tag:blogger.com,1999:blog-33281653.post1877226333697385672..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: On pediatricians.Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger28125tag:blogger.com,1999:blog-33281653.post-33366974695668039942007-09-28T10:36:00.000-05:002007-09-28T10:36:00.000-05:00And then when you think of all the kids without pr...And then when you think of all the kids without proper care. Here in North America and elsewhere. It all kinda makes you feel sick, doesn't it. I am so glad you found this woman. So glad.Madhttps://www.blogger.com/profile/13416585771017767796noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-20687300304687574352007-09-27T18:53:00.000-05:002007-09-27T18:53:00.000-05:00So good. So scary to think how many people may hav...So good. So scary to think how many people may have had things overlooked by doctors like the first one. I'm glad you['ve found good care for your girl, Kyla, and good for you for sticking with it until you did.kittenpiehttps://www.blogger.com/profile/05215443551546036909noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-48641076155328535392007-09-27T13:21:00.000-05:002007-09-27T13:21:00.000-05:00Oh you! I'm so glad you found this new doctor. A...Oh you! I'm so glad you found this new doctor. And how hard it must be for you to not be constantly, bitterly angry at your old pediatrician. That you choose the path of hope and forward-looking is really a marvel to me. Kaytar may have a great doctor, but she's got a really great advocate in you, too.<BR/><BR/>:-)Mimihttps://www.blogger.com/profile/10812707312289852258noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-5715110271731643052007-09-26T16:04:00.000-05:002007-09-26T16:04:00.000-05:00It's amazing how different doctors can be. Sounds...It's amazing how different doctors can be. Sounds like you've found the cream of the crop for your little KayTar...<BR/><BR/>As for your original pediatrician, I would have written a letter of complaing to the state medical board. But I'm annoying like that.ewe are herehttps://www.blogger.com/profile/13339650361453626546noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-73595601736929252842007-09-26T13:52:00.000-05:002007-09-26T13:52:00.000-05:00Dr.H truly is a gifted, talented doc. Her care for...Dr.H truly is a gifted, talented doc. Her care for Kaytar has been amazing!!Amyhttps://www.blogger.com/profile/09869227309284462135noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-33748121274048962742007-09-26T10:28:00.000-05:002007-09-26T10:28:00.000-05:00I'm so glad you switched! You must have been so s...I'm so glad you switched! You must have been so simultaneously relieved and infurated after that first visit with the new doctor!Beccahttps://www.blogger.com/profile/05156777853779141522noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-76233871411562708302007-09-26T08:58:00.000-05:002007-09-26T08:58:00.000-05:00The picture of her having her first episode gave m...The picture of her having her first episode gave me the slightest whiff of the panic and helplessness you must have felt.<BR/><BR/>I am so sorry you had such ineptitude at the beginning.crazymummahttps://www.blogger.com/profile/04663148723513574331noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-50375989767283554112007-09-26T02:27:00.000-05:002007-09-26T02:27:00.000-05:00I always want to hug KayTar. ((And you too my frie...I always want to hug KayTar. ((And you too my friend.))ms bluehttps://www.blogger.com/profile/06997925420763913039noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-21153972911132785912007-09-25T23:06:00.000-05:002007-09-25T23:06:00.000-05:00Sage said it.Sage said it.flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-77515630767469379722007-09-25T21:39:00.000-05:002007-09-25T21:39:00.000-05:00Nothing better than finding a caring and thorough ...Nothing better than finding a caring and thorough pediatrician. It took us a long time as well.Shttps://www.blogger.com/profile/05602868040771218507noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-85322981696612866422007-09-25T16:37:00.000-05:002007-09-25T16:37:00.000-05:00Pinhead: We have done so many tests that I am not ...Pinhead: We have done so many tests that I am not 100% sure about what I am about to tell you, but I think it is mostly accurate. <BR/><BR/>We've talked about mitochondrial disorders with the geneticist and I believe he ordered preliminary blood testing in regards to it. She also had an LP last month and he just ordered additional tests on the CSF, and mitochondrial disorders might be part of that as well.<BR/><BR/>From what I can remember, it isn't off the table altogether, but is currently being ruled out. I THINK. LOL. Really, we've been through so many different testing rounds and certain things are spotty in my memory. I remember discussing it at the most recent genetics appointments which is why I think that it is currently being tested for.Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-89466908161317897982007-09-25T16:05:00.000-05:002007-09-25T16:05:00.000-05:00I so enjoy your blog (and, incidentally, I have a ...I so enjoy your blog (and, incidentally, I have a delightful daughter who is also named Kyla, one of my favorite names!) and admire your ongoing grace and courage. You’ve probably explored this, but I thought I’d ask--has KayTar been tested for a mitochondrial disorder? While doing some reading, it sounded as if some of the symptoms can be similar to what KayTar experiences (loss of muscle coordination, hearing/vision problems, neurological problems, brain lesions, seizures, GI disorders, slow weight gain, severe constipation, susceptibility to infection, etc.). Just a thought I had, because I think of KayTar every day and (like you) long for a diagnosis—something that will explain everything. Best to all of you, and thanks again for sharing the journey with us.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-14308528255559423232007-09-25T15:44:00.000-05:002007-09-25T15:44:00.000-05:00Oops got interrupted..was saying I'm so glad you f...Oops got interrupted..was saying I'm so glad you found such a great doctor!