://www.blogger.com/profile/01488562158252331555noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-77138995297988964632010-11-13T23:25:33.603-06:002010-11-13T23:25:33.603-06:00Jeez! I'll take my coffee, thanks. I think a...Jeez! I'll take my coffee, thanks. I think about all the little somatic complaints I blow off from my kids and how different it would be if I was living in your shoes!Gizabeth Shyderhttps://www.blogger.com/profile/06730800855783255834noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-13767633564197416962010-11-13T22:17:24.629-06:002010-11-13T22:17:24.629-06:00Kyla,
Does KayTar's tube feed directly into...Kyla, <br /><br />Does KayTar's tube feed directly into her stomach or her jejunum?If her stomach, why? Perhaps, she would do better if the tube went into her jejunum! Just a thought.<br /><br />I have a 14 French; tube that goes into the jejunum and a pacemaker that sits in a pocket in the abdominal area and the leads are attached to the pylorus.<br /><br />My feeds are 20-24 hours a day. My day rates are slow (30 cc per hour) and at bedtime (40 cc per hour). Currently, I am on Vivonex RTF. My out of state GI doctor would rather me use Vivonex TEN but it requires a blender and once you make it, it's only good for 24 hours and it was a PITA. It is the only formula he will allow patients with idiopatheic gastroparesis use. <br /><br />Sometimes I dilute the formula with water if I am not feeling well (70 W /30 F). Something is better than nothing as far as I am concerned.<br /><br />Most of my meds go through the tube, some I give myself IM or SC and one gets rubbed into the wrists (phenergan). I may end up with a PORT by year's end.<br /><br />Hope you have less excitement tomorrow.<br /><br />If I can get a picture of my CT scan I will send it to KayTar to see. I think she will find the tube and the pacemaker cool to look at.<br /><br />How are you feeling? I know you mentioned having bronchitis a week or so ago. I hated being "the one" that coughs for the entire 3 hour class. And with the severity of my asthma and the fact that I get some kind of illness with COUGH every 6 weeks from September-May. And the cough I get, OMG!<br /><br />Take care,<br /><br />JodiAnonymousnoreply@blogger.com