tag:blogger.com,1999:blog-33281653.post4671824235519709379..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: This is what it looks like when your subconscious explodesKylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-33281653.post-72873280962872590562007-10-08T20:17:00.000-05:002007-10-08T20:17:00.000-05:00Oh. my. god. I can't believe you've had to wait s...Oh. my. god. I can't believe you've had to wait so long! It's simply inexcusable for the neurologist to not get back to you. Even if he doesn't make the call himself, he has people, nurses, and assistants he can delegate that too. Not being responsive to questions that may affect your daughter's future is unacceptable. But hey, I don't need to tell you that.<BR/><BR/>You keep being the mama bear fighting for her cub. I know it's hard not to have any control, but if it makes you feel like you do, then keep harassing people. You're just trying to get some answers. ((HUGS))Lawyer Mamahttps://www.blogger.com/profile/06819273107327846943noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-3317241899641064462007-10-08T13:07:00.000-05:002007-10-08T13:07:00.000-05:00I can feel your frustration and obviously it has t...I can feel your frustration and obviously it has transfered even to your sleeping hours...when you're supposed to have some peace. I hope answers come. Sometimes they don't and then we have to dredge up all this strength and hope and peace on our own...and that is tough. <BR/><BR/> Gosh darn it...I hope they didn't lose the tests. Six weeks is really unacceptable. Keeping you in my thoughts.Kathy Gillenhttps://www.blogger.com/profile/13553445956092244242noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-28816761547126230702007-10-08T11:29:00.000-05:002007-10-08T11:29:00.000-05:00Oh Kyla, I am so sorry that you are in this limbo ...Oh Kyla, I am so sorry that you are in this limbo state. It must be terrible, the not knowing. Won't they even tell you what is taking so long or when the results will be in? I hope you get answers soon.Cristinahttps://www.blogger.com/profile/07245436504933052526noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-48326512686230037382007-10-08T10:55:00.000-05:002007-10-08T10:55:00.000-05:00You are living in vivid technicolor, the nightmare...You are living in vivid technicolor, the nightmare of all parents...the realization that we have so little control over the lives of our children. We so wish to shelter and protect them, but control is a perception, not reality.<BR/><BR/>Notwithstanding, do continue to bug the professionals, it's their responsibility to respond! And their lack of response is likely their own reaction to the complicated "unknowns" in Kaytar's non-diagnosis.<BR/><BR/>You are a terrific Mom! Keep up the good work. <BR/><BR/>You are in my prayers!<BR/><BR/>PJ<BR/><BR/>(And you're so on-track with your interpretation of your dreams!! You'd make a great therapist!)PJhttps://www.blogger.com/profile/10630048078969557476noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-59179676700191013952007-10-07T14:00:00.000-05:002007-10-07T14:00:00.000-05:00I know it's frustrating not knowing. My daughter ...I know it's frustrating not knowing. My daughter has different problems but I can still remember the day I realized it didn't really matter what they called the thing, it wasn't going to change anything. My baby girl couldn't be fixed, she was going to stay the way she was. That was hard, but freeing as well. <BR/><BR/>As for modern medicine, what we know is far outweighed by what we don't know.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-62005831850372483732007-10-07T11:58:00.000-05:002007-10-07T11:58:00.000-05:00give me those numbers, lady and i'll go beat some ...give me those numbers, lady and i'll go beat some sense into those people!<BR/><BR/>seriously, though this sucks. <BR/><BR/>{{hugs}}Christinehttps://www.blogger.com/profile/04662448292809451387noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-80644610134096516412007-10-07T01:19:00.000-05:002007-10-07T01:19:00.000-05:00Babe. Your strength is just inspiring. I am so sor...Babe. Your strength is just inspiring. I am so sorry you have to wait for so long.flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-8718721931743834192007-10-06T22:16:00.000-05:002007-10-06T22:16:00.000-05:00Oh honey, I am just aching for you right now. I am...Oh honey, I am just aching for you right now. I am bad at waiting for ANYTHING, but to be kept in the lurch for so long for something that could affect your child's health or outcomes is just... cruel, really. <BR/><BR/>I really hope you get some answers soon, Kyla, and that they are the kind that makes your heart swell up and your body sag with the joy and relief of them. That they will point to something concrete and manageable. It may be a long shot, but that's what I'm crossing my fingers for anyhow. <BR/><BR/>Meanwhile, I tell you again you are amazing, strong, and patient. I know I would have lost it by now.kittenpiehttps://www.blogger.com/profile/05215443551546036909noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-40789200579224257422007-10-06T21:41:00.000-05:002007-10-06T21:41:00.000-05:00HI Kyla,This makes me sick for you. Have you tried...HI Kyla,<BR/>This makes me sick for you. Have you tried calling customer service at the hospital? I'd call and pitch a holy fit with them. You poor thing, it's one thing when it's an adult waiting for that long, but we're talking about pediatrics! Unbelievable! <BR/>-HethaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-28354474973266700012007-10-06T21:11:00.000-05:002007-10-06T21:11:00.000-05:00Oh Kyla. I wish there was something I could offer....Oh Kyla. I wish there was something I could offer.