tag:blogger.com,1999:blog-33281653.post6892592027232913179..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: In translationKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-33281653.post-85704681022732341162007-12-19T15:35:00.000-06:002007-12-19T15:35:00.000-06:00You and Kaytar never cease to amaze me Kyla. I'm a...You and Kaytar never cease to amaze me Kyla. I'm also continously blown away by how parallel our lives seem to be at times. I relate to every word on this post but could not have articulated it nearly as well, it's almost therapy for me to read your writing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-881622671300932472007-12-19T14:55:00.000-06:002007-12-19T14:55:00.000-06:00We are all so proud of KayTar and the amazing prog...We are all so proud of KayTar and the amazing progress she has made this past year. She's come such a long way. I can't imagine what the future holds as she gets the therapy that she needs.<BR/><BR/>You are doing a terrific job, Kyla, as her mentor, her advocate and her mother. Bravo for you!~aj~https://www.blogger.com/profile/01960895390340332054noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-72636877255947424152007-12-19T08:21:00.000-06:002007-12-19T08:21:00.000-06:00brilliant. perceptive. loving.what a post, kyla....brilliant. perceptive. loving.<BR/><BR/>what a post, kyla.<BR/>what a mom you are.Shttps://www.blogger.com/profile/05602868040771218507noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-59727035892152330732007-12-18T16:01:00.000-06:002007-12-18T16:01:00.000-06:00In my experience - a good DHOH (DHH depending on y...In my experience - a good DHOH (DHH depending on your districts acronym for Deaf and Hard of Hearing Teacher) is just as good as an SLP - the language training seems to be similar and they both are on teams for kiddos with multiple issues. <BR/><BR/>You are doing well. You observe things in a concrete fashion and give measurable information. You are the parent we like to work with - so much easier than, say, the parent I had who thought her kiddo was mentally contemplating the abstract concept of governments when he... well... so wasn't....dawn224https://www.blogger.com/profile/12261307900362127378noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-11025162768517251952007-12-18T12:48:00.000-06:002007-12-18T12:48:00.000-06:00I'm always blown away by her cleverness, you know:...I'm always blown away by her cleverness, you know: her sheer determination to adjust to the awkward conventions of her world and her bombastic success when it comes to fitting in.Madhttps://www.blogger.com/profile/13416585771017767796noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-39768260566284738142007-12-18T10:22:00.000-06:002007-12-18T10:22:00.000-06:00Oh Kyla, you have such an amazing way with words. ...Oh Kyla, you have such an amazing way with words. You always make me tear up.<BR/><BR/>If I didn't know Kaytar's background I would not have noticed that there was anything different about her from the average 3 year old. In time her mimicry might become more noticeable or it might go away entirely. Regardless, she will be loved simply for her sweet, smiling, happy ways and will find a way to fit in. Kids are so resilient.Jenny, the Bloggesshttps://www.blogger.com/profile/13718481135182612620noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-52359615289901208832007-12-18T07:41:00.000-06:002007-12-18T07:41:00.000-06:00I could have written these exact words about my so...I could have written these exact words about my son. He is diagnosed PDD-NOS. Last year he started integrated preschool at 2.5. By the end of the school year he "hid" his disabilities/gaps so well they pulled most programming. I gave it one month and was back in a meeting with the district saying, it took one month and he failed...see these gaps and these? I tried to tell you they were there and you didn't listen. Once month without services and we lost 3+ months of development. We ended up getting more services than he had to begin with!<BR/><BR/>Know what you want, and don't give in. If the meeting is NOT going your way, table the meeting, go home, collect more educational/therapy ammo and go back with supporting evidence with why KayTar needs this or that. You'll get it, you are a great advocate.JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-74277764677106597572007-12-18T07:38:00.000-06:002007-12-18T07:38:00.000-06:00You do have to be her advocate, but with a post li...You do have to be her advocate, but with a post like this it is obvious that you are a powerful one. What could they ask that you do not know.