tag:blogger.com,1999:blog-33281653.post116303733547790119..comments2023-09-04T11:20:08.804-05:00Comments on Life with the 'Tars: An answer?!?Kylahttp://www.blogger.com/profile/03311014761113076785noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-33281653.post-46852763602846767422008-01-14T21:00:00.000-06:002008-01-14T21:00:00.000-06:00My 18 month old son has BPT. Check out my blog at:...My 18 month old son has BPT. Check out my blog at: http://www.benignparoxysmaltorticollis.blogspot.com/Richellehttps://www.blogger.com/profile/00957923578206318962noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-86153843214456248782006-11-15T14:01:00.000-06:002006-11-15T14:01:00.000-06:00Honey, once again I am a day late and a dollar sho...Honey, once again I am a day late and a dollar short, but. But!<br /><br />I am *so* relieved with this outcome, though I know it's by no means a walk in the park. But--oh, Kyla!Psycho Kittyhttps://www.blogger.com/profile/05633634991906191853noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1163128928452621472006-11-09T21:22:00.000-06:002006-11-09T21:22:00.000-06:00Like NSSW, I haven't stopped by since your final t...Like NSSW, I haven't stopped by since your final teenage-romance post, and so much has happened in that period of time! I read about your relief, and then the diagnosis, and then that awful day when even the nap didn't end the episode (I can't imagine how awful that was for you). I'm so glad that you've found a diagnosis - it sounds like a very good one.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1163079058726133162006-11-09T07:30:00.000-06:002006-11-09T07:30:00.000-06:00Wow, that really does fit doesn't it?? There is no...Wow, that really does fit doesn't it?? There is nothing quite like a neuro who will take the time to listen and really understand. Benigh is such a good word, even if the episodes are frightening. If the PeriActin doesn't work, ask about Topamax. It's not the 'best drug' for everyone. It is an anti-epileptic, but it is also being used for Migraine control. It can have some side effects, the biggest being the bodies inability to regulate heat...meaning the kids don't sweat. I believe you are in the south so this may be a deal breaker, but it's always good to have options.<BR/><BR/>As for her mental impairment, just because it's shouldn't affect her development doesn't mean it's not worth keeping a close eye on and getting an Early Intervention evaluation just in case.<BR/><BR/>I'll keep checking in.<BR/><BR/>JenJSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1163074740860916422006-11-09T06:19:00.000-06:002006-11-09T06:19:00.000-06:00Oh, Kyla! What a RELIEF! I was so worried for your...Oh, Kyla! What a RELIEF! I was so worried for your baby - but this, while not perfect, is still so much better than the things that you were frightened of.<BR/>A friend of mine has Spasmodic Torticollis - is that similar? She's a smart, married adult living a completely normal life.<BR/>I'm so glad that you finally have a diagnosis and that KayTar doesn't have to have a lengthy hospital stay - what a blessing.Beckhttps://www.blogger.com/profile/13953517447164263617noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1163066863865153732006-11-09T04:07:00.000-06:002006-11-09T04:07:00.000-06:00Kyla - this is wonderful news! I am so happy for y...Kyla - this is wonderful news! I am so happy for you. Really. :)<BR/>AndreaAndreahttps://www.blogger.com/profile/11584642250579986707noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1163045474273339362006-11-08T22:11:00.000-06:002006-11-08T22:11:00.000-06:00"and resolve by 5 years"That is great!! (well, con..."and resolve by 5 years"<BR/><BR/>That is great!! (well, considering, I mean!)musehttps://www.blogger.com/profile/05055850321564226883noreply@blogger.comtag:blogger.com,1999:blog-33281653.post-1163040301781189652006-11-08T20:45:00.000-06:002006-11-08T20:45:00.000-06:00Kyla,I haven't checked in for a couple of days, an...Kyla,<BR/><BR/>I haven't checked in for a couple of days, and what a wonderful post to see upon my arrival! I'm so relieved for you and KayTar and your family. Nothing beats a medical team that really takes the time to *care* in the true sense of the word.<BR/><BR/>I'm not really sure what the appropriate thing is to say, but I hope that congratulations (?) will not seem too weird...You know what I mean, I'm sure.<BR/><BR/>J<BR/><BR/>P.S. Thanks for the wonderful story about you and Josh. It brought me back to being 13 again...NotSoSagehttps://www.blogger.com/profile/04782162947524115936noreply@blogger.com