<BR/><BR/>Julie<BR/><A HREF="http://theartfulflower.blogspot.com/" REL="nofollow">Using My Words</A>Julie Pipperthttps://www.blogger.com/profile/03169574697104642479noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-31403687512014740762007-09-25T15:43:00.000-05:002007-09-25T15:43:00.000-05:00I hear you, oh how I hear you and it makes me livi...I hear you, oh how I hear you and it makes me livid for you.<BR/><BR/>It made me livid for me. I put my kid through a year of hell because my pediatrician's ego and ignorance were both too large to provide quality care. <BR/><BR/>First visit with new doctor? World of difference immediately. I berated myself before turning my ire to the doctor though.<BR/><BR/>I'm so, so sorry you dealt with that.<BR/><BR/>I'm so glad<BR/><BR/>We ought to be able to trust doctors. I can't be an expert in that too, but I must be.<BR/><BR/>Julie<BR/><A HREF="http://theartfulflower.blogspot.com/" REL="nofollow">Using My Words</A>Julie Pipperthttps://www.blogger.com/profile/03169574697104642479noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-60213890226743624472007-09-25T15:27:00.000-05:002007-09-25T15:27:00.000-05:00It makes all the difference in the world to get th...It makes all the difference in the world to get the support you need. Good for you for making the effort. Some people would just accept the status quo.<BR/><BR/>And don't say you are "just doing your job" as a mother either... :-)Run ANChttps://www.blogger.com/profile/06088821030860597465noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-43806297081887578292007-09-25T14:37:00.000-05:002007-09-25T14:37:00.000-05:00And honestly I cannot even imagine how my head wou...And honestly I cannot even imagine how my head would be exploding if I had one more hurdle, like insurance, between me and my child getting help that she needed.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-27594529485719006952007-09-25T14:35:00.000-05:002007-09-25T14:35:00.000-05:00Hilarious last bit.You know how I feel about the g...Hilarious last bit.<BR/>You know how I feel about the good ones, but they just feel they are doing their job. Too bad the bad ones don't feel like they are not doing their jobs.<BR/>I think Kyla you also have to take a lot of credit for making the effort to see the right ped though too. <BR/>Finding the right people is quite a task as I am discovering.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-35717062597437715972007-09-25T14:28:00.000-05:002007-09-25T14:28:00.000-05:00I hate doctors like this. I really need to send yo...I hate doctors like this. <BR/><BR/>I really need to send you a personal e-amil on this topic though.Sarahhttps://www.blogger.com/profile/06568095510365381346noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-48444748817321889442007-09-25T14:05:00.000-05:002007-09-25T14:05:00.000-05:00Stupid, blind people can always sleep at night... ...Stupid, blind people can always sleep at night... makes 'em good targets for freezing their underwear and doing the hand in the warm water trick though. <BR/><BR/>A good doctor makes all the difference.dawn224https://www.blogger.com/profile/12261307900362127378noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-65721419439627619132007-09-25T14:00:00.000-05:002007-09-25T14:00:00.000-05:00It's hard to understand how your first pediatricia...It's hard to understand how your first pediatrician can sleep at night. <BR/><BR/>Good for you for taking the chance, and an hour drive at that.Chrissyhttps://www.blogger.com/profile/10149130500687247127noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-77207932620468311982007-09-25T13:38:00.000-05:002007-09-25T13:38:00.000-05:00I love a happy ending.Your pediatrician sounds awe...I love a happy ending.<BR/><BR/>Your pediatrician sounds awesome. We have a fairly intense doctor shortage around these parts, so our kids don't see pediatricians. Still, I switched from my old GP, who was so clearly shifting the focus of his "medical practice" to cosmetic-y Botox-type procedures, to a new GP who is my age and has two young children of her own. I love her.Janethttps://www.blogger.com/profile/00567374243896229606noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-21360856446857162642007-09-25T13:26:00.000-05:002007-09-25T13:26:00.000-05:00I'm with Notsosage -- good for you for being the k...I'm with Notsosage -- good for you for being the kickass advocate that you are for Kaytar.mamatuliphttps://www.blogger.com/profile/02692442843330582571noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-83121913224490682862007-09-25T13:13:00.000-05:002007-09-25T13:13:00.000-05:00Thank goodness for that dr.!! What a difference sh...Thank goodness for that dr.!! What a difference she has made in Kaytar's life and of course you had the wisdom and strength to mae that life-altering choice!Junie's Bloghttps://www.blogger.com/profile/02227880461501446699noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-38647306632578154462007-09-25T12:44:00.000-05:002007-09-25T12:44:00.000-05:00Hetha: Definitely. It did work in our favor, it ju...Hetha: Definitely. It did work in our favor, it just shows how little attention he paid. He wasn't doing it to assist with getting insurance, he just really had no clue.Kylahttps://www.blogger.com/profile/03311014761113076785noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-30310796774187472042007-09-25T12:41:00.000-05:002007-09-25T12:41:00.000-05:00I agree with notsosage, you deserve a lot of credi...I agree with notsosage, you deserve a lot of credit with regards to Kaytar's comeback, simply by being the most kickass mom I know of. Seriously.<BR/><BR/>Now about that form the ex-doc filled out...if you were trying to get insurance coverage, it works in your favor (though I'm not saying it's excusable in any way!) that he was incorrect on all of those questions. Believe it or not, none of Ethan's hearing loss visits get covered because he was born deaf and they use "pre-existing condition" to get out of te coverage. Mind boggling as it is. I just wonder if you'd have a harder time with getting all of Kaytar's therapies and visits covered if he had answered them correctly? No matter, he sucks and he's out of your life!Anonymousnoreply@blogger.com