<BR/><BR/>And "Have it please". Oooof. The sweetness of that phrase. It's so adorable.Chaotic Joyhttps://www.blogger.com/profile/16743049921159926147noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-4451513761343178832007-12-18T05:19:00.000-06:002007-12-18T05:19:00.000-06:00I've said it before but I'll say it again. She is...I've said it before but I'll say it again. She is so lucky to have you. And you her.Run ANChttps://www.blogger.com/profile/06088821030860597465noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-39908956638739958072007-12-18T05:10:00.000-06:002007-12-18T05:10:00.000-06:00You have to draw attention to her *anomalies* prec...You have to draw attention to her *anomalies* precisely because you are so proud of her and because you see her potential. That's all.<BR/><BR/>I think you're just as amazing as your little daughter. <BR/><BR/>HeidiFamily Adventurehttps://www.blogger.com/profile/00093360285075029799noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-44739830416533697892007-12-18T00:08:00.000-06:002007-12-18T00:08:00.000-06:00Willow's OT always points this out to me... she'll...Willow's OT always points this out to me... she'll say "oh she's made great progress, but that makes our job harder" because the problem areas don't stand out so much... and W look more and more normal as time goes on ... and yet, the differences stand out more too in some ways because they can no longer be explained away ... so she talks a bit funny, behaves a little strangely... some people get it straight away (esp. those who work with kids) others need time to see the differences... <BR/><BR/>anyway, as always, i understand you too well :)<BR/><BR/>with love,<BR/><BR/>emxxEmhttps://www.blogger.com/profile/17574688179517054558noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-75090846000067501002007-12-17T23:48:00.000-06:002007-12-17T23:48:00.000-06:00"delighted screaming"excellent."delighted screaming"<BR/><BR/>excellent.painted maypolehttps://www.blogger.com/profile/06446625015003854710noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-35322841286159991782007-12-17T23:08:00.000-06:002007-12-17T23:08:00.000-06:00but everyone, and i mean everyone sees her mother,...but everyone, and i mean everyone sees her mother, full of grace, strong as a tiger, vigilant as a hawk. <BR/><BR/>everyone sees the beauty of her mother.Girlplustwohttps://www.blogger.com/profile/07056576921114387218noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-37941736835867435772007-12-17T22:00:00.000-06:002007-12-17T22:00:00.000-06:00Kyla,I'm wearing my teacher hat, so be prepared be...Kyla,<BR/><BR/>I'm wearing my teacher hat, so be prepared before I start.<BR/><BR/>Reading your words is so immediately refreashing. You are so REAL. So often in an IEP meeting, I listen to parents who are completely out of touch with the reality for their child. They either think that there is nothing wrong with their child, that their child will "grow out of" their educational situation or that their child is destined to be "special" forever and want far more services than we can provide. I think I'm safe to say that only 1 out of every 5 or 6 meetings do I find a parent who understands their child's strengths and weaknesses, limitations, relationships to peers, etc. <BR/><BR/>You are 100% correct that you are your child's advocate. Fight for her whenever you must. I am always so thankful for parents who fight for their kids rather than leave all the decisions to us, the educational team. Sure, I might know more about developmentally appropriate practices or how a 7/8 year old learns to regroup in math, but EVERY PARENT KNOWS HIS OR HER CHILD MUCH BETTER THAN I DO. You are doing everything exactly right. I am eager for you all...to find out how this will work for you and how KayTar will progress after the Transfer. <BR/><BR/>Okay, off the my teacher-box now. <BR/><BR/>Still praying for Jakie and checking in with his family often. Please update if you hear anything.nataliehttps://www.blogger.com/profile/10758393907259378213noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-45542411540499254152007-12-17T21:55:00.000-06:002007-12-17T21:55:00.000-06:00Wow. Just - wow.I hate it when people write off i...Wow. Just - wow.<BR/><BR/>I hate it when people write off issues our kids may have with the "Oh, they'll just grow out of it" or what have you.<BR/><BR/>I really hate that.Jenhttps://www.blogger.com/profile/02086167716210736774noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-46455593965053193672007-12-17T21:34:00.000-06:002007-12-17T21:34:00.000-06:00Kyla you do a great job advocating for your amazin...Kyla you do a great job advocating for your amazing little girl. <BR/>I know what you mean about the comparison. There was a sibling the same age as Julia at our developmental drop-in last week. The kid a) sat up, b) stared at me and c) played with a toy using both hands. It didn't make me feel badly, it just made it more clear to me where Julia needs to be developmentally.