tag:blogger.com,1999:blog-33281653.post1950920257658777389..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: Sleep Study #2 ResultsKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-33281653.post-38216974655426955442012-07-15T01:26:51.838-05:002012-07-15T01:26:51.838-05:00Bless KayTar's heart! I can't believe the ...Bless KayTar's heart! I can't believe the pulmonologist isn't doing anything! Those are lousy results! I will be praying. Keep me updated!Shellyehttps://www.blogger.com/profile/11963983688760711878noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-19834520644255508752012-07-08T11:45:06.416-05:002012-07-08T11:45:06.416-05:00I really hope the pulmonologist comes up with a go...I really hope the pulmonologist comes up with a good treatment solution for KayTar -Higher O2 and better sleep will mean more energy, which is vital for her.dleflerhttps://www.blogger.com/profile/10699612034298659706noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-59798657763069484992012-07-04T01:37:24.355-05:002012-07-04T01:37:24.355-05:00I am sorry that you are having such a hard time ge...I am sorry that you are having such a hard time getting help. I hope this week brings answers. The increase is scary.treatment of licehttp://www.licesuk.com.au/noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-88500349421403046882012-07-01T22:17:24.558-05:002012-07-01T22:17:24.558-05:00I am sorry that you are having such a hard time ge...I am sorry that you are having such a hard time getting help. I hope this week brings answers. The increase is scary.Jennahttps://www.blogger.com/profile/01918621140126333891noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-49699202052725995572012-07-01T21:55:40.419-05:002012-07-01T21:55:40.419-05:00Her pulmonologist is also a sleep specialist, but ...Her pulmonologist is also a sleep specialist, but if she doesn't get back to us soon, we'll follow up with someone else. She has an appointment in August, but I don't really want to wait that long. My big concern is that unlike OSA, CSA is a "failing" of the brain, so progression may have other implications with K's underlying disorder. That is just speculation on my part, though! The disease she is suspected of having is a disease of energy metabolism, so if that is the case, I don't want her working against extra roadblocks like this if we can fix part of it for her. Thanks, Chelsea!Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-5942487607752742472012-07-01T21:28:49.062-05:002012-07-01T21:28:49.062-05:00Wow, that is definitely worrisome. You're rig...Wow, that is definitely worrisome. You're right about her AHI being high. Even at 2.0 it was a little high for her to be as high functioning as possible during the daytime. Under 1.0 would be ideal, as low as under .4, if possible. The nice thing about some of the machines they are issuing now (and you might ask about this) is that some of them actually monitor AHI during use, and you can check your own stats. Some don't have that feature for patient use, but if you learn to read them, you can still monitor them yourself and alert doctors if her numbers go the wrong way. I will say her rising numbers don't surprise me. I had a sleep doctor explain it to me like this:<br /><br />If you have a brick in a bag and you carry it around, it's not really that heavy, and it doesn't cause you any problems. You pick up another brick the next day, and put it in your bag. It still doesn't bother you and isn't that heavy. When you add a brick every day, six months later, you add one brick too many and you have a broken back. Sleep disorders are definitely that way. Because sleep can affect so many different functions of the body, particularly things which involve the pituitary gland communicating with other body parts (as you probably know, that generally happens during REM sleep and with sleep disorders, often patients CAN'T experience REM sleep), the symptoms and problems just build up. These symptoms may include things that have no outward relation to sleep, such as thyroid disorders, calcium depletion, weight gain, morning headaches, etc. <br /><br />Have you considered asking the sleep clinic to recommend a sleep specialist who could take a look at the study and prescribe a course of treatment? If the other doctors want to play hands-off, a sleep specialist might still be willing. I would recommend mine, but he's in the Huntsville area.Chelshttps://www.blogger.com/profile/12126285563407517587noreply@blogger.com