tag:blogger.com,1999:blog-33281653.post1187598451333152201..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: That KayTar...Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-33281653.post-11088867570725035972008-01-15T19:58:00.000-06:002008-01-15T19:58:00.000-06:00Bleah. Yes. This NVLD label sucks - because the av...Bleah. Yes. This NVLD label sucks - because the average person doesn't know that "Nonverbal Learning Disability" translates out as "a learning disability that ain't got nuttin' to do with language skills, cuz them language skillz rawk"<BR/><BR/>A PDD-NOS label may get you more/better services because it's more ... intense?<BR/><BR/>Does Texas have an "Other Health Impaired" (OHI) label/category?<BR/><BR/>(I'm going to quit reading now - every time I read a post I bombard you with a bunch of questions - feel better email me if ya need to as this whole eval lala goes on)dawn224https://www.blogger.com/profile/12261307900362127378noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-35920426831374561532008-01-13T11:46:00.000-06:002008-01-13T11:46:00.000-06:00Kyla, my youngest has been diagnosed with a non-ve...Kyla, my youngest has been diagnosed with a non-verbal learning disorder (even my oldest has a mild case of it). As you've figured, it doesn't mean that they are non-verbal...just the opposite - it means that they do better verbally than non-verbally...for instance, B boy may eventually need school work read out loud to him. It can be difficult for him to comprehend things that aren't explained to him verbally...he also has poor fine motor skills, he has poor visual-spatial skills...<BR/><BR/>B boy has some other issues as well (ADHD being one of them). However, he is the sweetest little boy to me, and despite all these fairly serious setbacks, he still tested extremely high on his overall IQ. I was amazed when they told me this, because this is a child who refuses to write because he cannot hold his pencil properly.<BR/><BR/>And yet these people were able to not only measure his potential, but also give me suggestions/solutions to several of his issues.<BR/><BR/>I'm just saying this last part for you to know that even though there may be lots and lots of hindrances, there's people out there who can help you get the best out of KayTar. I know you'll find them, but sometimes it can be so disillusioning. Sometimes you might feel like you are all alone in this. But you are not! There's people out there who can help, and you will find them if you keep looking!<BR/><BR/>HeidiFamily Adventurehttps://www.blogger.com/profile/00093360285075029799noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-8527705366820321912008-01-11T21:03:00.000-06:002008-01-11T21:03:00.000-06:00Would you be surprised I've got NVLD on my short ...Would you be surprised I've got NVLD on my short list for secondary diagnoses for Julia? Another mom of a kid with Sotos mentioned it to me as people have the same experience with Sotos you have with Kaytar in that they don't fit neatly into a box so accessing services becomes an issue.<BR/><BR/>I'm so glad to read you got some sleep. I am sure you can imagine the swearing I was doing after reading your comment about double doses of chloral hydrate. ug.moplanshttps://www.blogger.com/profile/16998309937928231527noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-67317308115870965512008-01-11T20:48:00.000-06:002008-01-11T20:48:00.000-06:00So glad she is doing better - she's lucky to have ...So glad she is doing better - she's lucky to have you in here corner mama.Don Mills Divahttps://www.blogger.com/profile/03733674458423525738noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-41600976413755170652008-01-11T20:18:00.000-06:002008-01-11T20:18:00.000-06:00ahhh the dreaded label . . . sometimes good . . ....ahhh the dreaded label . . . sometimes good . . . sometimes not so good. I never considered NLD for Kaytar but it does sound very feasible! I hope hope something will come of it, if only to get the services that she needs.Junie's Bloghttps://www.blogger.com/profile/02227880461501446699noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-14953949749726451522008-01-11T19:16:00.000-06:002008-01-11T19:16:00.000-06:00This seems like you're at least barking up a decen...This seems like you're at least barking up a decent tree. I'll be interested to see where the evaluation takes you.Madhttps://www.blogger.com/profile/13416585771017767796noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-31224232727739591992008-01-11T18:30:00.000-06:002008-01-11T18:30:00.000-06:00So glad she's better and you're getting some rest....So glad she's better and you're getting some rest.<BR/><BR/>I totally hear you on the issue of labels and services. But I am really confused as to why a diagnosis that begins with the term Nonverbal would include Precocious speech & language development and verbosity at a young age! <BR/><BR/>Do you by any chance want to be a pediatric nurse Kyla?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-58246641159555313732008-01-11T17:29:00.000-06:002008-01-11T17:29:00.000-06:00I call her beautiful, but I know that doesn't help...I call her beautiful, but I know that doesn't help for treatment's sake.<BR/><BR/>But she is, I am sure you know.flutterhttps://www.blogger.com/profile/11828689769747130419noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-41090346385090453532008-01-11T16:02:00.000-06:002008-01-11T16:02:00.000-06:00I know how much the label means--for just the reas...I know how much the label means--for just the reasons you state.<BR/><BR/>Is it known how or why hyperlexia occurs? <BR/><BR/>Glad she seems to be on the mend!Gretchenhttps://www.blogger.com/profile/14395850914692471354noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-54402991377574878662008-01-11T15:59:00.000-06:002008-01-11T15:59:00.000-06:00I am happy to hear she is better. I hear speech re...I am happy to hear she is better. I hear speech repetition in my house too. It's hard to get a handle on, but you are amazing. Hope more sleep comes your way.Karenhttps://www.blogger.com/profile/09390898429089863816noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-19923945636403209502008-01-11T14:32:00.001-06:002008-01-11T14:32:00.001-06:00Soooo glad she is doing better. You constantly ama...Soooo glad she is doing better. <BR/><BR/>You constantly amaze me with how observant you are about KayTar's language development. Really, I'm floored. She is so lucky to have you (and you, her).NotSoSagehttps://www.blogger.com/profile/04782162947524115936noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-86435155802256554762008-01-11T14:32:00.000-06:002008-01-11T14:32:00.000-06:00You are such a fierce advocate for that little gir...You are such a fierce advocate for that little girl! You go, mama.Janethttps://www.blogger.com/profile/00567374243896229606noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-31148216128029123822008-01-11T14:31:00.000-06:002008-01-11T14:31:00.000-06:00High five for no vomit.As for the labels, if it ge...High five for no vomit.<BR/><BR/>As for the labels, if it gets the services and insurance in order then so be it. The danger lies in those who pigeon hole the "labelled" children - and you are not one of them, that's for sure.<BR/><BR/>xo to all - from the bumpsmotherbumperhttps://www.blogger.com/profile/16053978199395919666noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-20547014896158567982008-01-11T14:22:00.000-06:002008-01-11T14:22:00.000-06:00glad she is feeling better. This is an awful lot f...glad she is feeling better. This is an awful lot for you to have to wade through.<BR/><BR/>By the way -i tried e-mailing you but it got returned. Would you please contact me at pntdmaypoleATyahooDOTcom? I'm going to be out your way in a few weeks and hope we might make time to meet.painted maypolehttps://www.blogger.com/profile/06446625015003854710noreply@blogger.com