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-61000857679879462582007-12-17T20:21:00.000-06:002007-12-17T20:21:00.000-06:00oh I'm so happy to hear about the speech therapy a...oh I'm so happy to hear about the speech therapy and FM system! You do have an amazingly complex little girl on your hands . . . wouldn't it be nice if for a change society conformed to her instead of the other way around?Junie's Bloghttps://www.blogger.com/profile/02227880461501446699noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-7564117625129772782007-12-17T20:00:00.000-06:002007-12-17T20:00:00.000-06:00Gosh. You just have so much to manage. I am think...Gosh. You just have so much to manage. I am thinking of you.<BR/><BR/>xo,<BR/>JOhTheJoyshttps://www.blogger.com/profile/05031731198115388411noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-37644065749040510952007-12-17T16:38:00.000-06:002007-12-17T16:38:00.000-06:00Well written indeed Kyla. You and she have come s...Well written indeed Kyla. You and she have come so far in such a little time, and although to some, she's seems perfectly "normal" I think that is your biggest challenge now - making sure that she gets what she needs, and nothing - absolutely nothing - gets overlooked. <BR/><BR/>You're doing it, friend. You're doing it so well.carriehttps://www.blogger.com/profile/04038972194323564240noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1210261430872905422007-12-17T16:34:00.000-06:002007-12-17T16:34:00.000-06:00Bugga is very similar to KayTar in that at first g...Bugga is very similar to KayTar in that at first glance, people think he's a typically developing child. So they ask him a question and he smiles, but says nothing. So they ask how old he is, and when I answer, they say "Oooooohh....." and walk away. I'm only just getting to the point (he's 7 now) where it doesn't bother me. I no longer feel like I owe every person we meet an explanation. And like KayTar, people want Bugga to be 'all better now' because he had ONE good day with a sensory thing. OH how I wish it were that easy!<BR/><BR/>The first year of school is scary for US. But I'll bet you that KayTar takes off like a shot and loves going to school. Sure, the folks making those decisions at first are strangers, but you will come to know them very well, and understand rather quickly that they are there to offer KayTar as much help as they can. <BR/><BR/>(((HUGS))) Kyla, you're doing a great job with your kids. If you need to talk, I'm an e-mail away.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-87940029624871456572007-12-17T16:17:00.000-06:002007-12-17T16:17:00.000-06:00I just love her.and you.I just love her.<BR/><BR/>and you.flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-67034215949693484092007-12-17T15:45:00.000-06:002007-12-17T15:45:00.000-06:00We face a lot of the same challenges - the Baby's ...We face a lot of the same challenges - the Baby's weight is now at a low-but-normal point and what people don't see is the multiple cans of Pediasure STILL needed to keep her there, the careful monitoring of everything that she does and does not eat. It's hard when a lot of their problems are invisibile to outsiders and then you lack some essential types of support.<BR/>Sigh.Beckhttps://www.blogger.com/profile/13953517447164263617noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-10948811920047230342007-12-17T15:24:00.000-06:002007-12-17T15:24:00.000-06:00As a parent, you are your child's adovacte. You ar...As a parent, you are your child's adovacte. You are her voice. And Kyla you are doing an amazing job.Amyhttps://www.blogger.com/profile/09869227309284462135noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-87092474954426466692007-12-17T14:28:00.000-06:002007-12-17T14:28:00.000-06:00It is, very plainly, simply you advocating for her...It is, very plainly, simply you advocating for her. Not ungrateful or not proud. My goodness, your pride and love is very clear. I am wowed at her progress, but want to see her get the good help she has been getting that got her to this point, so that she can keep achieving.<BR/><BR/>Julie<BR/><A HREF="http://theartfulflower.blogspot.com/" REL="nofollow">Using My Words</A>Julie Pipperthttps://www.blogger.com/profile/03169574697104642479noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-39634732717305691222007-12-17T14:19:00.000-06:002007-12-17T14:19:00.000-06:00She has improved so dramatically and is a truly am...She has improved so dramatically and is a truly amazing little girl. I think I am having the opposite battle with myself -- trying to fight the urge to tell everyone about AJ's beginnings or to make excuses for things. We have always tried so hard to just treat him like any other little boy. And I want people to see him that way, too.AJsMomhttps://www.blogger.com/profile/01114222641464221661noreply@blogger.com