<BR/>I can tell you my experience that bad news always comes quickly but that doesn't help you. <BR/> It is easy for me to look from the outside and see Kaytar's progress and believe she will continue to improve but as parents the unknowns haunt us because we are the only ones who will have to deal with them. <BR/><BR/>I cannot imagine your worry. It is so stressful to have to manage your child's care. When people don't do their jobs and make yours harder it is infuriating.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-13381957229729350322007-10-06T20:19:00.000-05:002007-10-06T20:19:00.000-05:00It's so incredible to me that you are still waitin...It's so incredible to me that you are still waiting . . . six weeks later. Craziness!Junie's Bloghttps://www.blogger.com/profile/02227880461501446699noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-88364950353785162802007-10-06T15:35:00.000-05:002007-10-06T15:35:00.000-05:00There is nothing worse than the waiting and Not Kn...There is nothing worse than the waiting and Not Knowing.<BR/><BR/>It's funny how the subconscious tries to fold things up nice and tidy for us, isn't it? I had a similar dream last night about some stuff that is sucking up way too much of my mental and emotional energy. When I woke up, for a minute I thought, "So that's it! Problem solved!" But it isn't. I just have to wait. And hope. I'll do it in quiet solidarity with you, okay?Janethttps://www.blogger.com/profile/00567374243896229606noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-59868245648063721962007-10-06T15:18:00.000-05:002007-10-06T15:18:00.000-05:00My dreams often hang over me after I wake. I too h...My dreams often hang over me after I wake. <BR/><BR/>I too hope the answers come soon so that the fog will lift.ms bluehttps://www.blogger.com/profile/06997925420763913039noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-83989274932534462902007-10-06T12:03:00.000-05:002007-10-06T12:03:00.000-05:00The unknown sucks. Waiting for what you hope is a ...The unknown sucks. Waiting for what you hope is a missing piece of the puzzle makes it even worse...darn those hold ups!Katiehttps://www.blogger.com/profile/07682901624636941122noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-5632990112768114412007-10-06T09:17:00.000-05:002007-10-06T09:17:00.000-05:00Waiting is a certain kind of hell in my books.It i...Waiting is a certain kind of hell in my books.<BR/><BR/>It is obscene that you are still waiting on those results.<BR/><BR/>Something I have learned through friends of mine who have both experienced having their children go through the medical system, is that you have to be the squeaky wheel and not worry about being a pain in the butt to the doctors.<BR/><BR/>I really hope you get your answers soon.crazymummahttps://www.blogger.com/profile/04663148723513574331noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-46577147034873186432007-10-06T07:56:00.000-05:002007-10-06T07:56:00.000-05:00Ugh. There is no reason that you should still be ...Ugh. There is no reason that you should still be waiting for the results of a test after six weeks. If she had had that test while hospitalized, you would have had the results within a couple of days. Ridiculous. And so unfair.<BR/><BR/>I'm sorry, K., for the not knowing. It's such a weight.Shttps://www.blogger.com/profile/05602868040771218507noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-55759753024286802772007-10-06T07:30:00.000-05:002007-10-06T07:30:00.000-05:00I've had those types of dreams, too. I'm so sorry...I've had those types of dreams, too. I'm so sorry you're in such a place of confusion and waiting that your subconscious mind is stepping in to set things straight.Aliki2006https://www.blogger.com/profile/15763865834765963343noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-57907338170436376502007-10-06T07:05:00.000-05:002007-10-06T07:05:00.000-05:00Isn't it mindblowing when and how our subconscious...Isn't it mindblowing when and how our subconscious sorts things out? It's like the sleep state being somewhat relaxed (not entirely b/c afterall we are moms) well this more relax state allows all the information to float to the top. That said, I really hope that the results come in asap and maybe there will be a piece of the answer in there.motherbumperhttps://www.blogger.com/profile/16053978199395919666noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-55024979988746892082007-10-06T04:47:00.000-05:002007-10-06T04:47:00.000-05:00Unbelieveable. 6 weeks, and you're still waiting?...Unbelieveable. 6 weeks, and you're still waiting? Absolutely unbelievable. And, frankly, unacceptable.<BR/><BR/>I'm surprised you haven't actually exploded about the whole thing at this point, with her symptoms getting worse, not better, and the numerous phone calls that get you nowhere. <BR/><BR/>I hope they come through for you first thing Monday.ewe are herehttps://www.blogger.com/profile/13339650361453626546noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-5315017813864756122007-10-06T01:56:00.000-05:002007-10-06T01:56:00.000-05:00Sometimes the complete powerlessness is just overw...Sometimes the complete powerlessness is just overwhelming. Hang in there and keep fighting for answers.InTheFastLanehttps://www.blogger.com/profile/09691830067979224059noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-54847937653668819082007-10-06T00:26:00.000-05:002007-10-06T00:26:00.000-05:00i can't believe this. i can't believe you are stil...i can't believe this. i can't believe you are still waiting for answers. i want to go shake those people by their heads.Girlplustwohttps://www.blogger.com/profile/07056576921114387218noreply@blogger.com